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Pediatric spinal cord injuries differ greatly from adult onset injuries in their nature, severity and implications for a child’s future. This section includes information on the specific problems, conditions and concerns of pediatric spinal cord injuries and resources that focus specifically on children and their families.

  • "A House for All Children," (New Jersey Institute of Technology, 2000)

    This book provides many architectural suggestions, guidelines and resources for making a home safe and accessible for children with special needs.

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  • AbleData

    Sponsored by the US Department of Education's National Institute on Disability and Rehabilitation Research (NIDRR), AbleData provides an extensive list of assistive devices. Product listings contain a short description and information on price, manufacturer and where to find it. This resource can assist you in learning about new developments in assistive technology and do-it-yourself ideas.

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  • AblePlay

    AblePlay is a consumer website for families and professionals with ratings and reviews of toys for children with disabilities. The website features comprehensive evaluations by Lekotek's special education and therapy experts and provides star ratings (1 - 5 stars) in four disability categories: physical, sensory, comunicatitve, cognitive, and social/emotional.

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  • Adapted Photography - Naturally Farber Photos

    David Farber's strong desire to resume his life-long love of photography inspired his quest to become the first photographer in a motorized wheelchair to access the remote Alaskan wilderness. After surviving a motorcycle accident that resulted in a broken back, rib cage, collar bone, C6 fracture, shattered cheek bone, and the right side of his skull crushed, Farber created a special utility frame to balance his camera with one arm and a breath-activated camera switch. He has been triplegic since 1981 and continues to navigate remote terrains in his electric wheelchair to capture bold images of grizzly bears, eagles, otters, and other wildlife. In 2014, Farber authored a book describing his extraordinary travels, entitled "Travel by Wheelchair by the Grace of God" which is available on Amazon. He enjoys responding to any inquiries about photography by email at raptorphoto@sbcglobal.net.

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  • Adapting a Home for Wheelchair Accessibility

    There are several ways to create a more accessible space for a person who uses a wheelchair. Some options include: altering an existing floor plan, building an addition, coverting existing rooms, or buying a new home. The following guidelines are provided by the Rehabilitation Institute of Chicago to assist in planning for wheelchair accessible housing. Dimensions and tips are provided for entrances and exits, doorways, door handles, thresholds, hallways, floors, outlets and switches, telephones, furniture, bathroom toilet, sink, bathtub, roll-in shower, kitchen turning radius, countertops, refrigerator, sink, sotrage, stove, microwave, washer and dryer, bedroom bed, closet, and dresser. Figures are based upon ADA Guidelines for Buildings and Facilities.

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  • Adaptive Adventures

    Adaptive Adventures provides progressive outdoor sports opportunities to improve quality of life for children, adults, and veterans with physical disabilities and their families. Programs include alpine ski and snowboard, cycling, dragon boat racing, kayaking, rock climbing, sailing, scuba, water-ski and wakeboard, and whitewater rafting.

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  • Adaptive Fishing

    "There are many people who have fished all of their lives, then they incur a disability and kind of give up.....the truth of the matter is, getting back into the stream of life through adaptive fishing is possible!" This consumer education sheet from Disabled Sports USA provides practical ideas for adaptive fishing with links to adaptive fishing equipment vendors and organizations.

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  • After the Injury

    This website was developed by an interdisciplinary team of researchers and practitioners with expertise in pediatric injury, child health care, and traumatic stress at the Center for Injury Research and Prevention at the Children's Hospital of Philadelphia. Through cutting-edge research on the effects of injury on children and their parents, After The Injury was created for families looking to learn more on how to help their injured child respond in a healthy way.

     

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  • Air Travel Tips for People with Disabilities

    Planning ahead and understanding how airlines can support your travel needs can pave the way for successful air travel. This consumer education presentation outlines key points for creating a positive air travel experience with tips on understanding your rights, things to consider when making a reservation, the check in process, transport to and from the gate, getting through security, getting on the plane, stowing your wheelchair, equipment, and devices, getting off the plane and to baggage, and other personal considerations.

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  • American Association of adaptedSPORTS Programs

    AAASP is dedicated to creating a "national network of interscholastic adapted athletic programs." The focus is on ensuring that children grades 1-12 with physical disabilities are not left out of athletic competition in their schools. AAASP's comprehensive training program allows administrators, coaches, and officials to acquire the knowledge they need to be successful. Professional coach and official training enables high quality adaptedSPORTS programming in wheelchair handball, wheelchair basketball, wheelchair football, and wheelchair track and field for its member school districts.

