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Disability rights advocacy groups are comprised of people working together to support and promote equal rights for people with spinal cord injuries and other disabilities.  This list includes the top disability-rights advocacy organizations and programs.  Here you’ll find support as well as information on the rights to which you’re entitled, and how to claim them. 

  • Academy of Spinal Cord Injury Professionals

    Academy of Spinal Cord Injury Professionals is a interdisciplinary organization dedicated to advancing the care of people with spinal cord injury/dysfunction (Spinal Cord Injury/D) by bringing together nurses and physicians.The Academy is made up of the American Association of Spinal Cord Injury Nurses, the American Paraplegia Society, the American Association of Spinal Cord Injury Psychologists and Social Workers, and the Therapy Leadership Council in Spinal Cord Injury.

     

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  • Access Living

    Access Living is a nonprofit organization in Chicago, IL whose aim is to empower the disabled community. They offer programs dedicated to helping people with disabilities live as independently as possible and also advocate for equal rights and fair housing and work to educate society on disability issues. Their independent living programs provide counseling, financial education, and help with acquiring a personal assistant. Access Living also offers community development services specifically for youth and women.

     

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  • American Association of People with Disabilities

    The AAPD is a national nonprofit member organization focused on advocacy and on making the voice of the disability community heard. This group sponsors career and leadership programs for disabled individuals and promotes legislative action to create a more accessible world. Persons with disabilities are encouraged to join AAPD to participate in coalition activities to advocate in education, workplace & employment, health, housing, technology, transportation, interfaith organizations, as well as supporting international best-practices, advocacy for veterans, and voting. The AAPD Summer Internship Program places college, graduate, and law students in paid 10-week summer internships in Congressional offices, federal agencies, non-profit and for-profit organizations in Washington, DC. Disability Mentoring Day is a large-scale notional effort coordinated by AAPD to promote career development. Disability statistics, demographics and trends are addtionally provided through the Resource tab of this website.

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  • Americans with Disabilities Act (ADA): Summary of Key Points

    This consumer education sheet summarizes key points of the Americans with Disabilities Act (ADA). This legislation made it a violation of federal law to discriminate against people with disabilities, just as civil rights laws protect people against discrimination on the basis of race, gender, national origin, and religion. The ADA is divided into four main sections, called "Titles": 1. Employment, 2. State & Local Government, Transportation, and Public Service, 3. Public Accommodations, and 4. Telecommunications.  Knowing your rights in each of these four areas can assist you in rentering the job market and pursing an active lifestyle. Additional information on the ADA can be located at www.dol.gov.

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  • Association of Assistive Technology Act Programs

    Funded by the federal Assistive Technology Act (AT Act), this organization offers programs in every state which feature information about assistive technology and are dedicated to making it available to people with disabilities. Here you can learn what support your state offers for acquiring assistive technology. The website also contains updates on federal legislation dealing with disability and adaptive technology. Select AT Programs on the right to get contact information and the website of your state program.

     

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  • Australia/New Zealand Spinal Cord Network

    The Australian/ New Zealand Spinal Cord Network’s mission is to make recovery from spinal cord injury as full as possible.  Established in 2008, the Spinal Cord Injury Network has identified a number of ways to speed the translation of innovative research discoveries into practical benefits for people with spinal cord injury, focusing on five approaches. They aim to advance treatments for spinal cord injury by promoting excellence in research and clinical practice through improved communication and collaboration to build capacity.

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  • Back in Life: Moving on after a Spinal Cord Injury - Zack Weinstein (2006)

    Zack Weinstein was canoeing with a group of friends down the Saco River, in Maine. While jumping into a shallow part of the river, Zack broke his neck. At nineteen-years-old he became a C5-C6 Quadriplegic. In service to others facing life-altering injuries, the short film Back in Life was created. By sharing Zack's powerful experiences, the film may provide others with needed strength in an oftentime daunting situation.

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  • Brain Injury Association of America

    The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization. The BIAA’s mission is to be the voice of brain injury. Through advocacy, education and research, they bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them. To find more information on Brain Injury Associations in your area, click on the Find BIA in Your State tab located on the home page.

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  • Caregiver Action Network

    The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for more than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN is a non-profit that serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

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  • Center for Parent Information and Resources

    The Center for Parent Information & Resources offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth. Scroll down the Resources page to view an array of information on K-12 issues for accommodations at school, career and college readiness, the IEP process, how to develop effective practices and enable parent advocacy. This website also identifies Parent Technical Assistance Centers (PTACs) by state.

     

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  • Children's Hospital Association

    The Children’s Hospital Association advances child health through innovation in the quality, cost and delivery of care with our children’s hospitals. CHA represents 220 children’s hospitals, which set the standard for the highest quality pediatric care while training the next generation of pediatricians. With its members, the CHA champions policies that enable children’s hospitals to better serve children; leverages its position as the pediatric leader in data analytics to facilitate national collaborative and research efforts to improve performance; and spreads best practices to benefit the nation’s children. Click on "Directories" on the top toolbar to find a hospital near you.

