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These websites list the most valuable supportive services for family members who find themselves in the role of caregiver. The sites offer tools for coping, communicating with other caregivers, staying organized and seeking respite.

  • Access Living

    Access Living is a nonprofit organization in Chicago, IL whose aim is to empower the disabled community. They offer programs dedicated to helping people with disabilities live as independently as possible and also advocate for equal rights and fair housing and work to educate society on disability issues. Their independent living programs provide counseling, financial education, and help with acquiring a personal assistant. Access Living also offers community development services specifically for youth and women.

     

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  • Adapting a Home for Wheelchair Accessibility

    There are several ways to create a more accessible space for a person who uses a wheelchair. Some options include: altering an existing floor plan, building an addition, coverting existing rooms, or buying a new home. The following guidelines are provided by the Rehabilitation Institute of Chicago to assist in planning for wheelchair accessible housing. Dimensions and tips are provided for entrances and exits, doorways, door handles, thresholds, hallways, floors, outlets and switches, telephones, furniture, bathroom toilet, sink, bathtub, roll-in shower, kitchen turning radius, countertops, refrigerator, sink, sotrage, stove, microwave, washer and dryer, bedroom bed, closet, and dresser. Figures are based upon ADA Guidelines for Buildings and Facilities.

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  • After the Injury

    This website was developed by an interdisciplinary team of researchers and practitioners with expertise in pediatric injury, child health care, and traumatic stress at the Center for Injury Research and Prevention at the Children's Hospital of Philadelphia. Through cutting-edge research on the effects of injury on children and their parents, After The Injury was created for families looking to learn more on how to help their injured child respond in a healthy way.

     

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  • Air Travel Tips for People with Disabilities

    Planning ahead and understanding how airlines can support your travel needs can pave the way for successful air travel. This consumer education presentation outlines key points for creating a positive air travel experience with tips on understanding your rights, things to consider when making a reservation, the check in process, transport to and from the gate, getting through security, getting on the plane, stowing your wheelchair, equipment, and devices, getting off the plane and to baggage, and other personal considerations.

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  • American Academy of Physical Medicine and Rehabilitation

    AAPRM&R is the primary medical society for the specialty of Physical Medicine and Rehabilitation (rehabilitation physicians). It provides information on medical issues and best practices and continuing education and training. Here you can find a basic definition of what a physiatrist does as well as where to find one in your area. Click on "About Physiatry" to Find a PM&R Physician  in your area and their contact information.

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  • American Medical Association Doctor Finder

    The American Medical Association has compiled an online index of virtually every licensed physician in the U.S. Using this tool, you can search for specialty doctors in your area. The website lists first the doctors who are AMA members, though non-members can also be found. Each listing includes information on the location of the doctor's office and, in some cases, accepted insurance providers, educational history and specialty certifications.

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  • American Occupational Therapy Association's Web Site

    The American Occupational Therapy Association advances the quality, availability, use, and support of occupational therapy through standard-setting, advocacy, education, and research on behalf of its members and the public. AOTA’s major programs and activities are directed toward assuring the quality of occupational therapy services; improving consumer access to health care services, and promoting the professional development of members. The Association's website section for Disability and Rehabilitation provides a variety of resource tips to better understand the role OT's play in Spinal Cord Injury rehabilitation. 

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  • American Ramp Systems (Amramp)

    A national manufacturer and supplier of wheelchair ramps and showers, Amramp offers home modification services. They provide a free property evaluation and consultation on adding a ramp to your home before building, as well as the option to rent ramps for special events. The website gives detailed advice on how to determine the best type of ramp for your lifestyle, a listing of various funding sources, and a blog that often sites ideas on how to find additional funding for home modifications.

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  • Americans with Disabilities Act (ADA): Summary of Key Points

    This consumer education sheet summarizes key points of the Americans with Disabilities Act (ADA). This legislation made it a violation of federal law to discriminate against people with disabilities, just as civil rights laws protect people against discrimination on the basis of race, gender, national origin, and religion. The ADA is divided into four main sections, called "Titles": 1. Employment, 2. State & Local Government, Transportation, and Public Service, 3. Public Accommodations, and 4. Telecommunications.  Knowing your rights in each of these four areas can assist you in rentering the job market and pursing an active lifestyle. Additional information on the ADA can be located at www.dol.gov.

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  • Apparelyzed - Spinal Cord Injury Support

    Apparelyzed is a free spinal cord injury peer support website run by people with spial cord injuries. It includes information on everyday challenges experienced by those living with paralysis resulting in tetraplegia (quadriplegia), paraplegia, and cauda equina syndrome. This site provides a variety of consumer information sheets on health, social, and everyday living issues. The discussion forums provide an exchange of ideas for those living with a spinal cord injury, family members, and friends.

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  • Autonomic Dysreflexia Wallet Card - Christopher and Dana Reeve Foundation

    It is important to become knowledgeable about Autonomic Dysreflexia (AD) if you have a spinal cord injury at the T6 level or above. AD can cause a medical emergency and even be life threatening. This emergency wallet card provides crucial information regarding Autonomic Dysreflexia for spinal cord injury survivors, their family, and emergency response professionals. There are two versions; an adult card in dark blue and a pediatric card in light blue -- please note the difference in the medication dosages.

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  • Back in Life: Moving on after a Spinal Cord Injury - Zack Weinstein (2006)

    Zack Weinstein was canoeing with a group of friends down the Saco River, in Maine. While jumping into a shallow part of the river, Zack broke his neck. At nineteen-years-old he became a C5-C6 Quadriplegic. In service to others facing life-altering injuries, the short film Back in Life was created. By sharing Zack's powerful experiences, the film may provide others with needed strength in an oftentime daunting situation.

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  • BACKBONES

    BACKBONES exists to provide free support for people with spinal cord injury and their families. Through our network we facilitate telephone, in-person, or web-based connections and encourage growth by the sharing of experiences and ideas. As a host to events, BACKBONES creates an inviting atmosphere where people can ask questions, learn from each other informally, and make lasting friendships. Select "Connect" on the main toolbar to join the network or "Get Involved" to volunteer.

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  • Being Your Own Advocate: Living with a Disability or Chronic Illness

    Learning to advocate for yourself or loved one is an important step in coping with a disability or chronic illness. This consumer education sheet from the Rehabilitation Institute of Chicago provides some basic tips to help you and others gain a sense of empowerment.

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  • Brain Injury Association of America

    The Brain Injury Association of America (BIAA) is the country’s oldest and largest nationwide brain injury advocacy organization. The BIAA’s mission is to be the voice of brain injury. Through advocacy, education and research, they bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them. To find more information on Brain Injury Associations in your area, click on the Find BIA in Your State tab located on the home page.

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  • BrainandSpinalCord.org

    Sponsored by Newsome Melton, LLP, BrainandSpinalCord.org is a resource to help brain and/or spinal cord injury survivors and their families learn more about medical conditions, rehabilitation, and legal options that can support long-term financial stability.

