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Coping with Paralysis
after a Spinal Cord Injury

FacingDisability.com connects families who suddenly have to deal with paralysis after a spinal cord injury to people like them who have already been there.

REAL PEOPLE,
REAL EXPERIENCES

Everybody in these videos
is living with paralysis

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 REAL PEOPLE, REAL EXPERIENCES

Everybody in these videos
is living with a spinal cord injury 

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WHAT THE
EXPERTS SAY

Top medical specialists focus on
 essential information on paralysis

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WHAT THE EXPERTS SAY

WHAT THE EXPERTS SAY

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ANIMATED SCI LEVELS CHART

Mouse over the spinal column to see how the level of injury affects loss of function and control

More About Spinal Cord Injury

spine C1-C8 spine T1-T12 spine L1-L5 sacrum

Cervical Injuries

Cervical injuries above the C-4 level may require a ventilator for the person to breathe. C-5 injuries often result in shoulder and biceps control, but no control at the wrist or hand. C-6 injuries generally yield wrist control, but no hand function. Individuals with C-7, C-8 and T-1 injuries can straighten their arms, but still may have problems with their hands.

Thoracic Injuries

The first thoracic vertebra, T-1, is located approximately at the same level as the top rib. Injuries to nerves in this region usually affect the chest and the legs, and result in paraplegia. For injuries from T-1 to T-8, there is usually control of the hands but lack of abdominal muscle control. (Individuals with injuries from T-1 to T-6 are also at risk for Autonomic Dysreflexia)

Lumbar Injuries

Injuries to nerves in the area of L-1 to L-5 generally result in some loss of functioning of the hips and legs. Bowel, bladder and sexual function may also be impacted.

Sacral Injuries

The sacrum runs from the pelvis to the end of the spinal column. Injuries to nerves in this area generally result in some loss of functioning of the hips, legs, ankles, and feet. Loss of control of bowel and bladder and sexual functions is also common.

ANIMATED SCI LEVELS CHART

Mouse over the spinal column to see how the level of injury affects loss of function and control

More About Spinal Cord Injury

Cervical Injuries

Cervical injuries above the C-4 level may require a ventilator for the person to breathe. C-5 injuries often result in shoulder and biceps control, but no control at the wrist or hand. C-6 injuries generally yield wrist control, but no hand function. Individuals with C-7, C-8 and T-1 injuries can straighten their arms, but still may have problems with their hands.

Thoracic Injuries

The first thoracic vertebra, T-1, is located approximately at the same level as the top rib. Injuries to nerves in this region usually affect the chest and the legs, and result in paraplegia. For injuries from T-1 to T-8, there is usually control of the hands but lack of abdominal muscle control. (Individuals with injuries from T-1 to T-6 are also at risk for Autonomic Dysreflexia)

Lumbar Injuries

Injuries to nerves in the area of L-1 to L-5 generally result in some loss of functioning of the hips and legs. Bowel, bladder and sexual function may also be impacted.

Sacral Injuries

The sacrum runs from the pelvis to the end of the spinal column. Injuries to nerves in this area generally result in some loss of functioning of the hips, legs, ankles, and feet. Loss of control of bowel and bladder and sexual functions is also common.

Facing Disability Blog

Clinical Trial for Promising New SCI Treatment

Researchers at the Shirley Ryan AbilityLab are recruiting individuals with chronic (1-10 years) and subacute (10-49 days) cervical spinal cord injury (incomplete) to test the safety and efficacy of an experimental drug, NVG-291. NVG-291 is neuroreparative therapeutic injection that has the potential to treat nervous system damage resulting from injury or disease. Previous lab studies have shown promising results, with NVG-291 demonstrating improvements in locomotion and bladder recovery among individuals with spinal cord injuries.

Starting this August, participants will receive a daily injection of either NVG-291 or a placebo drug for 16 weeks and will be assessed for changes in upper and lower limb function. To enroll, participants must be 18-75, have a cervical spinal cord injury (C7 or higher) and minimal hand function with the ability to initiate one step with the use of assistive device or walker. They must also live in Chicago or have the ability to relocate for the 16 weeks of the trial. The Shirley Ryan AbilityLab can provide an ADA hotel room with two beds if needed at a nearby hotel.

To read more about the study, visit SCI Trials Finder, or to enroll, call: +1 (855) 559-6902.

...

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Facing Disability Blog

Clinical Trial for Promising New SCI Treatment

Researchers at the Shirley Ryan AbilityLab are recruiting individuals with chronic (1-10 years) and subacute (10-49 days) cervical spinal cord injury (incomplete) to test the safety and efficacy of an experimental drug, NVG-291. NVG-291 is neuroreparative therapeutic injection that has the potential to treat nervous system damage resulting from injury or disease. Previous lab studies have shown promising results, with NVG-291 demonstrating improvements in locomotion and bladder recovery among individuals with spinal cord injuries.

Starting this August, participants will receive a daily injection of either NVG-291 or a placebo drug for 16 weeks and will be assessed for changes in upper and lower limb function. To enroll, participants must be 18-75, have a cervical spinal cord injury (C7 or higher) and minimal hand function with the ability to initiate one step with the use of assistive device or walker. They must also live in Chicago or have the ability to relocate for the 16 weeks of the trial. The Shirley Ryan AbilityLab can provide an ADA hotel room with two beds if needed at a nearby hotel.

To read more about the study, visit SCI Trials Finder, or to enroll, call: +1 (855) 559-6902.

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PARALYSIS HELP YOU CAN TRUST

FacingDisability presents current information on spinal cord injury which has been developed by working with medical experts at major hospitals universities and rehabilitation institutions. They include: Shirley Ryan AbilityLab, Chicago; Harvard Spaulding Medical Center, Boston; Shepherd Center, Atlanta; Craig Hospital, Denver; Mayo Clinic, Rochester, MN. FacingDisability staff members serve on committees of the Model Systems Knowledge Translation Center (MSKTC) of the National Institutes of Health (NIH) and The National Institute on Disability and Independent Living (NIDLRR).  

Spinal cord injury medical experts who are interviewed on FacingDisability.com come from: Shirley Ryan AbilityLab, Chicago; Craig Hospital, Denver; Shepherd Center, Atlanta; Magee Rehabilitation Hospital, Philadelphia; Shriners Hospital for Children, Chicago; TIRR Memorial Hermann, Houston; VA Palo Alto Health Care System, CA; Memphis VA Medical Center, TN; University of Michigan, Ann Arbor; MedStar National Rehabilitation Hospital, Washington, D.C.; 

VA Boston Healthcare System; Rehabilitation Institute of Kansas City, Missouri; Case Western University, Cleveland; Clement J. Zablocki VA Medical Center, Milwaukee; Thomas Jefferson University, Philadelphia; Arkansas Spinal Cord Injury Commission, Little Rock; VA Puget Sound Health Care System, Seattle; School of Public Health, Indiana University.

Personal interviews of people living with spinal cord injury were recorded by FacingDisability in Chicago, Philadelphia, Atlanta, New Orleans, and California.

FacingDisability is regularly invited to make presentations at the national meetings of spinal cord injury associations: Academy of Spinal Cord Injury Professionals (ASCIP), American Spinal Injury Association (ASIA), Rehabilitation Psychology Conference, The International Spinal Cord Injury Society (ISCoS), American Congress of Rehabilitation Medicine (ACRM) and at the Paralyzed Veterans of America Summit (PVA).

FacingDisability.com is funded by the Hill Foundation, a 501(c) (3) non-profit.

 

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