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This is a selected list of interesting and informative articles, stories and publications about spinal cord injuries.

  • "A House for All Children," (New Jersey Institute of Technology, 2000)

    This book provides many architectural suggestions, guidelines and resources for making a home safe and accessible for children with special needs.

  • ABILITY Magazine

    ABILITY Magazine, published by Time-Warner, is one of the leading magazine covering health, disability and human potential. From Diabetes to Spinal Cord Injury and celebrity interviews to CEO profiles, ABILITY covers the latest on Health, Environmental Protection, Assistive Technology, Employment, Sports, Travel, Universal Design, Mental Health and much more. Our writers include MDs, PhDs, JDs, best-selling authors, U.S. Senators and advocates. Cover interviews consist of Movie and TV Celebrities, Sports Figures, Business Leaders, Presidents, First Ladies and more.

  • ABILITY Magazine

    ABILITY Magazine, published by Time-Warner, is one of the leading magazine covering health, disability and human potential. From Diabetes to Spinal Cord Injury and celebrity interviews to CEO profiles, ABILITY covers the latest on Health, Environmental Protection, Assistive Technology, Employment, Sports, Travel, Universal Design, Mental Health and much more. Our writers include MDs, PhDs, JDs, best-selling authors, U.S. Senators and advocates. Cover interviews consist of Movie and TV Celebrities, Sports Figures, Business Leaders, Presidents, First Ladies and more.

  • Academy of Spinal Cord Injury Professionals

    Academy of Spinal Cord Injury Professionals is a interdisciplinary organization dedicated to advancing the care of people with spinal cord injury/dysfunction (Spinal Cord Injury/D) by bringing together nurses and physicians.The Academy is made up of the American Association of Spinal Cord Injury Nurses, the American Paraplegia Society, the American Association of Spinal Cord Injury Psychologists and Social Workers, and the Therapy Leadership Council in Spinal Cord Injury.

    Where to Start:
    On the home page, select Many Minds on the top toolbar. This will prompt a sub-toolbar, where you can select your area of interest such as Nurses, Physicians, Psychologists, Social Workersor Therapists.

  • Accessible Air Travel

    Although air travel today is available to most people, barriers to access still exist. A passenger with a disability may encounter obstacles just to reach an airplane seat. This pamphlet from the United Spinal Association explains what to expect from the time an airline reservation is booked, to the moment the flight touches down takes the surprises out of traveling. 

  • Acute Management of Autonomic Dysreflexia: Individuals with Spinal Cord Injury Presenting to Health-Care Facilities

    Autonomic dysreflexia (AD), with its sudden and severe rise in blood pressure, is a potentially life-threatening condition that can occur in anyone with a spinal cord injury at or above thoracic level six (T6). The resolution of AD requires quick and decisive treatment. Spinal cord medicine health-care providers are very familiar with the diagnosis and treatment of AD. However, because of the rapid onset of AD and the potentially severe symptoms, individuals with this condition are often rushed to the nearest health-care facility that may be staffed by health-care providers who have little or no experience in the treatment of AD. The purpose of these guidelines is to make available information that can be used by health-care providers when an individual with signs and symptoms of AD presents to their facility.

    Where to Start
    Follow the link to download the packet for free.
  • Adapting Motor Vehicles for People With Disabilities

    This is a brochure you can download from the National Highway Safety Administration that gives tips about adaptive technology for driving. Along with information on requirements, training, and adaptation costs, this publication contains advice on evaluating your need and choosing and maintaining a vehicle.

    Where to Start:
    The link will take you directly to the brochure, which you can download.

  • Adventures in Modern Life - By Ben Mattlin

    Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. 



  • American Association of Retired Persons Grandparent Foundation Information Center

    This section of the AARP website provides articles and information for grandparents who play an active role in their grandchildren's lives. The website offers extensive information on finding government aid programs, legal advice, tips on grandparenthood, and caregiving. There are a variety of resources including "Grandparenting a Child with Special Needs."

    Where to Start:
    Under More Information, select the GrandCare Support link. Click on Search Form, and fill in your information. This will direct you to programs in your area that specifically apply to your needs as a grandparent.