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  • CareCure Community

    Choose from over 70 forums in which hundreds of users are able to interact, share pictures, and post comments. Questions can be posed to an experienced spinal cord injury  nurse who will post back and forth with you helping you find answers and define questions you can ask your doctor. You can also follow what's new in research as well as read articles by research professor and founding director of the W.M. Keck Center for Collaborative Neuroscience Dr. Wise Young who answers questions and posts on topics surrounding disability. The Spinal Cord Injury Community Forums can be a place to find answers to questions, inspirational stories, and empathy. Follow the threads to view questions and answers from others in your situation, post your own concerns, and receive feedback.

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  • Caregiver Action Network

    The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for more than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN is a non-profit that serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

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  • CarePages

    CarePages provides a secure and free personal website or blog that helps connect friends and family during a health challenge. Through Carepages, you can provide up-to-date information on your loved one's condition and let family and friends know how things are going without dozens of repetitive phone calls or email updates. CarePages also provides a variety of forum threads covering things like caregiving and emotional health.  All are available online for you to read and contribute to, or start on your own, at your convenience. Click on the Learn tab on the top toolbar to view Stories of Inspiration, Tips, Resources, and Articles on living a healthy, compassionate life, managing money, comforting friends, and helping yourself eat and sleep well while under stress.

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  • Caring Road Support Network

    Identifying itself as "the online community of family caregivers," this website offers free resources designed to help you as a caregiver both in meeting challenges and in caring for yourself. Resources include a support network to connect you to caregivers in similar situations, as well as articles with medical, legal, financial and personal care tips and suggestions. Click on Caregiving Tips and select Getting Organized for tools on setting up a basic caregiving plan, checklists, information sheets, and even a suggested daily schedule.

     

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  • CaringBridge

    No more repeating your story over and over. CaringBridge helps you save time with one update. You can create a personal website for yourself or a loved one during a critical illness or catastrophic event and have time to focus on what matters. This personal, protected website provides an everyday health journal that uses features such as a patient journal and photo gallery to update friends and family who can then show their support by posting messages in your online guestbook.

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  • Center for Parent Information and Resources

    The Center for Parent Information & Resources offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth. Scroll down the Resources page to view an array of information on K-12 issues for accommodations at school, career and college readiness, the IEP process, how to develop effective practices and enable parent advocacy. This website also identifies Parent Technical Assistance Centers (PTACs) by state.

     

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  • Center for Universal Design

    Part of the College of Design at North Carolina State University, CUD strives to provide research, education and services related to accessible design across all environments including housing, buildings, and outdoors. Here you'll find information on the most useful design solutions, as well as technical assistance in constructing accessibility improvements to your home. You'll also learn about universal design, the core principle of which lies in constructing environments in a way that is accessible to all people without standing out as altered or customized for people with disabilities. From the menu on the left, select Publications. This gives you a list of helpful fact sheets about universal design, construction, legal accessibility standards, and housing.

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  • Champ Camp

    Champ Camp is a camp for children and adolescents, ages six and up, who have tracheostomies and those that require respiratory assistance, including the use of ventilators. Many campers also have unique physical challenges, including quadriplegia. In the main toolbar, select Camper to view Camper Criteria to see if your child meets the necessary camper qualifications.  

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  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. The Foundation's Paralysis Resource Center provides a robust collection of resources that span key areas of life. Scroll down to obtain a FREE 442 page Paralysis Resource Guide in hard copy or electronic format, Wallet Cards on autonomic dysreflexia, deep vein thrombosis, and sepsis. The Resource Center also provides a Peer Mentor program to support life-long learning. Persons interested in connecting with someone to answer questions directly via phone or email can do so through the "Ask Us Anything" link.

     

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  • Create Your Own Personal Health Record

    An important step in advocating for your loved one includes organizing information that supports daily care. A personal health record is a tool that enables consumers to manage health information so they can communicate more effectively and easily with health care providers. This consumer education sheet provides a basic template to help you begin the process of creating a personal health record. Additional links to other commercially available products to help track information are provided as well.

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  • Depression and Spinal Cord Injury

    Depression can affect anyone. In fact, approximately 1 in 20 Americans (over 11 million people) get depressed every year. Depression is not an inevitable part of living with SCI though many in the SCI population - about one in five people - may experience this. This consumer education sheet describes depression, its causes, symptoms, and treatment. A depression self-test is also included to help one understand the extent of their depression and potential concern to get help.  This education sheet can also be downloaded in Spanish.

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  • Derby City Area Spinal Cord Injury Association

    Derby City Area Spinal Cord Injury Association, the Louisville Kentucky Chapter of the National Spinal Cord Injury Association (NACIA) serves individuals with spinal cord injuries, their families, and health professionals across Kentrucky. The Chapter publishes a monthly newsletter to alert members of upcoming events and volunteer advocacy opportunities.

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  • "Disability & the Art of Kissing: Questions and Answers on the True Nature of Intimacy" (Life on Wheels Press, 2006)

    Disability awareness author and speaker Gary Karp explores the subject of sexuality in a way that is touches upon many common concerns of people living with spinal cord injury. Disability & the Art of Kissing is a collection of conscise responses to essential questions about intimacy and sexuality in the context of disability touching upon the universal nature of love.

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  • "Disability Etiquette" (United Spinal Association)

    This pamphlet, designed by the United Spinal Association, is a great resource for businesses, schools, organizations, staff training and disability awareness programs. You don’t have to feel awkward when interacting with, or when you meet a person who has a disability. This booklet provides tips for you to follow that will help create positive interactions and raise everyone’s comfort levels.  

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  • disABILITY Information and Resources

    This website was created by Jim Lubin, a man with transverse myelitis who is dependant on a ventilator. He uses a sip-and-puff device to enter Morse-Code patterns that translate to keyboard and mouse functions to operate his computer. Aside from the impressive personal story behind it, Lubin's site offers an extensive catalogue of online resources on disability. Here you'll find links to information on spinal cord injury, assistive technology, medical newsgroups, disability organizations etc.

     

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  • "Disability Parking Publications and Forms" - Illinois

    This website from the Illinois Secretary of State Office lists several publications and forms for persons with disabilities who live in Illinois: Application for Illinois Disabled Person Identification Card, Application for a replacement parking placard, Parking program for persons with disabilities, Certification for disability license plate, Certification for parking placard, and What you should know about Accessible Parking. If you do not live in the state of Illinois, check your state specific Secretary of State Office or Department of Transportation website to identify similar information.

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  • Disability Resources, Inc.

    This is an online library put together by a staff of experienced volunteer librarians. This award-winning website features a database of hundreds of links that have been selected and approved by the Disability Resources Monthly staff as some of the most accurate and helpful online resources available.

     

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  • "Eat Well, Live Well with Spinal Cord Injury: A practical guide to help individuals with spinal cord injuries address secondary health complications in SCI through nutrition" (2013)

    It is common for individuals with spinal cord injuries to experience multiple nutritional deficiencies. Eating the right foods becomes even more crucial to meet your body's increased nutrient needs fight after injury, during rehabilitation and throughout your life. Funded by the Paralyzed Veterans of America, Eat Well, Live Well with Spinal Cord Injury is a comprehensive, practical nurtritional guide written specifically for individuals with spinal cord injuries, as well as their families, friends, caregivers, health and medical professionals.