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  • American Association of People with Disabilities

    The AAPD is a national nonprofit member organization focused on advocacy and on making the voice of the disability community heard. This group sponsors career and leadership programs for disabled individuals and promotes legislative action to create a more accessible world. Persons with disabilities are encouraged to join AAPD to participate in coalition activities to advocate in education, workplace & employment, health, housing, technology, transportation, interfaith organizations, as well as supporting international best-practices, advocacy for veterans, and voting. The AAPD Summer Internship Program places college, graduate, and law students in paid 10-week summer internships in Congressional offices, federal agencies, non-profit and for-profit organizations in Washington, DC. Disability Mentoring Day is a large-scale notional effort coordinated by AAPD to promote career development. Disability statistics, demographics and trends are addtionally provided through the Resource tab of this website.

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  • "Are We There Yet?" Verna Allette Wilkins (Tamarind Books, 2002)

    Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

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  • "Aunt Katie's Visit," Katie Rodriguez Baxter (Access-4-All, 2006)

    This book, by Katie Rodriguez Baxter, is a wonderful resource to begin a discussion with children about differences and abilities; useful for teachers and parents.

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  • Back in Life: Moving on after a Spinal Cord Injury - Zack Weinstein (2006)

    Zack Weinstein was canoeing with a group of friends down the Saco River, in Maine. While jumping into a shallow part of the river, Zack broke his neck. At nineteen-years-old he became a C5-C6 Quadriplegic. In service to others facing life-altering injuries, the short film Back in Life was created. By sharing Zack's powerful experiences, the film may provide others with needed strength in an oftentime daunting situation.

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  • "Back to School Success: Stories of Success on Campus" by Stephanie D. Lollino (2015)

    Going to college is a major life change for anyone, and it may present an especially daunting challenge for wheelchair users. This article from New Mobiity magazine provides helpful tips for transitioning to college and achieving a positive campus experience.

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  • "Boots For a Bridesmaid," Verna Allette Wilkins (Tamarind Books, 2002)

    Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

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  • CareCure Community

    Choose from over 70 forums in which hundreds of users are able to interact, share pictures, and post comments. Questions can be posed to an experienced spinal cord injury  nurse who will post back and forth with you helping you find answers and define questions you can ask your doctor. You can also follow what's new in research as well as read articles by research professor and founding director of the W.M. Keck Center for Collaborative Neuroscience Dr. Wise Young who answers questions and posts on topics surrounding disability. The Spinal Cord Injury Community Forums can be a place to find answers to questions, inspirational stories, and empathy. Follow the threads to view questions and answers from others in your situation, post your own concerns, and receive feedback.

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  • Center for Assistive Technology

    The Center for Assistive Technology (CAT) provides information and referral services on assistive technology to people in the Western New York Region including a topy and equipement lending center for families in early intervention programs, child care centers, family child care homes, and early intervention service providers. It was established within the School of Health Related Professions in 1988. CAT conducts research, education and service programs in assistive technology for persons with disabilities and the elderly, in four related areas: research, development, and commercialization, education programs, client assessment and training services and dissemination.

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  • Center for Parent Information and Resources

    The Center for Parent Information & Resources offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth. Scroll down the Resources page to view an array of information on K-12 issues for accommodations at school, career and college readiness, the IEP process, how to develop effective practices and enable parent advocacy. This website also identifies Parent Technical Assistance Centers (PTACs) by state.

     

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  • Champ Camp

    Champ Camp is a camp for children and adolescents, ages six and up, who have tracheostomies and those that require respiratory assistance, including the use of ventilators. Many campers also have unique physical challenges, including quadriplegia. In the main toolbar, select Camper to view Camper Criteria to see if your child meets the necessary camper qualifications.  

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  • Children's Hospital and Health System of Wisconsin

    Children's Hospital and Health System is an independent health care system dedicated solely to the health and well-being of children. The 12 entities that make up the health system work to improve the lives of children everywhere through care giving, advocacy, research and education.

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  • Children's Hospital Association

    The Children’s Hospital Association advances child health through innovation in the quality, cost and delivery of care with our children’s hospitals. CHA represents 220 children’s hospitals, which set the standard for the highest quality pediatric care while training the next generation of pediatricians. With its members, the CHA champions policies that enable children’s hospitals to better serve children; leverages its position as the pediatric leader in data analytics to facilitate national collaborative and research efforts to improve performance; and spreads best practices to benefit the nation’s children. Click on "Directories" on the top toolbar to find a hospital near you.