     

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  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. The Foundation's Paralysis Resource Center provides a robust collection of resources that span key areas of life. Scroll down to obtain a FREE 442 page Paralysis Resource Guide in hard copy or electronic format, Wallet Cards on autonomic dysreflexia, deep vein thrombosis, and sepsis. The Resource Center also provides a Peer Mentor program to support life-long learning. Persons interested in connecting with someone to answer questions directly via phone or email can do so through the "Ask Us Anything" link.

     

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  • Connecticut Youth Leadership Project (CTYLP)

    The Connecticut Youth Leadership Project (CTYLP) is a youth leadership program that empowers youth with disabilities to realize their leadership potential. Through self-awareness and team building activities, young adults explore leadership styles to develop and implement team and personal leadership plans.  Although this program only runs in Connecticut, their goal is to help youth with disabilities meet the challenges of the future, overcome obstacles and become leaders so that they can make a difference in their communities and for others with disabilities.

     

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  • Conquer Paralysis Now

    Conquer Paralysis Now started in 2000 as the Sam Schmidt Paralysis Foundation (SSPF). The founder's original intent was to fund research and provide advocacy and programming for SCI patients and their families. SSPF achieved many successes and the ultimate goal remained elusive: a cure.  In 2012, the foundation began investigating what it would take to turn the dream of finding a cure into a reality. Backed by an international coalition of medical doctors, research scientists, and business leaders, in 2014 Conquer Paralysis Now (CPN) was launched with Sam Schmidt's blessing and continued involvement. CPN funds scientific research, medical treatment, rehabilitation, and technological advances that lead toward a cure for spinal cord injury. Prizes and grants are part of the CPN Challenge to accelerate the development of treatments for spinal cord injury and provide significant improvement in quality of life. Explore the website to identify ways to get involved in this exciting initiative.

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  • Derby City Area Spinal Cord Injury Association

    Derby City Area Spinal Cord Injury Association, the Louisville Kentucky Chapter of the National Spinal Cord Injury Association (NACIA) serves individuals with spinal cord injuries, their families, and health professionals across Kentrucky. The Chapter publishes a monthly newsletter to alert members of upcoming events and volunteer advocacy opportunities.

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  • disABILITY Information and Resources

    This website was created by Jim Lubin, a man with transverse myelitis who is dependant on a ventilator. He uses a sip-and-puff device to enter Morse-Code patterns that translate to keyboard and mouse functions to operate his computer. Aside from the impressive personal story behind it, Lubin's site offers an extensive catalogue of online resources on disability. Here you'll find links to information on spinal cord injury, assistive technology, medical newsgroups, disability organizations etc.

     

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  • Disability Resources, Inc.

    This is an online library put together by a staff of experienced volunteer librarians. This award-winning website features a database of hundreds of links that have been selected and approved by the Disability Resources Monthly staff as some of the most accurate and helpful online resources available.

     

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  • Disability Rights Education and Defense Fund

    The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development. The Special Education Resources section provides an array of consumer information sheets to help parents and students with disabilities.

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  • Disabled In Action

    Based in New York, NY, Disabled in Action is a civil rights organization committed to ending discrimination against people with disabilities — all disabilities.  They fight to eliminate the barriers that prevent people with disabilities from enjoying full equality in American society. Founded in 1970, DIA is a democratic, not-for-profit, tax-exempt, membership organization. DIA consists primarily of and is directed by people with disabilities. They believe in their motto, "Nothing about us without us!"

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  • Disabled World: Spinal Cord Injury

    Disabled World provides and news to the disability community, organizations, and disability rights campaigners, via a disability news service, articles, and videos related to health and disability around the world.  The Spinal Cord Injury section provides basic information and recent medical research on Spinal Cord Injury developments.  

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  • Family Caregiver Alliance

    The Family Caregiver Alliance offers comprehensive online tools for caregivers in all locations and situations, including those caring for a spinal cord injury. Users can listen and view Caregiver Webinars on a variety of subjects. Workshops, classes, and events are also available across California. The Caregiving Fact Sheets offer extensive lists of information and tips on topics, such as self-advocacy and stress management.

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  • Family Resource Center on Disability (FRCD)

    The Family Resource Center on Disabilities (FRCD) was a pioneer as a coalition that covered all disabilities.  FRCD was organized in 1969 by parents, professionals, and volunteers who sought to improve services for all children with disabilities, with efforts to educate and train parents, professionals, and volunteers. Click on Resources at the top toolbar to explore many sources of help for parents of children with disabilities.

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  • Family Voices

    This national network is committed to providing families of children with disabilities with tools to advocate for family-centered health care, which Family Voices describes as "community-based, coordinated...and guided by what is best for each child and family." In this system, the family is emphasized as an equal partner in decision-making for health care. This website offers a wealth of material, including statistics and information on disability-rights legislation, details on family support systems and links to initiatives to improve family-focused health care. You'll also find contact information for the Family Voices organization closest to you.