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  • Family Caregiver Alliance

    The Family Caregiver Alliance offers comprehensive online tools for caregivers in all locations and situations, including those caring for a spinal cord injury. Users can listen and view Caregiver Webinars on a variety of subjects. Workshops, classes, and events are also available across California. The Caregiving Fact Sheets offer extensive lists of information and tips on topics, such as self-advocacy and stress management.

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  • Family Resource Center on Disability (FRCD)

    The Family Resource Center on Disabilities (FRCD) was a pioneer as a coalition that covered all disabilities.  FRCD was organized in 1969 by parents, professionals, and volunteers who sought to improve services for all children with disabilities, with efforts to educate and train parents, professionals, and volunteers. Click on Resources at the top toolbar to explore many sources of help for parents of children with disabilities.

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  • Family Voices

    This national network is committed to providing families of children with disabilities with tools to advocate for family-centered health care, which Family Voices describes as "community-based, coordinated...and guided by what is best for each child and family." In this system, the family is emphasized as an equal partner in decision-making for health care. This website offers a wealth of material, including statistics and information on disability-rights legislation, details on family support systems and links to initiatives to improve family-focused health care. You'll also find contact information for the Family Voices organization closest to you.

     

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  • Fashion IZ Freedom - Adaptable Clothing

    Canadian Fashion Designer, Izzy Camilleri, has created a line of adaptable men and women's clothing intended for a "seated clientele." Here you'll find contemporary clothing designed for fashion and comfort in the context of a wheelchair. The website features tops, skirts, pants and jackets in a variety of styles.

     

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  • "Fire Safety for Wheelchair Users" by the United Spinal Association

    This online consumer education booklet gives important tips for spinal cord injury survivors and families in ways to handle situations before and during a fire. It also addresses fire prevention within homes. The tips are a model that can be modified and adjusted to fit varyous types of homes and structures. 

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  • Five Wishes: Living Will Online

    Five Wishes is an online living will document provided by a non-for-profit organization called Aging with Dignity. It allows individuals to put their end-of-life wishes in their own words, rather than require state-written documents. Five Wishes is an easy-to-use document that helps express how you want to be treated if you are unable to speak for yourself. It is unique among all other living will and health agent forms because it speaks to all needs: medical, personal, emotional, and spiritual. It also helps structure discussions with your family and physician. Often called the "living will with a heart and soul," the Five Wishes document is the most widely used advance directive or living will in America. Click on the Preview box to review details of Five Wishes.

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  • Florida Spinal Cord Injury Injury Resource Center

    The Florida Spinal Cord Injury Resource Center (FSpinal Cord InjuryRC), established in January 1994, serves as the statewide clearinghouse of Spinal Cord Injury resource information for persons who have survived an Spinal Cord Injury, their families and friends, healthcare professionals, support groups, the media, and the general public. Click on Resources on the top toolbar to view A-Z Resources for spinal cord injury.

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  • Friends of Disabled Adults & Children

    FODAC’s mission is to provide durable medical equipment (DME) such as wheelchairs and hospital beds at little or no cost to the disabled and their families. We seek to enhance the quality of life for people of all ages who have any type of illness or physical disability. Since 1986, FODAC has collected and distributed more than 25,000 wheelchairs and other durable equipment to create a better quality of life for adults and children. Services include durable medical equipment, home modifications, vehicle modifications, and medical supplies.

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  • "From There to Here: Stories of Adjustment to Spinal Cord Injury," Ed. Karp, Gary and Stanley D. Klein, Ph.D (No Limits Publications, 2004)

    "From There to Here: Stories of Adjustment to Spinal Cord Injury," is made up of forty-five personal essays by people with spinal cord injuries. It is designed to bring hope, but not by inspiration, as it illustrates the real and complex process of how people respond to sudden and overwhelming change. The heart of these stories is what happened in between--the actually journey to adjustment, acceptance, meaning and possibility--the journey to "Here."

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  • Greater Boston Chapter of Spinal Cord Injury Association

     The Greater Boston Chapter of NSpinal Cord InjuryA is a 501 (c) (3) organization working to reach, inspire, support and empower individuals and their families affected by spinal cord injury and paralysis throughout Massachusetts.  GBC provides access to resources, vital information, peer visitors, advocacy and educational information. From the moment of injury, GBC provides one-on-one services to the newly injured and those around them as they learn to cope with dramatic change and adjust to post-injury life. Although the GBC is based in Massachusetts, their website is a great resource for everyone.  Their nationally recognized Peer Visitor and Mentor Program provides positive role models to those who are newly injured and their families.

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  • Greater Kansas City Spinal Cord Injury Association

    The Greater Kansas City Spinal Cord Injury Association is a consortium of individuals with spinal cord impairment, health care professionals and service providers.  They aim to be a resource for education, support, services local events. Peer discussion groups meet regularly to share resource information and ideas for adjustment and independence.

     

     

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  • Greater New York Chapter of the National Spinal Cord Injury Association

    The Greater New York Chapter of the Spinal Cord Injury Association (NYCSCIA) is a non-profit 501(c)3 organization, whose mission is to help people rebuild their lives after spinal cord injury by providing resources, services and peer support to survivors and their families.  The Chapter works to empower and promote independence for people with spinal cord injuries as they lead active, meaningful lives in their communities. Weekly support groups run throughout the year. NYCSCIA also partners with the NY City Parks to provide an adaptive kayak program.

     
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  • Greater Orlando Spinal Cord Injury Network

    The Greater Orlando Spinal Cord Injury Network is a group for persons with Spinal Cord Injury in the Orlando, Florida area. Their mission is to serve the needs of people with Spinal Cord Injury in employment, adaptive sports, recreation, social functions, networking, outreach, Spinal Cord Injury prevention, and guest speakers for the group. Contact the Network directly to identify and confirm dates and locations of events.

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  • Gridiron Heroes

    Gridiron Heroes Spinal Cord Injury Foundation was formed in 2003 with a specific mission: To provide immediate, as well as, long term resources and support to individuals sustaining catastrophic spinal cord injury through activities associated with high school football.

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  • HEALTH Resource Center at the National Youth Transition Center

    The HEALTH Resource Center is a national clearinghouse of educational resources for individuals with disabilities. Managed by the George Washington University Graduate School of Education and Human Development. Explore the Center's Resources and Publications for information and advice about making decisions and overall preparation for entering college with a disability. Frequently Asked Questions can also assist parents whose children are making this transition.

     

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  • HealthFinder.gov

    Healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations. This government website is designed to help you and those you care about stay healthy. Health Topics A to Z provides information on health conditions and diseases, nutrition and physical activity, doctor visits, everyday healthy living, pregnancy and parenting.

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  • HealthInsurance.com

    This website offers a simple tool which enables you to find and compare health plans. With online premium quotes, this is a good place to start researching your insurance options, whether you're looking for plans for the long term, short term, or are in transition from one plan to another. At the very bottom of the home page is a set of links to help you look up information regarding health, dental, short term, life, travel, and Medicare insurance plans.

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  • HelpHOPELive

    HelpHOPELive is a 501(c)(3) nonprofit that helps patients and families facing transplantation or catastrophic injury develop personal fundraising campaigns to support their ability to pay for uninsured medically related expenses. They provide the consultation needed to learn how to raise funds to bridge the gap between what health insurance will pay and what is actually needed to heal, live and thrive. Click on How it Works to find out about how to start a catastrophic injury campaign for fundraising.