  • "Are We There Yet?," Verna Allette Wilkins (Tamarind Books, 2002)

    Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

  • Articles and Resources from Stanley Ducharme, Ph.D

    This informational website was developed by Stanley Ducharme, a psychologist and sex therapist specializing in physical disability, rehabilitation, sexual dysfunction and relationship issues. Resources topics include Sex, Fatigue and Depression, Tips from a Sex Therapist, Sexual Desire and more.

    Where to Start

    Scroll down to Frequently Asked Questions, or select a topic of interest in the Onsite Articles section.

  • "Aunt Katie's Visit," Katie Rodriguez Baxter (Access-4-All, 2006)

    This delightful book, by Katie Rodriguez Baxter, is a wonderful resource to begin a discussion with children about differences and abilities; useful for teachers and parents.

  • Autonomic Dysreflexia: What You Should Know

    This pamphlet was created by the Consortium for Spinal Cord Medicine with administrative and financial support provided by Paralyzed Veterans of America. It is a basic guide to everything you need to know about Autonomic Dysreflexia, covering everything from causes and symptoms, to treatments and emergency care.

  • Bladder Management for Adults with Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals

    Bladder management is a crucial element in improved outcomes for individuals with spinal cord injury. The goal is to maintain and preserve a functional, infection-free genitourinary system by preventing upper and lower tract complications with a management system that is compatible with an injury-free lifestyle. The ultimate goal of therapy is to achieve and maintain adequate bladder drainage with low-pressure urine storage and voiding. There is no “gold standard” for methods of bladder management, so this review is intended to provide insight into each method and to help individuals with Spinal Cord Injury choose the approach that will work best for them.

    Where to Start

    Follow the link to download the packet for free.
  • "Boots For a Bridesmaid," Verna Allette Wilkins (Tamarind Books, 2002)

    Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. Ask Our Expert is a useful way to connect to someone who can answer your questions directly via phone or email.

    Where to Start:
    Select Get Help from the menu on the right and scroll down to Start here if you are new to spinal cord injury. This section offers basic information and resources including a free book called the "Paralysis Resource Guide" and links to the Reeve Foundation Paralysis Community. For medical research information, click Research on the left of the homepage, which takes you to detailed information about basic research, clinical trials, and leading scientists and their work.

  • Depression and Spinal Cord Injury

    Depression is common and can affect anyone. About 1 in 20 Americans (over 11 million people) get depressed every year. Depression is even more common in the spinal cord injury (SCI) population - about one in five people.

    Where to Start

    Begin by scrolling down to the bottom of the Factsheet to take the MSKTC Depression Self-Test.

  • Disability Etiquette

    This pamphlet, designed by the United Spinal Association, is a great resource for businesses, schools, organizations, staff training and disability awareness programs. You don’t have to feel awkward when interacting with, or when you meet, a person who has a disability. This booklet provides tips for you to follow that will help create positive interactions and raise everyone’s comfort levels.  

  • is a support and assistance website listing helpful disability links . The site features a blog, forum, want-ads, personals and many links to businesses, music, e-mails, shopping, radio, etc. Presently, the site features over 600 links. There are many disability links on the 'net, but only a few of them are dedicated mostly to providing links, and we always are clicking on links and running test to make sure links stay working and are up to date.

  • Disabled World: Spinal Cord Injury

    Disabled World provides information and news to the Disability Community, Organizations, and Rights Campaigners, via our Disability News Service, Articles, and informative Videos related to health and disabilities around the world.  The Spinal Cord Injury section provides basic information and recent medical research on Spinal Cord Injury developments.  

    Where to Start:

    Scroll down to get basic information on spinal cord injuries and to read recent articles from top medical journals.  

  • "Don't Worry, He Won't Get Far on Foot," Callahan, John (Vintage Books, 1989)

    This is the late John Callahan's autobiographical, uncensored account of alcoholism and spinal cord injury. Told in graphic but humorous words and pictures, this is an inspiring story of facing sobriety and life after a spinal cord injury. Warning: must have a sense of humor.