     

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  • Florida Spinal Cord Injury Injury Resource Center

    The Florida Spinal Cord Injury Resource Center (FSpinal Cord InjuryRC), established in January 1994, serves as the statewide clearinghouse of Spinal Cord Injury resource information for persons who have survived an Spinal Cord Injury, their families and friends, healthcare professionals, support groups, the media, and the general public. Click on Resources on the top toolbar to view A-Z Resources for spinal cord injury.

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  • Greater Boston Chapter of Spinal Cord Injury Association

     The Greater Boston Chapter of NSpinal Cord InjuryA is a 501 (c) (3) organization working to reach, inspire, support and empower individuals and their families affected by spinal cord injury and paralysis throughout Massachusetts.  GBC provides access to resources, vital information, peer visitors, advocacy and educational information. From the moment of injury, GBC provides one-on-one services to the newly injured and those around them as they learn to cope with dramatic change and adjust to post-injury life. Although the GBC is based in Massachusetts, their website is a great resource for everyone.  Their nationally recognized Peer Visitor and Mentor Program provides positive role models to those who are newly injured and their families.

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  • Greater Kansas City Spinal Cord Injury Association

    The Greater Kansas City Spinal Cord Injury Association is a consortium of individuals with spinal cord impairment, health care professionals and service providers.  They aim to be a resource for education, support, services local events. Peer discussion groups meet regularly to share resource information and ideas for adjustment and independence.

     

     

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  • Greater New York Chapter of the National Spinal Cord Injury Association

    The Greater New York Chapter of the Spinal Cord Injury Association (NYCSCIA) is a non-profit 501(c)3 organization, whose mission is to help people rebuild their lives after spinal cord injury by providing resources, services and peer support to survivors and their families.  The Chapter works to empower and promote independence for people with spinal cord injuries as they lead active, meaningful lives in their communities. Weekly support groups run throughout the year. NYCSCIA also partners with the NY City Parks to provide an adaptive kayak program.

     
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  • Independent Living Centers - Virtual Listing - National

    Centers for Independent Living (CIL) are nonresidential disability advocacy agencies that support people with disabilities to live in the least restrictive community of their choice. This civil right, guaranteed through the Olmstead Decision, states that people with disabilities should receive public benefits and services in the most integrated setting appropriate to their needs. CIL agencies provide a variety of community-based services and peer support. Click on a state to locate an independent living center close to your home.

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  • Independent Living Research Utilization

    The ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of TIRR (The Institute for Rehabilitation and Research), a nationally recognized medical rehabilitation research organization for persons with disabilities.

    Since ILRU was established in 1977, it has developed a variety of strategies for collecting, synthesizing, and disseminating information related to the field of independent living. ILRU staff--a majority of whom are people with disabilities--serve independent living centers, statewide independent living councils, state and federal rehabilitation agencies, consumer organizations, educational institutions, medical facilities, and other organizations involved in the field, both nationally and internationally. Extensive consumer education sheets are available in the Resources section of this website.

     
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  • International Center for Disability Resource on the Internet

    Founded in 1998, The International Center for Disability Resources on the Internet (ICDRI) is a non-profit center based in the United States and designated as a 501 (c)(3) entity. The ICDRI’s overarching vision is the equalization of opportunities for persons with disabilities. As an internationally recognized public policy center organized by and for people with disabilities, they seek to increase opportunities for people with disabilities by identifying barriers to participation in society, and promoting best practices and universal design for the global community. ICDRI services provide white papers, keynotes and training for conferences, government agencies, universities and private sector organizations. They are also frequently called upon to provide disability rights education and customized programs, and actively participant in public policy strategic planning and implementation for governments in the US and abroad. 

     
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  • Knoxville disABILITY Resource Center (DRC)

    The Knoxville disABILITY Resource Center (DRC) is a not-for-profit organization run for and BY people with disabilities.  We are a community-based non-residential program of services designed to assist people with disabilities to gain independence and to assist the community in eliminating barriers to independence.  The DRC is also a Center for Independent Living (CIL) and hosts a number of events each year to support active community participation. .

     
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  • LIFE Center - Rehabilitation Institute of Chicago

    The LIFE (learning, innovation, family, empowerment) Center at the Rehabilitation Institute of Chicago is a premier family and professional resource center designed to support the life-long needs of people with disabilities, their families, and the community. The LIFE Center's extensive consumer education and community resources, spans over 7,000 peer reviewed sources of help centered on key life needs for familes and individuals living with a spinal cord injury. The online collection includes local, regional, national, and international agencies and extensive consumer education sheets. Topics include medical information and care, caregiving and equipment, housing and transportation, education and employment, support and wellness, recreation and leisure, finance and law, and inspiration and hope. Links to support groups, government disability programs, home care, medical equipment, and other assistive techology providers are also provided. Click on the Patient and Family Education pages icon to explore consumer education sheets specific to spinal cord injury.