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  • Hiring a Caregiver

    It is natural to be worried and overwhelmed when needing to hire someone for help with personal care. This consumer education sheet from the Rehabilitation Institute of Chicago LIFE Center, can help you better understand how to start, what to ask, and how to know if someone will provide what is needed.  Pros and cons for using a home health care agency, employment agency, or hiring a caregiver on your own are outlined along with caregiver interviewing tips.

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  • IN*SOURCE - the Indiana Resource Center for families with Special Needs

    IN*SOURCE is a parent organization that provides support services and educational resources to Indiana families. Through the work of staff and many volunteers, virtually all of whom are parents of persons with disabilities, IN*SOURCE provides parents, families and service providers in Indiana the information and training necessary to assure effective educational programs and appropriate services for children and young adults with disabilities. IN*SOURCE also provides an array of resources to allow parents to quickly assist their children - regardless if the topic is bullying in school or how to transition their child from school into adult life.

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  • Independent Living Centers - Virtual Listing - National

    Centers for Independent Living (CIL) are nonresidential disability advocacy agencies that support people with disabilities to live in the least restrictive community of their choice. This civil right, guaranteed through the Olmstead Decision, states that people with disabilities should receive public benefits and services in the most integrated setting appropriate to their needs. CIL agencies provide a variety of community-based services and peer support. Click on a state to locate an independent living center close to your home.

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  • Injury Board

    The Injury Board is a network of personal injury law firms located across the United States and the United Kingdom. A group of law firms from the Injury Board created a Help Center on spinal cord injuries to provide basic information on safety, initial steps in handling an injury, treatment and rehabilitation, caregiving advice, and legal issues. Each section offers a few paragraphs of insight, facts, figures and other helpful links.

     

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  • Inspired Spinal Cord Injury Support Forum

    Inspired Forum is an online spinal cord injury community that was designed to promote a positive outlook for those with Spinal Cord Injury. Members of the site are able to connect others to share experiences and support each other. Inspired Fourm aims to make members feel comfortable and relaxed with a good degree of humor!  Users must "Register" via the hompage to access this online community.
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  • International Center for Disability Resource on the Internet

    Founded in 1998, The International Center for Disability Resources on the Internet (ICDRI) is a non-profit center based in the United States and designated as a 501 (c)(3) entity. The ICDRI’s overarching vision is the equalization of opportunities for persons with disabilities. As an internationally recognized public policy center organized by and for people with disabilities, they seek to increase opportunities for people with disabilities by identifying barriers to participation in society, and promoting best practices and universal design for the global community. ICDRI services provide white papers, keynotes and training for conferences, government agencies, universities and private sector organizations. They are also frequently called upon to provide disability rights education and customized programs, and actively participant in public policy strategic planning and implementation for governments in the US and abroad. 

     
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  • Knoxville disABILITY Resource Center (DRC)

    The Knoxville disABILITY Resource Center (DRC) is a not-for-profit organization run for and BY people with disabilities.  We are a community-based non-residential program of services designed to assist people with disabilities to gain independence and to assist the community in eliminating barriers to independence.  The DRC is also a Center for Independent Living (CIL) and hosts a number of events each year to support active community participation. .

     
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  • LIFE Center - Rehabilitation Institute of Chicago

    The LIFE (learning, innovation, family, empowerment) Center at the Rehabilitation Institute of Chicago is a premier family and professional resource center designed to support the life-long needs of people with disabilities, their families, and the community. The LIFE Center's extensive consumer education and community resources, spans over 7,000 peer reviewed sources of help centered on key life needs for familes and individuals living with a spinal cord injury. The online collection includes local, regional, national, and international agencies and extensive consumer education sheets. Topics include medical information and care, caregiving and equipment, housing and transportation, education and employment, support and wellness, recreation and leisure, finance and law, and inspiration and hope. Links to support groups, government disability programs, home care, medical equipment, and other assistive techology providers are also provided. Click on the Patient and Family Education pages icon to explore consumer education sheets specific to spinal cord injury.

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  • "Life on Wheels: The A to Z Guide to Living Fully with Mobility Issues" (Demos Medical Publishing, 2009)

    Disability awareness author and speaker Gary Karp provides a comprehensive guidebook for people with mobility disabilities - Life on Wheels. It's written in an affirming tone that helps people pursue their true, full potential. Candid discussions and tips regarding rehabilitation, healthy disability, the experience of disability, wheelchair selection, intimacy and sex, spinal cord research, home access, and getting out their are presented in an easy to understand way with good humor and useful insight.

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  • Living Wills and Powers of Attorney for Health Care: An Overview

    Taking time to outline your interests regarding the type of treatment you would like or would not like, along with identifying someone whom you trust to oversee your care will help ensure that your wishes are attended to in the event you are not able to communicate for yourself.  This consumer education sheet is provided by Nolo.com; one of the Internet's leading legal websites. This overview describes what's involved and why it is important to prepare Living Wills and Powers of Attorney for Health Care, who can make the health care documents, when it takes effect and when it ends, and how the documents can be revoked. This website provides additional information on a variety of aspects of advanced care planning to ensure your wishes are directed according to your desires.

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  • Lotsa Helping Hands

    Now when someone asks, "What can I do?" there's an easily accessible answer. Through this website, you can develop a community of people to help care for a loved one. Users create a personal website and invite others to join and stay updated on the needs of the individual requires help. Within the site is a calendar that keeps track of tasks that need to be done. Each member is able to sign up for different jobs, so caregiving responsibilities are shared and addressed within the group. Scroll through How it Works to better understand the details of this easy to use application.

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  • Love Like This Life

    Love Like This Life is a candid, personal blog, chronicling the lives of a young husband and wife, as they face the daily challenge of disability, with love lighting the way.

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  • Mad Spaz Wheelchair Club

    Mad Spaz Wheelchair Club promotes living life to the fullest.  This website offers information on disability adventures, ranging from bungy jumping to fishing, gliding, and skydiving. Personal articles on disability humor, sex, love, and relationships, as well as resources for wheelchairs and equipment are also provided. Club members have additional access to Forums to exchange ideas and information.  

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  • "Mayo Clinic Guide to Living with a Spinal Cord Injury: Moving Ahead with Your Life," The Mayo Clinic (Demos Health, 2009)

    This book was developed by leading Mayo Clinic experts, and covers a wide variety of spinal cord injury related topics such as emotional adjustments, sexuality, skin care, and adaptive equipment . This independence-granting book encourages readers to resume their favorite hobbies, participate in athletic activities, and return to the workplace quickly and safely.

     

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  • Miami Project to Cure Paralysis

    In 1985, Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti helped found The Miami Project to Cure Paralysis after Nick’s son, Marc, sustained a spinal cord injury during a college football game. Today, The Miami Project is a comprehensive spinal cord injury research center, housed in the Lois Pope LIFE Center, a Center of Excellence at the University of Miami Miller School of Medicine. The Miami Project’s international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury. The website's Living with Paralysis section provides provides exceptional consumer education on Spinal Cord Injury 101Care and Resources, Experimental Treatment, Webinars, and Statistics. The Healthy Living section provides additional information on diet and nutrition, exercises, sports and leisure, and stretching.