     

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  • Children's Hospital Boston

    Children's Hospital Boston is a 396-bed comprehensive center for pediatric health care. As one of the largest pediatric medical centers in the United States, Children's offers a complete range of health care services for children from birth through 21 years of age.

    Children's records approximately 25,600 inpatient admissions each year, and our 228 specialized clinical programs schedule more than 543,100 visits annually. Additionally, the hospital performs 25,800 surgical procedures and 200,000 radiological examinations every year.  

     

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  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. The Foundation's Paralysis Resource Center provides a robust collection of resources that span key areas of life. Scroll down to obtain a FREE 442 page Paralysis Resource Guide in hard copy or electronic format, Wallet Cards on autonomic dysreflexia, deep vein thrombosis, and sepsis. The Resource Center also provides a Peer Mentor program to support life-long learning. Persons interested in connecting with someone to answer questions directly via phone or email can do so through the "Ask Us Anything" link.

     

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  • Connecticut Youth Leadership Project (CTYLP)

    The Connecticut Youth Leadership Project (CTYLP) is a youth leadership program that empowers youth with disabilities to realize their leadership potential. Through self-awareness and team building activities, young adults explore leadership styles to develop and implement team and personal leadership plans.  Although this program only runs in Connecticut, their goal is to help youth with disabilities meet the challenges of the future, overcome obstacles and become leaders so that they can make a difference in their communities and for others with disabilities.

     

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  • Create Your Own Personal Health Record

    An important step in advocating for your loved one includes organizing information that supports daily care. A personal health record is a tool that enables consumers to manage health information so they can communicate more effectively and easily with health care providers. This consumer education sheet provides a basic template to help you begin the process of creating a personal health record. Additional links to other commercially available products to help track information are provided as well.

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  • "Disability Parking Publications and Forms" - Illinois

    This website from the Illinois Secretary of State Office lists several publications and forms for persons with disabilities who live in Illinois: Application for Illinois Disabled Person Identification Card, Application for a replacement parking placard, Parking program for persons with disabilities, Certification for disability license plate, Certification for parking placard, and What you should know about Accessible Parking. If you do not live in the state of Illinois, check your state specific Secretary of State Office or Department of Transportation website to identify similar information.

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  • Disability Rights Education and Defense Fund

    The Disability Rights Education and Defense Fund, founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. The mission of the Disability Rights Education and Defense Fund is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development. The Special Education Resources section provides an array of consumer information sheets to help parents and students with disabilities.

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  • Disabled Sports USA

    Disabled Sports USA is a national nonprofit organization established in 1967 by disabled Vietnam veterans to serve injured members of the US military. Now, DS/USA offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions. On the main tool bar, click Chapters and then select your state of residence. From there, you'll be able to find information on adaptive programs for you or your child in your area.

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  • Driving Following an Injury or Disability

    For many people, being able to drive provides a sense of independence and freedom. This consumer education sheet from the Rehabilitation Institute of Chicago will help you and your family understand how a disability or injury can affect driving and the process for participating in a driver's rehabilitation program.

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  • Emerging Leaders - College Internships

    The Emerging Leaders Insternship Program for College Students with Disabilities, funded by the UPS Foundation and coordinated by the National Business and Disability Council (NBDC) at the VIscardi Center, is a highly competitive program that places top undergraduate and graduate college students with disabilities in fulfilling internships nationwide that also provide them with meaningful leadership development and networking opportunities.

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  • Family Benefits Solutions, Inc.

    Family Benefits Solutions, Inc. (FBS) is dedicated to protecting and supporting the well-being of familes with special needs. FBS helps families to obtain an objective view of their personal situation, become more knowledgeable about available benefit programs, play an integral role in the application process and ensure future beneifts are sustained.  Family Benefits Solutions helps families to make long-term decisions during a journey that can be filled with uncertainty, difficult choices, emotional weariness and a feeling of "not knowing what is out there." Their goal is to help families reach a more comfortable today and a peaceful tommorrow.