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  • Life Rolls On Foundation

    Jessie Billauer started the Life Rolls On Foundation in 1999 after he became quadriplegic in a surfing accident.  It's mission is to be a resource and advocate for young people whose lives have been affected by spinal cord injury. The foundation focuses on promoting an active lifestyle despite mobile impairment as shown in their flagship program, "They Will Surf Again." This is a no-cost adaptive surfing program for individuals with a spinal-cord injury. Explore the event calendar to learn about upcoming activities and volunteer opportunities.

     

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  • Lotsa Helping Hands

    Now when someone asks, "What can I do?" there's an easily accessible answer. Through this website, you can develop a community of people to help care for a loved one. Users create a personal website and invite others to join and stay updated on the needs of the individual requires help. Within the site is a calendar that keeps track of tasks that need to be done. Each member is able to sign up for different jobs, so caregiving responsibilities are shared and addressed within the group. Scroll through How it Works to better understand the details of this easy to use application.

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  • Michael Brent Resource Center at Frazier Rehabilitation Institute

    The Michael Brent Resource Center at Frazier Rehabilitation Institute was established in 2010 to address the needs of individuals and their families from the onset of spinal cord impairment and continuing throughout the life cycle.  Its mission is to provide a central location where educational books, DVD’s, CD’s, pamphlets and other educational materials are housed for inpatient, outpatients, families, staff, students and others to come and learn about spinal cord impairment.  The Center also provides a location for inpatients, outpatients and those in the community to meet and network with the agencies that serve them. 

     

     
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  • Michigan Spinal Cord Injury Association

    The Michigan Spinal Cord Injury Association, is a 501(c)(3) organization with the purpose of enhancing and empowering the lives of those with spinal cord injury and disease through advocacy, education and research.  This a statewide resource center dedicated to providing members with a portal to available community resources, spinal cord injury support groups, and events.

     

     
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  • Morton Cure Paralysis Fund

    In 1995, Peter Morton broke his neck in a bicycle accident that left him paralyzed from the neck down and unable to breathe without a ventilator.  Devastated by the accident, friends turned their hurt into hope. They launched a small-town golf tournament to raise funds for spinal cord injury research—and the Morton Cure Paralysis Fund was born.  Since then, MCPF has raised over $2.0 million for cutting-edge research.

     

     

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  • Mothers Against Drunk DrivingĀ® (MADD)

    Founded by a mother whose daughter was killed by a drunk driver, Mothers Against Drunk Driving® (MADD) is the nation’s largest nonprofit working to protect families from drunk driving and underage drinking. One of the largest victim services organizations in the U.S., MADD also supports drunk and drugged driving victims and survivors serving one person every 9 minutes at no charge. So long as drunk driving impacts our families and friends, MADD's goal is to increase the number of victims and survivors served, and to continually improve the quality of those services. Click on Victim Services to learn more about finding support and understanding victims' rights.

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  • National Caregivers Library

    FamilyCare America, Inc. created this as a free online source of articles, forms, checklists and links directed toward helping educate and support caregivers in all situations. The Checklists and Forms section provides particularly useful aids in making informed decisions about housing, money, and health issues that apply to all caregivers.

     

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  • National Child Traumatic Stress Network

    The National Child Traumatic Stress Network was established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. The Resources section provides materials on child traumatic stress arranged by audiences, topics, and online research. 

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  • National Clearinghouse for Long-Term Care Information

    Developed by the U.S. Department of Health and Human Services, this website offers extensive information and resources on long-term-care options. There is basic information about services, cost and planning as well as advice on securing long-term care for your loved one. These pages are also full of useful articles and tools, such as the Long-Term Care Savings Calculator. Scroll down to Find Services for additional resources that can be search nationally by state. 

     

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  • National Collaborative on Workforce and Disability for Youth

    The National Collaborative on Workforce and Disability for Youth assists state and local workforce development systems to better serve all youth, including youth with disabilities. This resource center partners with expertise in education, youth development, disability, employment, workforce development and family issues to provide extensive resources that can assist families in developing youth leadership and workforce skills, self-advocacy, and other key skills that support successfull community integration and independence. Click on Publications by Topic to explore briefs, fact sheets, guides, and white papers.

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  • National Consumer Voice for Quality Long-Term Care

    This group, formed as an outgrowth of work done by advocates working for Ralph Nader and the National Gray Panthers, provides information on federal and state regulatory and legislative policy geared toward improving long-term-care facilities. The Information Library offers resources on common issues for families and caregivers regarding long-term care including specialized information for consumers, family members, and advocates to support decisions in selecting a nursing home, getting quality care, understanding residents' rights, and tips for family involvement.

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  • National Council on Disability

    Appointed by the President of the United States, this council exists to advocate for disability rights and legislation. This website keeps you informed of programs designed to foster a more accessible society. Here you'll find reports and newsletters about ongoing research, new legislative initiatives as well as meetings and events dedicated to creating national policies on disability. 