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  • Michael Brent Resource Center at Frazier Rehabilitation Institute

    The Michael Brent Resource Center at Frazier Rehabilitation Institute was established in 2010 to address the needs of individuals and their families from the onset of spinal cord impairment and continuing throughout the life cycle.  Its mission is to provide a central location where educational books, DVD’s, CD’s, pamphlets and other educational materials are housed for inpatient, outpatients, families, staff, students and others to come and learn about spinal cord impairment.  The Center also provides a location for inpatients, outpatients and those in the community to meet and network with the agencies that serve them. 

     

     
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  • mobileWOMEN.org

    mobileWOMEN.org is an online magazine for women in wheelchairs, created by women in wheelchairs, who were having difficulty finding answers to their questions about health, fashion, and other topics. Their mission is to bring together current and accurate information on issues of interest to our community.  It is a website where can women unite to ask questions and share experiences. Most of all, this site is a place where we can learn from each other.

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  • Model Systems Knowledge Translation Center

    The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops systems for sharing information for the National Institute on Disability Rehabilitation Research (NIDRR) model systems programs in traumatic brain injury, spinal cord injury, and burn injury. The Spinal Cord Injury tab at the top takes you to a page with a listing of what the website has to offer, including a factsheets, slideshows, and hot topic modules as well as quick reviews of research that is funded by the NIDRR, and a database of research publications from the Model Spinal Cord Injury Systems since 1991. 

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  • Morton Cure Paralysis Fund

    In 1995, Peter Morton broke his neck in a bicycle accident that left him paralyzed from the neck down and unable to breathe without a ventilator.  Devastated by the accident, friends turned their hurt into hope. They launched a small-town golf tournament to raise funds for spinal cord injury research—and the Morton Cure Paralysis Fund was born.  Since then, MCPF has raised over $2.0 million for cutting-edge research.

     

     

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  • Mothers Against Drunk Driving® (MADD)

    Founded by a mother whose daughter was killed by a drunk driver, Mothers Against Drunk Driving® (MADD) is the nation’s largest nonprofit working to protect families from drunk driving and underage drinking. One of the largest victim services organizations in the U.S., MADD also supports drunk and drugged driving victims and survivors serving one person every 9 minutes at no charge. So long as drunk driving impacts our families and friends, MADD's goal is to increase the number of victims and survivors served, and to continually improve the quality of those services. Click on Victim Services to learn more about finding support and understanding victims' rights.

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  • National Caregivers Library

    FamilyCare America, Inc. created this as a free online source of articles, forms, checklists and links directed toward helping educate and support caregivers in all situations. The Checklists and Forms section provides particularly useful aids in making informed decisions about housing, money, and health issues that apply to all caregivers.

     

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  • National Center for Medical Home Implementation

    The mission of the National Center is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), to ensure that children with special needs have access to a medical home. The National Center provides support to physicians, families, and other medical and non-medical providers who care for children and youth with special needs. The Families and Caregivers page includes tools, resources, and links to information to assist families in successfully partnering with their child's medical home professionals.

     

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  • National Consumer Voice for Quality Long-Term Care

    This group, formed as an outgrowth of work done by advocates working for Ralph Nader and the National Gray Panthers, provides information on federal and state regulatory and legislative policy geared toward improving long-term-care facilities. The Information Library offers resources on common issues for families and caregivers regarding long-term care including specialized information for consumers, family members, and advocates to support decisions in selecting a nursing home, getting quality care, understanding residents' rights, and tips for family involvement.

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  • National Mobility Equipment Dealers Association

    This website was developed by the National Mobility Equipment Dealers Association. It offers useful information on available adaptive vehicles, adaptive features, such as hand controls as well as funding options for purchasing vehicles. You also can find a local dealer, learn about the nationally recognized accreditation program for dealers, called the "Quality Assurance Program," and find manufacturers that offer rebates and discounts.

     

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  • Next Step in Care

    The United Hospital Fund, which is based in New York, created this website to help improve patients' transitions to different types of care facilities. The site is packed with resources for every step of caring for a loved one, from hospital admission to discharge and beyond which apply regardless of your location. The online Family Caregiver's Guide to Care Coordination helps family identify ways to work together with professionals with tips on staying organized, especially when professional care ends. 

     

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  • PACER Center: Champions for Children with Disabilities

    PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. Located in Minneapolis, it serves families across the nation, as well as those in Minnesota. Parents can find publications, workshops, and other resources to help make decisions about education, vocational training, employment, and other services for their children with disabilities. PACER's YouTube Channel offers many helpful vidos on a variety of subjects, including assistive technology, speical education, and bullying prevention.

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  • PACER's National Parent Center on Transition and Employment

    PACER's National Parent Center on Transition and Employment provides quality information and resources for families of young adults with disabilities on transition planning, civil rights, work-based learning, career accommodations, higher education, financial aid, and much more. It serves as a comprehensive source of information designed to support families' varied needs.

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  • Paralyzed Veterans of America

    The PVA's mission is to improve the quality of life of its members by advocating for improved health care, research, education and awareness of disability rights and programs for veterans. The website focuses primarily on injured veterans; however, the information on disability rights and sports and recreation applies to veterans and non-veterans alike.

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  • Paws With a Cause

    Paws With a Cause enhances the independence and quality of life for people with disabilities accross the national through custom-trained Assistance Dogs. In addition, PAWS increases awareness of the rights and roles of Assistance Dog Teams through education and advocacy. Learn more about assistance dogs, customized training, lifetime team support, and how to request an application for a PAWS dog by clicking on I WANT A DOG.

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  • Personal Care Assistants - How to Find, Hire and Keep Them

    This section, found on the Craig Hospital website, offers suggestions on how to deal with a personal care assistant (PCA). There are tips on saving money, organizing and evaluating your needs and tips on keeping your PCA happy and responsible.

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  • Personal Care Attendant

    This consumer education sheet, developed through the Medical University of South Carolina's Office of Research, discusses key points for finding, interviewing, educating, and training a personal care attendant (PCA). It also outlines top 10 reasons why PCAs quit their jobs with helpful hints for developing a positive working relationship.

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  • Project Walk - Orlando

    Project Walk Orlando exists to provide those living with a spinal cord injury the opportunity to achieve their greatest recovery potential and an overall increased quality of life.  The center is modeled after the highly successful Project Walk® in Carlsbad, California, which is an aggressive and comprehensive exercise-based program.  Their methodology for Spinal Cord Injury recovery extends the program's reach and affordability to the southeastern United States, Florida residents and beyond.

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  • Push to Walk

    Founded in 2007, Push to Walk a non-profit specialized exercise gym in the New York-New Jersey area that empowers people with spinal cord injuries to realize their individual potential.  Push to Walk’s rigorous one-on-one workout approach challenges clients to reach their personal goals and achieve maximum independence, leading to greater success and fulfillment in their personal and professional lives. A 501(C)3 non-profit, Push to Walk is located in Riverdale, New Jersey. 

     
     
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  • Pushrim

    Pushrim is a social network and support website for friends, family and people living with spinal cord injury.  Members are encouraged to create a user profile page to blog and hold related conversations in Pushrim’s forum section.  The website was created as a social and emotional outlet for people affected by spinal cord injury.