  • Early Acute Management in Adults with Spinal Cord Injury: a Clinical Practice Guideline for Health-Care Professionals

    This Clinical Practice Guideline was created by Consortium for Spinal Cord Medicine.  It was designed to guide health care professionals in trauma centers, ICUs and hospitals in providing care during the first 72 hours after spinal cord injury.

    Where to Start
    Follow the link to download the packet for free.
  • Employment after Spinal Cord Injury

    Most people with spinal cord injuries (SCI) want to work yet need support, training and vocational rehabilitation services to help them obtain and keep a job. These sources of support may help to overcome many barriers that are outside the individual’s control, such as financial and health care issues, accessibility, and employer attitudes. 

    Where to Start

    Follow this link to learn more about vocational rehabiliation, work place disability rights, and landing a job after spinal cord injury. 

  • "Enabling Romance: A Guide to Love, Sex, and Relationships for People with Disabilities," Klein, Erica Levy and Ken Kroll. (No Limits Communication, 1992)

    Although originally published in the 1990s, nothing about "Enabling Romance" seems out dated. Written by a couple who has been there, this book is an illustrated guide to intimacy and sexual expression for people with disabilities. It comes highly recommended by professionals in the field of spinal-cord injury, as it debunks the myths of sexuality in people with disabilities.

  • "Ending Life: Ethics and the Way We Die," (Oxford University Press, 2005).

    Margaret Pabst Battin has established a reputation as one of the top philosophers working in bioethics today. This work is a sequel to Battin's 1994 volume The Least Worst Death. Battin's new collection covers a remarkably wide range of end-of-life topics, including suicide prevention, AIDS, suicide bombing, serpent-handling and other religious practices that pose a risk of death, genetic prognostication, suicide in old age, global justice and the "duty to die." It also examines suicide, physician-assisted suicide, and euthanasia in both American and international contexts.

  • Erectile Dysfunction: Options for Men after Spinal Cord Injury

    This is an educational brochures from the Rocky Mountain Regional Spinal Cord Injury System. This document covers several treatment options to help increase the number of erections and how long they last. These options include medications, penile implants, and sexual aids.

  • Exceptional Parent

    Exceptional Parent Magazine - parenting those with disabilities or special health care needs.

  • "Far From The Tree: Parents, Children And The Search For Identity," Andrew Solomon. (Scribner, 2012)

    From the National Book Award–winning author of The Noonday Demon: An Atlas of Depression comes a monumental new work, a decade in the writing, about family. In Far from the Tree, Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. Solomon’s startling proposition is that diversity is what unites us all.

  • Fire Safety for Wheelchair Users

    This pamphlet, created by the United Spinal Association, gives important tips to handle situations before and during a fire, and to address fire prevention within homes. The tips are a model that can be modified and adjusted to fit the varying types of homes and structures. 

  • "Follow Your Dream," Connie Panzarino (National Spinal Cord Injury Association,1995)

    This is a story about JT, a four-year-old with spinal bifida, going on an adventure. His magic shoes and races combine for a great story. Written for and by children with spinal cord injury, for ages 9-12 years. (Free to families with a child with a spinal cord injury) Email:, Phone: (800) 962-9629

  • "From There to Here: Stories of Adjustment to Spinal Cord Injury," Ed. Karp, Gary and Stanley D. Klein, Ph.D (No Limits Publications, 2004)

    "From There to Here: Stories of Adjustment to Spinal Cord Injury," is made up of forty-five personal essays by people with spinal cord injuries. It is designed to bring hope, but not by inspiration, as it illustrates the real and complex process of how people respond to sudden and overwhelming change. The heart of these stories is what happened in between--the actually journey to adjustment, acceptance, meaning and possibility--the journey to "Here."

  • "Haloman: A Memoir of Survival Against All Medical Odds," Goodfried, Alan (Createspace, 2011)

    “Haloman: A Memoir of Survival Against All Medical Odds,” is Alan Goodfried’s story of waking up in hospital after eight days of being in a medically induced coma. He neither has memory of falling and breaking his neck nor of the risky and life threatening neck surgery that followed. No stranger to medical adversity, his discovery of what’s happened to him is the beginning of his struggle – against all medical odds – to insure that his life isn’t shattered by this traumatic injury.