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  • National Council on Independent Living

    As a membership organization, the NCIL advances independent living and the rights of people with disabilities through consumer-driven advocacy.  The NCIL envisions a world in which people with disabilities are valued equally and participate fully.  It was founded to embody the values of disability culture and Independent Living philosophy, which creates a new social paradigm and emphasizes that people with disabilities are the best experts on their own needs, that they have crucial and valuable perspective to contribute to society, and are deserving of equal opportunity to decide how to live, work, and take part in their communities. 

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  • National Disability Rights Network

    This is the website of the nonprofit organization whose goal is to give people with disabilities an equal opportunity to succeed in society. The site offers legal information and tips on how to be an effective advocate by providing fact sheets and court cases as examples as well as a list of common acronyms and terms to help clarify the legal jargon and abbreviations. The Network is the largest provider of legally based advocacy services to peopel with disability in the United States. 

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  • National Rehabilitation Information Center

    The National Rehabilitation Information Center (NARIC) is the library of of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). This extensive collection includes all articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILLRR. Disability Resources are additionally arranged by subject to help patrons find agencies, organizations, and online resources for treatment, benefits, and services. 

     

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  • National Resource Directory

    The National Resource Directory aims to connect Wounded Warriors, Service Members, Veterans, their families and caregivers with those who support them. It provides access to services and resources at the national, state and local levels to support recovery, rehabilitation and community reintegration. Visitors can find information on a variety of topics including benefits & compensation, education & training, employment, family & caregiver support, health, homeless assistance, housing, transportation & travel, volunteer opportunities and other services & resources. For help on how to find resources on the site, visit the How to Use this Site section of the NRD.

     

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  • National Spinal Cord Injury Association of Southeastern Wisconsin Chapter

    The mission of the National Spinal Cord Injury Association - Southeastern Wisconsin Chapter is to assist people who have some degree of paralysis through injury or disease with a goal of returning them to a life of dignity, self-confidence and independence in a community that is all inclusive.

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  • Neil Sachse Foundation

    The Neil Sachse Foundation was founded in 1994 by Neil Sachse.  It aims to find a cure for spinal cord injury.  They have an excellent track record in raising funds and have funded a successful research project at Flinders University (Australia).  

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  • North Carolina Spinal Cord Injury Association

    The North Carolina Spinal Cord Injury Association aims to enable people with spinal cord injury and disease to achieve their highest level of independence, health, and personal fulfillment by providing resources, services, and peer support. The Association's event calendar provides additional opportunities for active community involvement.

     

     

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  • Office of Special Education and Rehabilitation Services (OSERS)

    OSERS is part of the U.S. Department of Education committed to improving opportunities in education and employment for people with disabilities by supporting programs that facilitate equal access to disabled individuals. Here you'll find research, policies and programs dedicated to this initiative. The website offers detailed information on understanding and implementing important legislation as well as publications and tools for making education and employment more accessible. Within the index in the center of the home page, select Reports & Resources. This page offers publications and fact sheets about employment and educational opportunities, and disability rights.

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  • PACER Center: Champions for Children with Disabilities

    PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. Located in Minneapolis, it serves families across the nation, as well as those in Minnesota. Parents can find publications, workshops, and other resources to help make decisions about education, vocational training, employment, and other services for their children with disabilities. PACER's YouTube Channel offers many helpful vidos on a variety of subjects, including assistive technology, speical education, and bullying prevention.

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  • PACER's National Parent Center on Transition and Employment

    PACER's National Parent Center on Transition and Employment provides quality information and resources for families of young adults with disabilities on transition planning, civil rights, work-based learning, career accommodations, higher education, financial aid, and much more. It serves as a comprehensive source of information designed to support families' varied needs.

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  • Paralyzed Veterans of America

    The PVA's mission is to improve the quality of life of its members by advocating for improved health care, research, education and awareness of disability rights and programs for veterans. The website focuses primarily on injured veterans; however, the information on disability rights and sports and recreation applies to veterans and non-veterans alike.

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  • Rehabilitation International (RI)

    Rehabilitation International (RI) is a network of organizations and individuals whose aim is to implement and improve disability rights worldwide. Here you can find out what initiatives are being taken for disability rights on a global level. The About RI Global page highlights current projects and past accomplishments.

     

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  • Rick Hansen Foundation

    Here you can read the inspirational story of Canadian Rick Hansen, who has become a celebrated wheelchair athlete and developed a foundation dedicated to raising awareness and creating a more accessible environment for people with spinal cord injury. The Rick Hansen School Program teaches students about access, inclusion, an disability. In addition, the Rick Hansen Foundation helps improve accessibility and quality of life through a variety of community programs. Quality of Life grants are awarded to individuals and organizations each year. You'll also find links to other helpful websites and information on programs and events sponsored by the Rick Hansen Foundation.