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  • Ralph’s Riders Foundation

    Ralph‘s Riders Foundation is a 501(c)(3) nonprofit dedicated to enabling people living with spinal cord injury and paralysis to achieve their highest level of independence, health and personal fulfillment by providing peer guidance, resource information and a supporting network within the community. Riders are a team of extraordinary people living with spinal cord injury and paralysis that provide peer guidance to people with similar disabilities. Riders give a unique perspective on life as well as an ability to set a great example for newly injured individuals. This group also provides a Career Coaching Program to help establish professional goals, make career decisions, created and execute plans, and overcome obstacles that may come in their way.

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  • Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

    RESNA promotes research and advocacy for assistive technology through membership and programs focused on the exchange of ideas and information about technological advancements for individuals with disabilities. The Consumer and Public Information section of this professional websites provides a catalogue of state programs designed to assist you as well as conferences and assistive technology news. Some of the most useful tools on this website are the lists of state programs which can help you find financial help for assistive technology.

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  • Rick Hansen Foundation

    Here you can read the inspirational story of Canadian Rick Hansen, who has become a celebrated wheelchair athlete and developed a foundation dedicated to raising awareness and creating a more accessible environment for people with spinal cord injury. The Rick Hansen School Program teaches students about access, inclusion, an disability. In addition, the Rick Hansen Foundation helps improve accessibility and quality of life through a variety of community programs. Quality of Life grants are awarded to individuals and organizations each year. You'll also find links to other helpful websites and information on programs and events sponsored by the Rick Hansen Foundation.

     

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  • Rocky Mountain Regional Spinal Injury System - Craig Hospital, Englewood, CO

    Craig Hospital in Englewood, CO offers state-of-the-art facilities and expert staff for the care of spinal cord injuries. Free on-campus housing units are offered to family members to encourage family support. The large number of patients with similar ages, backgrounds and injuries promotes hope through friendships and peer counseling. Click on Education & resources at the top toolbar to access interactive library resources on spinal cord injury.

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  • Rural Caregivers

    Caregiving is always challenging. However, for rural caregivers, the challenges are compounded by factors such as geographical isolation, gaps in rural service delivery systems, and the unique needs of agricultural workers with disabilities. Ruralcare.info is designed to help bridge the information gap and assist in creating a web support community for rural caregivers.

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  • Salute, Inc.

    The transition to civilian life is often difficult, especially where there is injury. SALUTE delivers short term financial assistance to bridge the temporary income gaps and meet the basic needs of post 9/11 veterans. The Get Assistance tab will help you learn more about financial assistance eligibility. Submit a Financial Assistance Application or call direct with any questions you may have at 847.359.8811.

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  • Sibling Support Project

    The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. They believe that disabilities, illness, and mental health issues affect the lives of all family members. Youths 8-18 can find information and peer support in the project's Sibshop programs, which connect youths coping with a sibling's disability to community-based local programs. There are a variety of online groups to get help and support at all hours of the day for adult brothers and sisters, young adult sibs (18 to early 30's) and for teen brothers and sisters.

     

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  • South Carolina Spinal Cord Injury Association

    The South Carolina Spinal Cord Injury Association helps South Carolinians with spinal cord injury live healthy, independent lives through providing specialized resources, advocacy, and peer support. While based in South Carolina, the website is a valuable resource for people with Spinal Cord Injury and their families. The Living Life to the Fullest  section provides information on adapting to life after a Spinal Cord Injury and includes a resource library and links to various sources of help.

     

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  • Special Needs Answers

    The purpose of this site, sponsored by the Academy of Special Needs Planners, is to provide a general overview of strategies parents and others can use to plan for their own futures and for those of family members with special needs. Topics include information on Estate Planning, Special Needs Trusts, Financial Planning, SSI and SSDI, Settlement Planning, Public Beneifits, and Disability Issues.  This site also provides a directory of Special Needs Planners by state.
     

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  • "Special Needs Trusts: Protect Your Child's Financial Future - 5th Edition" (Nolo, 2013)

    If you care for a child or other loved one with a disability, you've no doubt thought about what will happen when you're no longer able to give that care. Special Needs Trust shows you how to leave any amount of money to your disabled loved one without jeopardizing government benefits.

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  • Spinal Cord Injuries Australia

    Spinal Cord Injuries Australia is an international resource that promotes independence, and continues today with a proud history of providing consumer based support and rehabilitation services to people with physical disabilities. They aim to create a society without barriers for people with spinal cord injuries. SCI resources include information on Access and Public Toliets, Clothing and Fashion, Employment and Eduction, Equipment, Technology, and Wheelchairs, Financial and Legal matters, Health and SCI facts, Housing and Home Modification, and Transport and Travel.

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  • Spinal Cord Injuries: Areas of Research - Topic Overview

    This section of WebMD provides an overview of several types of research on spinal cord injuries. Some of them may be at the point where people with SCI's are using them on a trial basis. Others might still be in the animal-study stage. They all have the potential to lead to a return of some feeling and movement in paralyzed areas.

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  • "Spinal Cord Injury and the Family: A New Guide," Alpert, Michelle J. MD, Cindy Purcell, Ted Purcell and Saul Wisnia (Harvard University Press, 2008)

    Physiatrist Dr. Michelle Alpert's clinical experience with patients' own stories, "Spinal Cord Injury and the Family" is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive. Dr. Alpert is the Director of Rehabilitation Medicine, Hebrew Rehabilitation Center, and Clinical Instructor in Physical Medicine and Rehabilitation, Harvard Medical School. She was the founder and first director of the Spinal Cord Injury Program at Spaulding Rehabilitation Hospital.

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  • Spinal Cord Injury Association of Illinois

    Spinal Cord Injury Association of Illinois is a 501(c)3 non-profit organization providing information and support resources for people paralyzed by trauma and medical conditions, family members, and health care and related professionals that serve the Spinal Cord Injury community. This association's events page identifies ways to participate in outings and fundraising events to support services for spinal cord injury.

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  • Spinal Cord Injury Association of Kentucky

    The Spinal Cord Injury Association of Kentucky networks with state, federal, public, and private agencies to raise awareness of people with spinal cord injuries and advocate for their needs.  Their mission of  is to serve those affected by spinal cord injury through increased awareness, greater resource availability and support services, enhanced educational and preventative interventions, as well as increased athletic and recreational opportunities.

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  • Spinal Cord Injury Association of Washington State

    Spinal Cord Injury Association of Washington is an organization for people with spinal cord injuries and for all committed to helping them.  The Association supports all interests, regardless of the cause of the injury or the severity of the impairment. They aim to be the first and main resource for all people affected by spinal cord injury, as well as for the family and friends of the injured person. Programs include resource referral, peer support, and a creative Here and Now program that uses social media to foster social support and fellowship.

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  • Spinal Cord Injury Directory from WebMD

    WebMD is a trusted source for objective, trustworthy, and timely health information. The website's section on Spinal Cord Injuries Directory provides a medical reference for spinal cord injury and pain and useful articles on life with a spinal cord injury.