  • "Help For Children from Infancy to Adult," Miriam J. Williams Wilson (Rocky River Publishers, 2005)

    This book offers a diverse directory for wide range of resources for children from infancy to adulthood by Miriam J. Williams Wilson.

  • "Letters to Sam: A Grandfather's Lesson on Love, Loss, and the Gifts of Life," Sam Gottleib (Sterling, 2006)

    In the tradition of such bestsellers as "Tuesdays with Morrie" and "Riding the Bus with My Sister," this is touching inspirational collection of letters from a grandfather to his grandson. The author, who has quadriplegia, feared that he might not live long enough to see his newborn grandson, Sam, reach adulthood. However, when Sam, only 14-months-old, was diagnosed with Pervasive Developmental Disability, a form of autism, suddenly everything changed

  • Mad Spaz Wheelchair Club

    Mad Spaz Wheelchair Club promotes living life to the fullest.  They offer information on disability adventures, support and resources for wheelchair users and their families.

    Where to Start:

    Start by scrolling down to homepage to read disability-related articles.  Also check out the Forums to exchange ideas and information.  

  • Male Fertility Following Spinal Cord Injury: A Guide for Patients, Second Edition

    This booklet, created by the Miami Project’s Male Fertility Research program, provides information about changes in male sexual function and fertility that may accompany spinal cord injury (SCI), and outlines the options available to deal with such changes.
    Where to Start
    Scroll down to page four, to read the table of contents. From there, pick a topic of interest, such as “Erectile Function and Treatments” and “Methods for Achieving Pregnancy.”
  • "Mayo Clinic Guide to Living with a Spinal Cord Injury: Moving Ahead with Your Life," The Mayo Clinic (Demos Health, 2009)

    This book was developed by leading Mayo Clinic experts, and covers a wide variety of spinal cord injury related topics such as emotional adjustments, sexuality, skin care, and adaptive equipment . This independence-granting book encourages readers to resume their favorite hobbies, participate in athletic activities, and return to the workplace quickly and safely.


  • Medical University of South Carolina - Spinal Cord Injury Research Team

    The Medical University of South Carolina’s Spinal Cord Injury Research Team research goal is to help better understand the life situation of our people with spinal cord injuries, and to identify factors that may be used to promote better life outcomes.   Their research ranges from studies on pressure sores to education and employment outcomes for people with spinal cord injuries

    Where to Start:

    Sign up for the research program’s newsletter, or check out their blog to keep up with the latest research on spinal cord injuries.  


  • "Miracle Boy Grows Up: How the Disability Rights Revolution Saved My Sanity," Ben Mattlin. (Skyhorse Publishing, 2012)

    Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.
  • is an online magazine for women in wheelchairs, created by women in wheelchairs, who were having difficulty finding answers to their questions about health, fashion, and other topics. Their mission is to bring together current and accurate information on issues of interest to our community.  It is a website where can women unite to ask questions and share experiences. Most of all, this site is a place where we can learn from each other.

  • "My Left Foot," Christy Brown (Mandarin Paperback, 1990)

    This is the inspiring autobiography of Christy Brown, a man who was born with cerebral palsy in Ireland in 1932. The book describes how Brown faced challenges posed by his disability by learning to write with his left foot, the only limb he seemed to be able to control. The story is the source of the 1989 Academy-Award-nominated movie, "My Left Foot: The Story of Christy Brown."

  • National Sexuality Resource Center - Sex and Disability

    The National Sexuality Resource Center’s section on Sex and Disability is a network for people looking for information on sex after spinal cord injuries. NSRC believes that moving society closer to understanding the sexual realities of people with disabilities will result in greater freedom and expanded sexual literacy for all of us.

    Where to Start

    Scroll through the articles to find information on sex and disability.  

  • New Mobility

    This is the website for the magazine, "New Mobility." Its mission is to encourage "the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy." The site offers current news updates, feature articles, and book recommendations.

    Where to Start:
    Some of the departments and features are restricted to subscribers, but you will find opinion articles in the blog, Tremors of the Internet, which address relevant issues and welcomes feedback. This is accessible from the Blog tab at the top of the page.