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  • Family Resource Center on Disability (FRCD)

    The Family Resource Center on Disabilities (FRCD) was a pioneer as a coalition that covered all disabilities.  FRCD was organized in 1969 by parents, professionals, and volunteers who sought to improve services for all children with disabilities, with efforts to educate and train parents, professionals, and volunteers. Click on Resources at the top toolbar to explore many sources of help for parents of children with disabilities.

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  • Gillette Children's Specialty Healthcare

    Gillette Children's Specialty Healthcare is an independent, not-for-profit hospital located in St. Paul, Minnesota, with clinics in Duluth, Burnsville, Maple Grove, Minnetonka, and services for adult patients at our St.Paul - Phalen Clinic. Gillette is internationally renowned for a level of pediatric expertise that distinguishes us from many health care organizations.

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  • GirlsHealth.Gov

    Girlshealth.gov was created in 2002 by the U.S. Department of Health and Human Services’ (HHS) Office on Women’s Health  (OWH) to help girls (ages 10 to 16) learn about health, growing up, and issues they may face. Girlshealth.gov promotes healthy and positive behaviors in girls, giving them reliable and useful health information in a fun, easy-to-understand way. The website also provides information  on Illness & Disability to help teach girls wiht disabilities, family members, and friends about healthy living.

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  • GovBenefits.gov

    Created through a partnership of federal agencies, this website is an excellent tool for finding and accessing the government programs designed to help you. The website offers the option to search for benefits according to category, state, or federal agency. Select Benefits at the top and decide how you would like to search for available benefits from the options under the tab. A good way to start is by selecting Start Benefit Finder to help you decide which benefits to look for.

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  • Guide for Parents: Educational Accommodation-Descriptions and Comparison of Section 504 and IDEA (IEP)

    By law, students with disabilities are entitled to appropriate accommodations and modifications to assist in achieving and maintaining educational success. This resource, from the Rehabilitation Institute of Chicago LIFE Center, provides detailed descriptions of the 504 Plan and Individual Education Plan (IEP) so you can become informed and prepared to work with your child's or own education team to create an optimal learning experience.

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  • HEALTH Resource Center at the National Youth Transition Center

    The HEALTH Resource Center is a national clearinghouse of educational resources for individuals with disabilities. Managed by the George Washington University Graduate School of Education and Human Development. Explore the Center's Resources and Publications for information and advice about making decisions and overall preparation for entering college with a disability. Frequently Asked Questions can also assist parents whose children are making this transition.

     

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  • HealthFinder.gov

    Healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations. This government website is designed to help you and those you care about stay healthy. Health Topics A to Z provides information on health conditions and diseases, nutrition and physical activity, doctor visits, everyday healthy living, pregnancy and parenting.

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  • Helping Youth Develop Soft Skills for Job Success: Tips for Parents and Families

    Soft skills help youth succeed in life no matter what they are doing. This consumer education sheet from the National Collaborative on Workforce and Disability provides helpful hints to enhance and develop communication skills, interpersonal skills, decision making skills, and a desire for lifelong learning.

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  • IN*SOURCE - the Indiana Resource Center for families with Special Needs

    IN*SOURCE is a parent organization that provides support services and educational resources to Indiana families. Through the work of staff and many volunteers, virtually all of whom are parents of persons with disabilities, IN*SOURCE provides parents, families and service providers in Indiana the information and training necessary to assure effective educational programs and appropriate services for children and young adults with disabilities. IN*SOURCE also provides an array of resources to allow parents to quickly assist their children - regardless if the topic is bullying in school or how to transition their child from school into adult life.

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  • Infinitec: Infinite Potential through Technology

    Infinitec provides information about assistive technology as well as training, equipment, and access to specialists and resources. The program leverages the power of technology to advance independence and promote inclusion opportunities for children and adults with disabilities. Explore this website to discover  how technology can support individuals at play and work.

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  • International Center for Spinal Cord Injury at Kennedy Krieger Institute

    The International Center for Spinal Cord Injury (ICSpinal Cord Injury) at Kennedy Krieger Institute was founded on the philosophy that individuals with paralysis can always hope for recovery of sensation, function, mobility, and independence, months and even years after injury. The program offers a coordinated continuum of care with services for individuals at all phases of recovery, including an in-patient hospital unit, home- and community-based services, and outpatient specialty programs. Located in Baltimore, Maryland, ICSpinal Cord Injury is one of the first facilities in the world to combine innovative research with a unique focus on restoration and rehabilitation for children and adults with chronic paralysis. The School Programs at Kennedy Krieger Institute has recieved awards in leadership and special education. Explore the Special Education section to learn more about programs and events at schools in Baltimore, Washington, DC, and other partnership programs across Maryland.