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  • Spinal Cord Injury Guide

    The Boston Medical Center created The Spinal Cord Injury Guide to give the Spinal Cord Injury community a place to go to get trusted, peer-reviewed information, and to rate the best. The Spinal Cord Injury Guide brings together websites on Spinal Cord Injury chosen by people with spinal cord injuries for people with spinal cord injuries.

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  • Spinal Cord Injury Model System Information Network - University of Alabama

    The University of Alabama at Birmingham Spinal Cord Injury Model System maintains an extensive information network of spinal cord specific resources. The fact sheets offer quick references to basic spinal cord injury health information. Daily Living topics provide consumer education on Adjustment, Assistive Technology, Caregiving, Family & Relationships, Health Management, Home Modification, Leisure, Mobility, Nutrition, Sexuality, School, and Work. Additional Rehab Tip Sheets provide information on common activities, such as wheelchair positioning, assisted pressure relief, lift transfers, assisted transfers and bed positioning. SCI Health Education Videos are also available for a vairey of secondary conditions.

     

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  • Spinal Cord Injury Network - Metropolitan Washington, D.C. Chapter

    Spinal Cord Injury Network is the Metropolitan Washington, D.C. area chapter of the National Spinal Cord Injury Association.  The Spinal Cord Injury Network provides support and services to people with spinal cord injuries and other mobility impairing conditions, and to their families and friends. Services include Information & Referral, Personal Assistance Service Registry, Peer Counseling, Support Groups, Wheelchair Basketball Team, Art Gallery, and other resource connections.

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  • Spinal Cord Injury Nurse Advice Line

    The Spinal Cord Injury Nurse Advice Line is a phone service provided by the outpatient clinic at Craig Hospital, a Model Systems Hospital for people with spinal cord injury. This service provides a dedicated nurse to answer non-emergent calls Monday-Friday between the hours of 9 a.m. – 4 p.m. Nurses at Craig Hospital have the experience to help identify potential complications before they become serious health issues. Two common health concerns are neurogenic bowel or bladder problems and skin issues, both of which can cause major health problems for people living with Spinal Cord Injury if not caught early. In addition to answering health-related questions, callers can obtain educational resources unique for healthy living with this injury.

    If you have questions regarding the three following areas, call 800-247-0257 or 303-789-8508 Monday-Friday from 9am to 4pm (MST).

    1. A non-emergent medical question arises that does not warrant a trip to the doctor’s office, yet needs answered.

    2. Experiencing changes in care and wondering whether it is “normal?”

    3. A new caregiver arrives and needs education materials to help in the transition.

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  • Spinal Cord Injury Recovery Project - Denver, Colorado

    Spinal Cord Injury Recovery Project is an exercise and integrative recovery center, based in Denver, Colorado. The center specializes in providing exercise based recovery programs for individuals who have had a spinal cord injury, stroke, or similar trauma.  Customized adaptive exercise programs are designed to help clients maintain health and wellness while providing optimal functional return.  The program’s therapies include: neuromuscular reeducation, weight bearing activities, Functional Electrical Stimulation (FES) with the RTI 300 bike, strength training, flexibility, and gait training. In addition, our facility provides client and family support and networking. In addition to fee based adaptive exercise training, functional electrical stimulation, and home training programs, the Center provides Open Gym memberships enable  access adaptive exercise equipment at their own pace.

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  • Spinal Cord Injury Support Group - Miami, Florida

    The Spinal Cord Injury Support Group is a not for profit organization that promotes camaraderie through friendship, education, advocacy and recreation to enhance the quality of life for those affected by spinal cord injuries and disabilities in Miami, Florida.

     
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  • "Spinal Cord Injury: A Guide for Living," Kriegsman, Kay Harris PhD, Jeffrey B. Palmer MD and Sara Palmer PhD (The Johns Hopkins University Press, 2008)

    "Spinal Cord Injury: a Guide for Living" is the definitive guide for people with a spinal cord injury and their families. Combining first-person accounts with up-to-date medical information, the book addresses all aspects of spinal cord injury--recovery and coping, sex and family matters, transportation and housing, employment and leisure--and reviews the challenges encountered by people with spinal cord injury throughout their lives.

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  • "Spinal Cord Injury: A Guide for Patients and Families," Dobkin, Bruce M.D. and Michael Selzer M.D (Demos Health, 2008)

    This well-written, reliable overview of traumatic spinal-cord injury and its treatment is essential reading for all patients, family members, and caregivers who want a better understanding of the condition. In simple, everyday English, it explains the anatomy of the spine, the results of injury, and treatment and management issues encountered during rehabilitation. A glossary of commonly used terms and website resources offer tools for further study, while the latest scientific research helps patients make informed medical decisions that promote optimum healing.

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  • Spinal Cord Injury: Sexuality

    Spinal Cord Injuries can affect the ability to function in many ways, including sexuality and intimacy. The way you feel about sex and the ability to have sex is very important, but is different for every person. The Rehabilitation Institute of Chicago (RIC) created this consumer education sheet to answer the questions many have about sex after a spinal cord injury. Additional resources on sexuality and intimacy are available to the public from RIC through its patient and family education center, the LIFE (Learning, Innovation, Family, Empowerment) Center. Sexuality resources are found within the Support & Wellness section of the LIFE website.
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  • Spinal Cord Injury: Spinal Cord Injury Caregivers

    This is a private online forum whose members are all supporters and caregivers of individuals with spinal cord injury. Members create a support network to ask questions, find answers and empathize with each other

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  • "Spinal Network: The Total Resource Book" (Leonard Media Group, 2009)

    "Spinal Network" is the essential resource for making important life choices after a spinal cord injury, multiple sclerosis, post-polio syndrome, amputation, ALS and other conditions. This information-packed book explores options in health, technology, attendant services, employment, travel, sports, relationships, sexuality and parenting. It explains--in clear language--the intricacies of legal rights, government benefits and cure research. 

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  • SPINALpedia

    SPINALpedia is a video sharing mentor network for people with paralysis from spinal cord injury or illness and their family and friends.The experts of life with paralysis are the people who live it every day, injured or not. With an incredible diversity of experiences and challenges for a variety of people and injuries, the process of adaptation is daunting and complicated. With SPINALpedia, we give people the opportunity to share their experiences and learn from others, meeting a diversity of needs and creating a dynamic, sustainable community grounded in our common desire to overcome the challenges of paralysis.

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  • Strength For Caring

    The Johnson & Johnson Company's Caregiver Initiative seeks to offer support and information for caregivers in all situations. Calling itself "a place for caregivers," this website focuses on how to take care of yourself as a caregiver, while also giving tips on how to care for others. Users are able to connect with others through the discussion boards and videos of caregivers telling their personal stories. To expand their committment to caregivers, Johnson & Johnson is collaborating with AARP to expand and offer a wide range of valuable, expert information with ability to connect with other caregivers.

     

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  • Support for Families of Children with Disabilities (SFCD)

    Support for Families of Children with Disabilities (SFCD) is a parent-run San Francisco-based nonprofit organization founded in 1982. They support families of children with any kind of disability or special health care need as they face challenges.  The purpose of Support for Families is to ensure that families of children with any kind of disability or special health care need have the knowledge and support to make informed choices that enhance their children's development and well being. Through fostering partnership among families, professionals and the community our children can flourish. Explore SFCD Services to identify support options.