  • Pain after Spinal Cord Injury

    Pain is a serious problem for many people with spinal cord injuries (SCI). Pain after SCI can occur in parts of the body where there is normal sensation (feeling) as well as areas that have little or no feeling. The pain is very real and can have a negative impact on quality of life. A person in severe pain may have difficulty carrying out daily activities or participating in enjoyable pastimes. 

    Where to Start

    Follow this link to learn more about the different types of pain many experience after SCI, and the ways it is can be treated. 

  • Paralysis Resource Guide

    The Paralysis Resource Guide, produced by the Christopher & Dana Reeve Foundation, is a reference and lifestyle tool for people affected by paralysis. The book includes details on medical and clinical subjects related to all causes of paralysis, as well as health maintenance information. The fully-illustrated book provides a detailed overview of biomedical research, assistive technology, sports and recreation activities, legal and civil rights, social security and benefits, and numerous lifestyle options.

    Where to Start

    The Paralysis Resource Guide (third edition) is a free 442-page book, a comprehensive, illustrated information tool for people affected by paralysis and for those who care for them. The guide is available in multiple electronic formats and hard copy. Follow this link to find more informaiton. 

  • Paralyzed Veterans of America

    The PVA's mission is to improve the quality of life of its members by advocating for improved health care, research, education and awareness of disability rights and programs for veterans. The website focuses primarily on injured veterans; however, the information on disability rights and sports and recreation applies to veterans and non-veterans alike.

    Where to Start: The Disability Rights page, accessed from the left-hand menu, is a useful place to obtain information about what's being done on Capitol Hill to enable and protect veterans and others living with disabilities. The Medical Services section can connect veterans to the closest Paralyzed Veterans of America Spinal Cord Injury Center.

  • Personal Care Assistants - How to Find, Hire and Keep Them

    This section, found on the Craig Hospital website, offers suggestions on how to deal with a personal care assistant (PCA). There are tips on saving money, organizing and evaluating your needs and tips on keeping your PCA happy and responsible.

  • "Physician's Guide to Caring for Children with Disabilities and Chronic Conditions," Robert Nickel and Larry W. Desch (Brookes Publishing, 2000)

    Edited by Robert Nickel and Larry W. Desch this book is a good, comprehensive resource that discusses the needs of the school age child living with spinal cord injury.

  • Pregnancy for Women with Spinal Cord Injury

    This information sheet, created by the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS), discusses the issues of pregnancy such as planning and managing, as well labor and delivery.  

  • Preservation of Upper Limb Function Following Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals

    This guideline is designed to educate health-care professionals and persons with spinal cord injury on the risk of upper limb pain and injury, including recommendations for assessment, management, and monitoring. Published by Paralyzed Veterans of America on behalf of the Consortium for Spinal Cord Medicine.

    Where to Start

    Follow this link to download the packet for free.

  • "Rebecca Finds A New Way," by Connie Panzarino (National Spinal Cord Injury Association, 1994, rev 2003)

    This book was produced by the National Spinal Cord Injury Association through a PVA Education and Training Foundation grant. It's about a young girl, Rebecca, who sustains a spinal cord injury. What changes are in store? What's it like to be a kid living with spinal cord injury? Written for and by children with spinal cord injury, for ages 4-8 years. (Free to families with a child with a spinal cord injury) Email: Phone: (800) 962-9629

  • "Red Riding Hood Races the Big Bad Wolf," Richard Paul (Twilight Press, 1999)

    This is a fun-filled, educational, ability awareness story with a message. Red Riding Hood views her wheelchair as ability to race and defeat the big bad wolf to Grandma's house. Suitable for ages 3-7.

  • Rehab Management

    "Rehab Management" is an online features articles rehabilitation. While the publication is directed to rehabilitation professionals, the articles are informative and a useful source for the latest news on medical research and advancements.

    Where to Start:
    The Media Center at the bottom of the homepage contains Archives of all previous issues. Click on Newsletters and go to Monthly Top Ten for the most popular recent articles.