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  • Kentucky Spinal Cord Injury Research Center

    As one of twelve spinal cord injury research centers in the U.S., the Kentucky Spinal Cord Injury Research Center is dedicated to developing effective treatments for both adult and children who live with a spinal cord injury.  This goal is guided by our mission: "to develop successful spinal cord repair strategies in the laboratory that can be taken to the clinic in a timely and responsible fashion".

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  • Life Rolls On Foundation

    Jessie Billauer started the Life Rolls On Foundation in 1999 after he became quadriplegic in a surfing accident.  It's mission is to be a resource and advocate for young people whose lives have been affected by spinal cord injury. The foundation focuses on promoting an active lifestyle despite mobile impairment as shown in their flagship program, "They Will Surf Again." This is a no-cost adaptive surfing program for individuals with a spinal-cord injury. Explore the event calendar to learn about upcoming activities and volunteer opportunities.

     

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  • MedlinePlus Spinal Cord Injury

    MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations to give easy access to medical journal articles, information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. The section on spinal cord injuries provides specific information on diagnosis, tests, prevention, and treatment as well as videos and tutorials, statistics and research, clinical trials, and journal articles.

     

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  • Middle School and High School Transition Planning

    Parents of youth with disabilities should begin thinking about transition (planning for adulthood) as early as possible. Although the formal process of transition planning doesn't begin until high school, it is helpful to begin thinking about it much sooner. PACER's National Parent Center on Transition and Employment provides various consumer education sheets to assist with this process, including information on Individuals with Disabilities Education Act (IDEA) and Individualized Education Progorams (IEPs), College Planning, and Preparing for Employment.

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  • Mouth & Foot Painting Artists

    Members of Mouth and Foot Painting Artists (MFPA) paint with brushes held in their mouths or feet as a result of disability that prohibits them from using their hands. MPFA in an international non-profit association wholly owned and controlled by artists with disabilities to meet their finanical needs. Explore their website to learn more about each artist and see examples of their work. "In the News" and the newsletter "The Canvas" highlights various events and accomplishments of artists in North America.

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  • National Center for Medical Home Implementation

    The mission of the National Center is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), to ensure that children with special needs have access to a medical home. The National Center provides support to physicians, families, and other medical and non-medical providers who care for children and youth with special needs. The Families and Caregivers page includes tools, resources, and links to information to assist families in successfully partnering with their child's medical home professionals.

     

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  • National Center on Physical Activities and Disabilities Fun and Leisure Summer Camps for Children with Disabilities

    This National Center on Physical Activity and Disability factsheet provides a list of summer camps by state to assist children and adults with disabilities in finding a camp that fits their interests, needs, and goals. Programs range from day and overnight camps, to specialized sports and arts and crafts. Click on sections of the Table of Contents at the right toolbar to identify Camp Guides and Online Camp Resources.

     

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  • National Center on Physical Activity and Disability

    This informational website offers extensive resources on living an active life with a disability. The NCPAD offers information on adaptive sports and recreation, such as sled hockey, adapted martial arts, and camping as well as how to access them. Here you'll find lists of accessible parks in your area, pages on various adapted sports, and articles and videos on health and fitness. The section on Spinal Cord Injury provides information on the importance of exercise, the best exercise for persons with SCI, important considerations when exercising, cardiovascular, strength, and flexibility training guidelines.

     

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  • National Child Traumatic Stress Network

    The National Child Traumatic Stress Network was established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. The Resources section provides materials on child traumatic stress arranged by audiences, topics, and online research. 

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  • National Collaborative on Workforce and Disability for Youth

    The National Collaborative on Workforce and Disability for Youth assists state and local workforce development systems to better serve all youth, including youth with disabilities. This resource center partners with expertise in education, youth development, disability, employment, workforce development and family issues to provide extensive resources that can assist families in developing youth leadership and workforce skills, self-advocacy, and other key skills that support successfull community integration and independence. Click on Publications by Topic to explore briefs, fact sheets, guides, and white papers.