     

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  • ServiceSource

    ServiceSource is a not-for-profit corporation with regional offices and programs located in nine states and the District of Columbia. ServiceSource's regional offices share a mission to provide exceptional services to individuals with disabilities through innovative and valued employment, training, habilitation, housing and support services. Nationwide, ServiceSource serves more than 13,000 people with disabilities annually of whom nearly 2,000 individuals are directly employed on both government and commercial affirmative employment contracts. Others receive assistance in rehabilitation programs, benefits planning, job placement, evaluation and counseling and housing. Whether you are an individual with a disability, a government contracting officer or a local business owner, ServiceSource and their local regional offices are committed to meeting or exceeding needs and expectations. Find a location near you to learn more about our innovative programs and services

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  • South Carolina Spinal Cord Injury Association

    The South Carolina Spinal Cord Injury Association helps South Carolinians with spinal cord injury live healthy, independent lives through providing specialized resources, advocacy, and peer support. While based in South Carolina, the website is a valuable resource for people with Spinal Cord Injury and their families. The Living Life to the Fullest  section provides information on adapting to life after a Spinal Cord Injury and includes a resource library and links to various sources of help.

     

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  • Spinal Cord Injury Association of Illinois

    Spinal Cord Injury Association of Illinois is a 501(c)3 non-profit organization providing information and support resources for people paralyzed by trauma and medical conditions, family members, and health care and related professionals that serve the Spinal Cord Injury community. This association's events page identifies ways to participate in outings and fundraising events to support services for spinal cord injury.

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  • Spinal Cord Injury Association of Kentucky

    The Spinal Cord Injury Association of Kentucky networks with state, federal, public, and private agencies to raise awareness of people with spinal cord injuries and advocate for their needs.  Their mission of  is to serve those affected by spinal cord injury through increased awareness, greater resource availability and support services, enhanced educational and preventative interventions, as well as increased athletic and recreational opportunities.

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  • Spinal Cord Injury Association of Washington State

    Spinal Cord Injury Association of Washington is an organization for people with spinal cord injuries and for all committed to helping them.  The Association supports all interests, regardless of the cause of the injury or the severity of the impairment. They aim to be the first and main resource for all people affected by spinal cord injury, as well as for the family and friends of the injured person. Programs include resource referral, peer support, and a creative Here and Now program that uses social media to foster social support and fellowship.

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  • Spinal Cord Injury Guide

    The Boston Medical Center created The Spinal Cord Injury Guide to give the Spinal Cord Injury community a place to go to get trusted, peer-reviewed information, and to rate the best. The Spinal Cord Injury Guide brings together websites on Spinal Cord Injury chosen by people with spinal cord injuries for people with spinal cord injuries.

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  • Spinal Cord Injury Model System Information Network - University of Alabama

    The University of Alabama at Birmingham Spinal Cord Injury Model System maintains an extensive information network of spinal cord specific resources. The fact sheets offer quick references to basic spinal cord injury health information. Daily Living topics provide consumer education on Adjustment, Assistive Technology, Caregiving, Family & Relationships, Health Management, Home Modification, Leisure, Mobility, Nutrition, Sexuality, School, and Work. Additional Rehab Tip Sheets provide information on common activities, such as wheelchair positioning, assisted pressure relief, lift transfers, assisted transfers and bed positioning. SCI Health Education Videos are also available for a vairey of secondary conditions.

     

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  • Spinal Cord Injury Network - Metropolitan Washington, D.C. Chapter

    Spinal Cord Injury Network is the Metropolitan Washington, D.C. area chapter of the National Spinal Cord Injury Association.  The Spinal Cord Injury Network provides support and services to people with spinal cord injuries and other mobility impairing conditions, and to their families and friends. Services include Information & Referral, Personal Assistance Service Registry, Peer Counseling, Support Groups, Wheelchair Basketball Team, Art Gallery, and other resource connections.

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  • Spinal Cord Injury Nurse Advice Line

    The Spinal Cord Injury Nurse Advice Line is a phone service provided by the outpatient clinic at Craig Hospital, a Model Systems Hospital for people with spinal cord injury. This service provides a dedicated nurse to answer non-emergent calls Monday-Friday between the hours of 9 a.m. – 4 p.m. Nurses at Craig Hospital have the experience to help identify potential complications before they become serious health issues. Two common health concerns are neurogenic bowel or bladder problems and skin issues, both of which can cause major health problems for people living with Spinal Cord Injury if not caught early. In addition to answering health-related questions, callers can obtain educational resources unique for healthy living with this injury.

    If you have questions regarding the three following areas, call 800-247-0257 or 303-789-8508 Monday-Friday from 9am to 4pm (MST).

    1. A non-emergent medical question arises that does not warrant a trip to the doctor’s office, yet needs answered.

    2. Experiencing changes in care and wondering whether it is “normal?”

    3. A new caregiver arrives and needs education materials to help in the transition.

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  • Spinal Cord Injury Support Group - Miami, Florida

    The Spinal Cord Injury Support Group is a not for profit organization that promotes camaraderie through friendship, education, advocacy and recreation to enhance the quality of life for those affected by spinal cord injuries and disabilities in Miami, Florida.