  • "Rescuing Jeffrey: A Memoir," Galli, Richard (St. Martin's Griffin, 2001)

    On July 4, 1998, the lives of the Galli family changed forever when their 17-year-old son dove into a pool, and broke his neck. "Rescuing Jeffery," is a father's first-person account of the first 10 days following his son spinal cord injury, which resulted in quadriplegia. He and his wife weigh the option of ending their son's life, as he had become ventilator-dependent. This book will strongly point out that possibility, but, more importantly, it reinforces the strength of the human spirit, the will to live, and the compassion of one's friends and neighbors.

  • Respiratory Management Following Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals

    This guide, created by the Consortium for Spinal Cord Injury Medicine, answers many of the questions about respiratory health that may arise after a spinal cord injury. 

    Where to Start

    Follow the link to download the packet for free.
  • Safe Transfer Technique

    Transferring in and out of a wheelchair puts higher stress on arms and shoulders than anything else one may do on a regular basis. Learning the correct way to transfer is extremely important in order to keep  arms functioning and pain-free.

    Where to Start

    Scroll down to the Safe Transfer Rules and Technique to find important tips and information on transfering

  • Scientists Make Paralyzed Rats Walk Again After Spinal cord Injury: Sept. 21, 2009

    This article details a recent update on a discovery made by UCLA researchers that might be a step toward improved rehabilitation for people with Spinal Cord Injury. In their tests, researchers have found that, with administration of drugs and electrical stimulation, they can cause paralyzed rats to walk and bear their weight while guided on a treadmill

  • Sexuality and Reproductive Health in Adults with Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals

    Created by the Consortium for Spinal Cord Medicine, "What You Should Know" explores a range of topics related to sexuality and sexual function after spinal cord injury. The guide was developed with the belief that all people who want to be sexually active after Spinal Cord Injury should have the knowledge they need to make that decision and be comfortable with their sex life whatever their level of injury. With straightforward facts and discussions of the wide range of topics affecting sexuality, the guide not only provides current medical information but can serve as a tool for making the conversation about sexuality after Spinal Cord Injury easier to have. 

    Where to Start

    Follow the link to download the packet for free.

  • Skin Care and Pressure Sores in Spinal Cord Injury

    A pressure sore is an area of the skin or underlying tissue (muscle, bone) that is damaged due to loss of blood flow to the area. They are the most common and sometimes life-threating medical complication of spinal cord injury.

    Where to Start

    Begin by scrolling through the MSKTC six-part series, which cover over topics such as Causes and Risks, Prevention, and Building Skin Tolerance.

  • "Speedway Sam," Nancy Glover (The Board of Trustees of the University of Alabama, 1991)

    This book, by Nancy Glover, tells the story of an 8 year old boy, Sam, who sustains a spinal cord injury, and explains in a child's words how Sam deals with the life changes after his injury. Glover also discusses prevention measures.

  • Spinal Cord Injuries Australia

    Spinal Cord Injuries Australia is an international resource that promotes independence, and continues today with a proud history of providing consumer based support and rehabilitation services to people with physical disabilities. They aim to create a society without barriers for people with spinal cord injuries.

    Where to Start:

    Start by clicking on Stories to hear other people’s personal journeys through life after a spinal cord injury.  

  • Spinal Cord Injuries Scotland

    Spinal Injuries Scotland (SIS) has existed for 50 years since its initial inception as the Scottish Paraplegic Association in 1960. Later its name changed to the Scottish Spinal Cord Injury Association (SSpinal Cord InjuryA), as its focus developed from purely sport into dealing with other aspects of living with the injury. In 1994 the SSpinal Cord InjuryA became SIS and since then our focus has been primarily education, advice and support for people with a spinal cord injury, their family, friends and those that care for them.

    Where to Start:

    Start by clicking on the Magazine tab to learn more about Spinal Cord Injury and the organization.

  • "Spinal Cord Injury and the Family: A New Guide," Alpert, Michelle J. MD, Cindy Purcell, Ted Purcell and Saul Wisnia (Harvard University Press, 2008)

    Physiatrist Dr. Michelle Alpert's clinical experience with patients' own stories, "Spinal Cord Injury and the Family" is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive. Dr. Alpert is the Director of Rehabilitation Medicine, Hebrew Rehabilitation Center, and Clinical Instructor in Physical Medicine and Rehabilitation, Harvard Medical School. She was the founder and first director of the Spinal Cord Injury Program at Spaulding Rehabilitation Hospital.