     

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  • Theravive

    Theravive is a network of licensed and professional counselors, therapists, and psychologists who uphold clear, compassionate values in therapy. Theravive's purpose is to connect people with professionals,who specialize in every form of counseling. Explore Find a Therapist to identify potential support near you.

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  • ThreeSixtyFive Foundation

    It is the mission of the ThreeSixtyFive Foundation to provide, through financial and non-financial means, assistance to physically challenged individuals in returning to an active lifestyle during the first year of their recovery. Like most charity organizations, fundraising efforts are the primary source of income for this foundation. Hosting few events each year, along with individual donations allows ThreeSixtyFive to identify and support new recipients. Fundraising support is provided to a resident living with a spinal cord injury in the greater Indianapolis area. The charity partners with an individual during the first three hundred and sixty-five days of recovery. Offering financial help, but more importantly creating the window whereby the  individual can draw uhis or her own motivation for facing the challenges ahead and moving forward.

     
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  • Through the Looking Glass

    Through the Looking Glass (TLG) is a nationally recognized legal center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. Some issues include: parents with/DA and families in custody cases and parents with/DA in child welfare & civil rights implications. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Our mission is "To create, demonstrate and encourage non-pathological and empowering resources and model early intervention services for families with disability issues in parent or child which integrate expertise derived from personal disability experience and disability culture."

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  • Tips for Teens: Use Your IEP Meetings to Learn How to Advocate for Yourself

    This consumer education sheet provided by the PACER Center provides useful tips for teens in developing self-advocacy skills. It provides information on how to begin to express needs and wants by participating in their Individualized Education Program (IEP) meetings. At these meetings, teens can learn ways to talk about their disability to others, set goals, build teamwork skills, ask for accommodations and practice other self-advocacy skills. This single copy form from the PACER publication catalog is for your personal, noncommercial use only. For permission to reprint multiple copies or to order presentation-ready copies for distribution, complete the PACER Reprint Form at www.pacer.org/forms/request.asp or PACER Publication Order Form at ww.pacer.org/publications/OrderForm.pdf

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  • "Today's Caregiver" Magazine

    The website for Today's Caregiver Magazine offers helpful online resources. Newsletters, back issues of magazines and group forums can be accessed here. A unique feature, this site offers a kitchen guide for caregivers, complete with recipes and articles.

     

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  • Travis Roy Foundation

    The Travis Roy Foundation is dedicated to enhancing the life of individuals with spinal cord injuries and their families. The foundation provides grants to purchase adaptive equipment and funds research to discover therapies and methods for treating spinal cord injuries.

     
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  • United Spinal Association

    Each year, United Spinal helps thousands of individuals living with spinal cord injuries or disorders overcome the daily challenges of living with a disability. With over 60 local chapters and suport groups nationwide, United Spinal Association connects people  with SCI/D to their peers and fosters an expansive grassroots network that enriches lives.  Free webinars are provided on a regular basis to help individuals and their families stay informed and connected to helpful resource information. The resource library offers useful links to services, articles and studies. Click on Chapters at the top toolbar to locate your state association.

     

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  • United Spinal Association of Connecticut Chapter

    The Mission of the Connecticut Chapter of the United Spinal Association is to support those with spinal related injuries or diseases and their families by being an advocate for their rights while serving as a resource to its members and the general public. The Association provides individual peer support and information to increase awareness of disabilities and prevention, and fundraising events to promote research and education. Quality of Life grants have been given to individuals for transportation needs, education expenses, additional wheelchair cushions, home and vehicle modification and adaptive equipment. The Chapter also provides the national Powerful Tools for Caregiver program. Special events and programs are also designed to support empowerment of its members.

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  • United Spinal Association of Virginia

    The United Spinal Association of Virginia's mission is to enable people with spinal cord injuries and disease to achieve their highest level of health and independence. Services and programs aim to  improve quality of life by providing information, referral services, and peer-support. Explore the pull down options under Living With SCI on the top toolbar to explore resources and services to support individuals with spinal cord injuries or disease, their families, health professionals, policy makers and others interested in spinal cord injury.

     
     
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  • United Spinal Association—Family and Personal Relationships

    The United Spinal Association provides active-lifestyle, peer support, and advocacy information to encourage individuals to achieve their highest potential in all facets of life. The Association's Spinal Cord Resource Center has a dedicated section on Family and Personal Relationships with consumer information articles on Dating after SCI, Parenting after SCI, Love and Marriage after SCI, and other relevant articles.
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  • Well Spouse Association

    This organization specifically serves the needs of spousal caregivers. Here you'll find support groups, encouraging articles, mentoring from veteran caregivers and most of all, the message that you are not alone. Well Spouse Association unites a community of caregivers on and offline with forums and newsletters as well as meetings, conferences and respite weekends. If you are a caregiver for your spouse, this is an excellent resource.

     

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  • Wheelchair Foundation

    The Wheelchair Foundation is a nonprofit organization leading an international effort to create awareness of the needs and abilities of people with physical disabilities, to promote the joy of giving, create global friendship, and to deliver a wheelchair to every child, teen and adult in the world who needs one, but cannot afford one. For these people, the Wheelchair Foundation delivers Hope, Mobility and Independence. The Country Distribution List illustrates the scope of this remarkable project and lives touched. For more information about bulk requests for wheelchairs, contact the the Wheelchair Foundation World Headquarters.

     
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  • Wheelchair Site

    The Wheelchair Site is an independent website designed to help you understand the challenges faced by people with physical limitations. It also includes helpful information for people who rely on mobility aids - including tips on choosing the right wheelchair. We also discuss the different product options - including manual wheelchairs, electric wheelchairs, motorized wheelchairs, pediatric wheelchairs, scooters, walkers, wheelchair lifts, wheelchair vans and various wheelchair accessories

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  • Wounded Warrior Project

    The Wounded Warrior Project (WWP) began when several veterans and friends, moved by stories of the first wounded service members returning home from Afghanistan and Iraq, took action to help others in need. What started as a program to provide comfort items to wounded service members has grown into a complete rehabilitative effort to assist warriors as they recover and transition back to civilian life. If you are a veteran injured after 9/11/01, select Programs.  Here you can learn about WWPO’s programs, which are uniquely structured and designed to nurture the mind and body, and encourage economic empowerment and engagement. Under each of these program areas, Wounded Warrior Project (WWP) offers a variety of programs to meet a range of needs.

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  • Yellow Pages for Kids with Disabilities

    The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists. Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state. A specific listing of Nation-wide Parent Training and Information Centers and Community Parent Resource Centers is also provided on this website.

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  • "Yes, You Can!: Guide to Self-Care for Persons with Spinal Cord Injury, 4th ed.," Ed. Burns, Stephen P., M.D and Margaret C., M.D. Hammond. (Paralyzed Veterans of America, 2009)

    Published by the Paralyzed Veterans of America, 'Yes, You Can!," is designed for both the newly injured patient, and their family members. Written by experts in the field of spinal-cord injury, it is an extremely popular guide to subjects such as: self-care, sexuality, pain management, substance abuse, exercise, alternative medicine, adaptive equipment, and staying healthy.

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