     
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  • "Spinal Network: The Total Resource Book" (Leonard Media Group, 2009)

    "Spinal Network" is the essential resource for making important life choices after a spinal cord injury, multiple sclerosis, post-polio syndrome, amputation, ALS and other conditions. This information-packed book explores options in health, technology, attendant services, employment, travel, sports, relationships, sexuality and parenting. It explains--in clear language--the intricacies of legal rights, government benefits and cure research. 

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  • Strength For Caring

    The Johnson & Johnson Company's Caregiver Initiative seeks to offer support and information for caregivers in all situations. Calling itself "a place for caregivers," this website focuses on how to take care of yourself as a caregiver, while also giving tips on how to care for others. Users are able to connect with others through the discussion boards and videos of caregivers telling their personal stories. To expand their committment to caregivers, Johnson & Johnson is collaborating with AARP to expand and offer a wide range of valuable, expert information with ability to connect with other caregivers.

     

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  • Support for Families of Children with Disabilities (SFCD)

    Support for Families of Children with Disabilities (SFCD) is a parent-run San Francisco-based nonprofit organization founded in 1982. They support families of children with any kind of disability or special health care need as they face challenges.  The purpose of Support for Families is to ensure that families of children with any kind of disability or special health care need have the knowledge and support to make informed choices that enhance their children's development and well being. Through fostering partnership among families, professionals and the community our children can flourish. Explore SFCD Services to identify support options.

     

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  • TASH

    This nonprofit organization advocates for equality for individuals with disabilities, and promotes social justice to create a community that is not segregated according to ability. The website offers information and resources, as well as updates on ongoing advocacy work, membership and conferences.

     

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  • Testaverde Fund For Spinal Cord Injury

    The Testaverde Fund for Spinal Cord Injury was  formed in 2003 as a means of raising funds for spinal cord injury research and providing community outreach and educational programs. The Testaverde Fund supports research being done by The Spinal Cord Injury Project at The State University of  New Jersey at Rutgers, under the leadership of Dr. Wise Young. In their labs, state-of-the art molecular, genetic and cellular research is conducted to provide hope for spinal cord injury survivors.

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  • ThinkFirst Foundation

    The ThinkFirst Foundation, provides injury prevention programs nation-wide to youth and teens. Formally known as the National Head and Spinal Cord Injury Prevention Program, ThinkFirst was established in 1986 to prevent traumatic through education, research and policy.  

    The American Association of Neurological Surgeons (AANS) and the Congress of Neurological Surgeons (CNS) were also key in the creation of program due to their concern for their patients with brain and spinal cord injuries. These groups shared the belief that prevention is the only cure, and that neurosurgeons had the duty to try to prevent these traumatic injuries.  The program has many nation-wide local chapters sponsored by neurosurgeons committed to public education and injury prevention. The replicable program materials consist of a teen-oriented program, reinforcement materials, and a program to influence public attitudes and legislative policy. 

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  • ThreeSixtyFive Foundation

    It is the mission of the ThreeSixtyFive Foundation to provide, through financial and non-financial means, assistance to physically challenged individuals in returning to an active lifestyle during the first year of their recovery. Like most charity organizations, fundraising efforts are the primary source of income for this foundation. Hosting few events each year, along with individual donations allows ThreeSixtyFive to identify and support new recipients. Fundraising support is provided to a resident living with a spinal cord injury in the greater Indianapolis area. The charity partners with an individual during the first three hundred and sixty-five days of recovery. Offering financial help, but more importantly creating the window whereby the  individual can draw uhis or her own motivation for facing the challenges ahead and moving forward.

     
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  • Through the Looking Glass

    Through the Looking Glass (TLG) is a nationally recognized legal center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. Some issues include: parents with/DA and families in custody cases and parents with/DA in child welfare & civil rights implications. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Our mission is "To create, demonstrate and encourage non-pathological and empowering resources and model early intervention services for families with disability issues in parent or child which integrate expertise derived from personal disability experience and disability culture."

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  • Tips for Teens: Use Your IEP Meetings to Learn How to Advocate for Yourself

    This consumer education sheet provided by the PACER Center provides useful tips for teens in developing self-advocacy skills. It provides information on how to begin to express needs and wants by participating in their Individualized Education Program (IEP) meetings. At these meetings, teens can learn ways to talk about their disability to others, set goals, build teamwork skills, ask for accommodations and practice other self-advocacy skills. This single copy form from the PACER publication catalog is for your personal, noncommercial use only. For permission to reprint multiple copies or to order presentation-ready copies for distribution, complete the PACER Reprint Form at www.pacer.org/forms/request.asp or PACER Publication Order Form at ww.pacer.org/publications/OrderForm.pdf

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  • Unite 2 Fight Paralysis

    Unite to Fight Paralysis (U2FP) was established to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education and support for research. U2PF's advocacy is dedicated to spreading awareness on spinal cord injuries.  