  • Spinal Cord Injury Overview - Cleveland Clinic

    The Cleveland Clinic a nonprofit multispecialty academic medical center that integrates clinical and hospital care with research and education.  Their website is provided by Cleveland Clinic to benefit patients, the general public and healthcare professionals, and offers great information on spinal cord injury.

  • "Spinal Cord Injury: A Guide for Living," Kriegsman, Kay Harris PhD, Jeffrey B. Palmer MD and Sara Palmer PhD (The Johns Hopkins University Press, 2008)

    "Spinal Cord Injury: a Gudide for Living" is the definitive guide for people with a spinal cord injury and their families. Combining first-person accounts with up-to-date medical information, the book addresses all aspects of spinal cord injury--recovery and coping, sex and family matters, transportation and housing, employment and leisure--and reviews the challenges encountered by people with spinal cord injury throughout their lives.

  • "Spinal Cord Injury: A Guide for Patients and Families," Dobkin, Bruce M.D. and Michael Selzer M.D (Demos Health, 2008)

    This well-written, reliable overview of traumatic spinal-cord injury and its treatment is essential reading for all patients, family members, and caregivers who want a better understanding of the condition. In simple, everyday English, it explains the anatomy of the spine, the results of injury, and treatment and management issues encountered during rehabilitation. A glossary of commonly used terms and website resources offer tools for further study, while the latest scientific research helps patients make informed medical decisions that promote optimum healing.

  • Spinal Cord Resources Network (SCRN)

    The CEO of the SCRN became tetraplegia in a hit-and-run accident, which resulted in lost employment opportunities due to his disability. This led him and his wife to the realization that there were very few resources available to and opportunities for individuals with spinal-cord injuries to lead safe and meaningful lives. To that end, they created the SCRN to spread awareness of these issues, and get information and news to the disabled community and their caregivers.

    Where to Start:
    Scroll down through the home page to find update-to-date news articles and posts on topics such as Emergency Preparedness and disability-related Legislation. If you have a relevant article not covered by the SCRN, select Share a Story on the main toolbar. There you will find contact information and post credentials. Help is greatly welcomed.

  • "Spinal Network: The Total Resource Book" (Leonard Media Group, 2009)

    "Spinal Network" is the essential resource for making important life choices after a spinal cord injury, multiple sclerosis, post-polio syndrome, amputation, ALS and other conditions. This information-packed book explores options in health, technology, attendant services, employment, travel, sports, relationships, sexuality and parenting. It explains--in clear language--the intricacies of legal rights, government benefits and cure research. 

  • Sports 'n Spokes

    SPORTS 'N SPOKES is a bimonthly publication produced by the Paralyzed Veterans of America. S'NS reports on competitive sports and recreation for wheelchair users. Since 1975, S'NS has been a leader in wheelchair sports coverage and currently goes to more than 43 countries worldwide. SPORTS 'N SPOKES is committed to providing a voice for the wheelchair sporting and recreation community.

  • Stem Book

    Stem Book is a collection of original, peer-reviewed chapters on various aspects of stem-cell biology written by top researchers in the field at the Harvard Stem Cell Institute and worldwide. This is the place to find serious, in-depth scholarly research.

    Where to Start:
    Select Contents from the menu bar at the top. Here you'll find a list of all the topics and articles covered by the website.

  • "Steps to Independence: Teaching Everyday Skills to Children with Special Needs," Bruce L. Baker, Ph.D., & Alan J. Brightman, Ph.D., with Jan B. Blacher, Ph.D., Louis J. Heifetz, Ph.D., Stephen R. Hinshaw, Ph.D., & Diane M. Murphy, R.N (Brookes Publishin

    Written by Bruce L. Baker, Alan Brightman, et al, this book is a hands-on resource for parents that gives proven strategies to teach the life skills children from age 3 through young adulthood need to live as independently as possible. Easy-to-read; step-by-step guide; updates available.