     

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  • United Nations Enable

    This organization focuses on advocating for the "rights and dignity of persons with disabilities" on an international level. Here you'll find updates on the latest international activity and statistics regarding disability. This is an excellent source for fact sheets on key issues in the worldwide disability community and resoures on the UN Intergovernmental Process and UN System.

     

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  • United Spinal Association

    Each year, United Spinal helps thousands of individuals living with spinal cord injuries or disorders overcome the daily challenges of living with a disability. With over 60 local chapters and suport groups nationwide, United Spinal Association connects people  with SCI/D to their peers and fosters an expansive grassroots network that enriches lives.  Free webinars are provided on a regular basis to help individuals and their families stay informed and connected to helpful resource information. The resource library offers useful links to services, articles and studies. Click on Chapters at the top toolbar to locate your state association.

     

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  • United Spinal Association of Connecticut Chapter

    The Mission of the Connecticut Chapter of the United Spinal Association is to support those with spinal related injuries or diseases and their families by being an advocate for their rights while serving as a resource to its members and the general public. The Association provides individual peer support and information to increase awareness of disabilities and prevention, and fundraising events to promote research and education. Quality of Life grants have been given to individuals for transportation needs, education expenses, additional wheelchair cushions, home and vehicle modification and adaptive equipment. The Chapter also provides the national Powerful Tools for Caregiver program. Special events and programs are also designed to support empowerment of its members.

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  • United Spinal Association of Virginia

    The United Spinal Association of Virginia's mission is to enable people with spinal cord injuries and disease to achieve their highest level of health and independence. Services and programs aim to  improve quality of life by providing information, referral services, and peer-support. Explore the pull down options under Living With SCI on the top toolbar to explore resources and services to support individuals with spinal cord injuries or disease, their families, health professionals, policy makers and others interested in spinal cord injury.

     
     
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  • United States Access Board

    The Access Board is an independent federal agency devoted to accessibility for people with disabilities. Created in 1973 to ensure access to federally funded facilities, the Board is a leading source of information on accessible design. The Board develops and maintains design criteria for buildings, transit vehicles, telecommunications equipment, electronic and information technology, recreation facilities, and healthcare diagnostic equipment. It also provides technical assistance and training on those requirements and on accessible design and continues to enforce accessibility standards for federally-funded facilities.

     

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  • We Connect Now

    We Connect Now is dedicated to uniting people interested in rights and issues affecting people with disabilities, with particular emphasis on college students and access to higher education and employment issues.  We Connect Now aims to help college students with disabilities to succeed in their studies by getting the information and support they need, both through resources, links, blogs latest news, studying existing laws and regulation and through personal contacts. Through this website people can also share and read other people’s stories as a source of support and comfort.

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  • Well Spouse Association

    This organization specifically serves the needs of spousal caregivers. Here you'll find support groups, encouraging articles, mentoring from veteran caregivers and most of all, the message that you are not alone. Well Spouse Association unites a community of caregivers on and offline with forums and newsletters as well as meetings, conferences and respite weekends. If you are a caregiver for your spouse, this is an excellent resource.

     

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  • World Institute on Disability

    The mission of the World Institute on Disability (WID) in communities and nations worldwide is to eliminate barriers to full social integration and increase employment, economic security and health care for persons with disabilities. WID creates innovative programs and tools; conducts research, public education, training and advocacy campaigns; and provides technical assistance.

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  • Wounded Warrior Project

    The Wounded Warrior Project (WWP) began when several veterans and friends, moved by stories of the first wounded service members returning home from Afghanistan and Iraq, took action to help others in need. What started as a program to provide comfort items to wounded service members has grown into a complete rehabilitative effort to assist warriors as they recover and transition back to civilian life. If you are a veteran injured after 9/11/01, select Programs.  Here you can learn about WWPO’s programs, which are uniquely structured and designed to nurture the mind and body, and encourage economic empowerment and engagement. Under each of these program areas, Wounded Warrior Project (WWP) offers a variety of programs to meet a range of needs.

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  • Yellow Pages for Kids with Disabilities

    The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists. Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state. A specific listing of Nation-wide Parent Training and Information Centers and Community Parent Resource Centers is also provided on this website.

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  • "Yes, You Can!: Guide to Self-Care for Persons with Spinal Cord Injury, 4th ed.," Ed. Burns, Stephen P., M.D and Margaret C., M.D. Hammond. (Paralyzed Veterans of America, 2009)

    Published by the Paralyzed Veterans of America, 'Yes, You Can!," is designed for both the newly injured patient, and their family members. Written by experts in the field of spinal-cord injury, it is an extremely popular guide to subjects such as: self-care, sexuality, pain management, substance abuse, exercise, alternative medicine, adaptive equipment, and staying healthy.

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