  • "Tell It Like It Is," Connie Panzarino (National Spinal Cord Injury Association, 1997)

    Produced by the National Spinal Cord Injury Association through a PVA Education and Training Foundation grant, this book gives actual accounts about life with spinal cord injury; teens talk about their personal experiences with Spinal Cord Injury. Written for and by children with Spinal Cord Injury, for ages 12-18 years. Free to families with a child with a Spinal Cord Injury. Email: Phone: (800) 962-9629


  • "The Best Seat in the House: How I Woke Up One Tuesday and Was Paralyzed for Life," Allen Rucker. (HarperCollins, 2008)

    The Best Seat in the House is Rucker's unpretentious, unapologetic, refreshingly comic, and powerfully heartfelt paean to life and its fragility, and to the resilience and adaptability of a single, normal, very funny human being.

  • "The Least Worst Death: Essays in Bioethics on the End of Life," (Oxford University Press, 1994).

    This book, written by Margaret P. Battin, one of the foremost experts on issues involving death and dying, offers insight into the controversial and often difficult topics of withdrawing and withholding care, euthanasia, and suicide. An extensive introduction identifies the principal ethical issues, and the book explores such dilemmas as rationing health care for the elderly, whether there is a "duty to die," counseling in rational suicide, the risks of abuse with active euthanasia, religious views about suicide, whether suicide can be understood as a fundamental human right, and others.


  • The Wheelchair Series: What the Spinal Cord Injury Consumer Needs to Know

    The wheelchair is a complex piece of equipment that has been extensively engineered and studied. Most individuals with SCI become wheelchair experts because doing so increases their chances of getting a wheelchair that truly meets their needs. So, it is critical to get help.

    Where to Start

    The MSKTC factsheet says while it is not possible to teach you all there is to know in a single handout, the topics on Getting the Right Wheelchair, The Manual Wheelchair and The Power Wheelchair include some of the most important information.


  • Today's Caregiver

    The website for Today's Caregiver Magazine offers helpful online resources. Newsletters, back issues of magazines and group forums can be accessed here. A unique feature, this site offers a kitchen guide for caregivers, complete with recipes and articles.

    Where to Start:
    Selecting the Channels tab at the top will give you a variety of categories to look through, such as the Mobility Channel. You may also want to take a glance at Caregiver Stories for insightful and inspiring articles as well as forums in which to discuss caregiver issues.

  • United Spinal Association Publications

    This webpage offers publications that are available for free download covering a variety of topics related to spinal cord injury, including disability etiquette, mobility options and advocacy.

    Where to Start:
    Begin by clicking on Free Downloads to sign up for unlimited free publications.

  • "Why I Burned My Book and Other Essays on Disability, Paul K. Longmore. (Temple University Press, 2003)

    This wide-ranging book shows why Paul Longmore is one of the most respected figures in disability studies today. Understanding disability as a major variety of human experience, he urges us to establish it as a category of social, political, and historical analysis in much the same way that race, gender, and class already have been. The essays here search for the often hidden pattern of systemic prejudice and probe into the institutionalized discrimination that affects the one in five Americans with disabilities. 

  • Yellow Pages for Kids with Disabilities

    The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists.

    Where to Start:
    Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state.

  • "Yes, You Can!: Guide to Self-Care for Persons with Spinal Cord Injury, 4th ed.," Ed. Burns, Stephen P., M.D and Margaret C., M.D. Hammond. (Paralyzed Veterans of America, 2009)

    Published by the Paralyzed Veterans of America, 'Yes, You Can!," is designed for both the newly injured patient, and their family members. Written by experts in the field of spinal-cord injury, it is an extremely popular guide to subjects such as: self-care, sexuality, pain management, substance abuse, exercise, alternative medicine, adaptive equipment, and staying healthy.

  • "You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children With Disabilities," Stanley D. Kline and Kim Schive (Kensington, 2001)

    This book of personal stories of parents of children living with a disability complied by Stanley D. Kline and Kim Schive.

  • Youreable

    Founded by Joe Rajko, a charity worker from Leeds, England, after winning the Channel 4 eMillionaire show, Youreable is a European website based in Great Britain which provides information, products and services for the disabled community. Here you'll find news, forums, articles on finances and caregiving, and adaptive products.

    Where to Start:
    Select the Life tab at the top to find helpful articles on money, driving, work, travel, health, equipment and entertainment.