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  • National Wheelchair Basketball Association

    An injury doesn't mean a passion for sports has to end. The NWBA highlights the presence of wheelchair users in the basketball community. On this website, you'll learn about the top competitors in wheelchair basketball and find the latest news in international wheelchair basketball competition. In addition, there are forums that cover sports and statistics, as well as health and fitness for wheelchair users. Click on "Our Leagues" and explore Divisions to learn more about wheelchair basketball tournaments and invitationals, as well as college-ball athletes and team rankings.

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  • National Wheelchair Softball Association

    With over 30 teams nationwide, wheelchair softball is gaining momentum as a summer sport. Here you'll find contact information for local teams, how to get involved as a player, coach or supporter. To learn more about a team in your state, explore the Active Team listing. You can also view photos and game videos.

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  • PACER Center: Champions for Children with Disabilities

    PACER Center is a parent training and information center for families of children and youth with all disabilities from birth to young adults. Located in Minneapolis, it serves families across the nation, as well as those in Minnesota. Parents can find publications, workshops, and other resources to help make decisions about education, vocational training, employment, and other services for their children with disabilities. PACER's YouTube Channel offers many helpful vidos on a variety of subjects, including assistive technology, speical education, and bullying prevention.

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  • PACER's National Parent Center on Transition and Employment

    PACER's National Parent Center on Transition and Employment provides quality information and resources for families of young adults with disabilities on transition planning, civil rights, work-based learning, career accommodations, higher education, financial aid, and much more. It serves as a comprehensive source of information designed to support families' varied needs.

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  • Shriners Hospital Pediatric Spinal Cord Rehabilitation Programs

    Shriners Hospitals for Children is a health care system of 22 hospitals dedicated to improving the lives of children by providing specialty pediatric care, innovative research and teaching programs. Children up to the age of 18 with orthopedic conditions, burns, spinal cord injuries and cleft lip and palate are eligible for admission and receive all care in a family-centered environment with no financial obligation to patients or families. Three locations specialize in pediatric spinal cord injury medicine and rehabilitation; they are located in Sacramento, Ca, Chicago, IL and Philadelphia, PA. Transportation is also provided at no cost.

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  • "Social Security-Benefits for Children with Disabilties" (Social Security Administration, 2016)

    This booklet, from the Social Security Administration, is for the parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It is also for adults who became disabled in childhood (prior to 22), and who might be entitled to Social Security Disabiltiy Insurance (SSDI) benefits. (We call this SSDI benefits a "child's" benefit because it's paid on a parent's Social Security earnings record.) This booklet will help you decide if your child, or a child you know, might b eligible for SSI or Social Security.

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  • Special Needs Answers

    The purpose of this site, sponsored by the Academy of Special Needs Planners, is to provide a general overview of strategies parents and others can use to plan for their own futures and for those of family members with special needs. Topics include information on Estate Planning, Special Needs Trusts, Financial Planning, SSI and SSDI, Settlement Planning, Public Beneifits, and Disability Issues.  This site also provides a directory of Special Needs Planners by state.
     

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  • "Special Needs Trusts: Protect Your Child's Financial Future - 5th Edition" (Nolo, 2013)

    If you care for a child or other loved one with a disability, you've no doubt thought about what will happen when you're no longer able to give that care. Special Needs Trust shows you how to leave any amount of money to your disabled loved one without jeopardizing government benefits.

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  • Spinal Cord Injury: Hope through Research

    Published by the National Institute of Neurological Disorders and Stroke, this online pamphlet provides an overview of spinal cord injury describing how the spinal cord works, what happens when it is injured, how injuries are diagnosed and classified and how rehabilitation helps with recovery.

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  • Support for Families of Children with Disabilities (SFCD)

    Support for Families of Children with Disabilities (SFCD) is a parent-run San Francisco-based nonprofit organization founded in 1982. They support families of children with any kind of disability or special health care need as they face challenges.  The purpose of Support for Families is to ensure that families of children with any kind of disability or special health care need have the knowledge and support to make informed choices that enhance their children's development and well being. Through fostering partnership among families, professionals and the community our children can flourish. Explore SFCD Services to identify support options.

     

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  • Tips for Teens: Use Your IEP Meetings to Learn How to Advocate for Yourself

    This consumer education sheet provided by the PACER Center provides useful tips for teens in developing self-advocacy skills. It provides information on how to begin to express needs and wants by participating in their Individualized Education Program (IEP) meetings. At these meetings, teens can learn ways to talk about their disability to others, set goals, build teamwork skills, ask for accommodations and practice other self-advocacy skills. This single copy form from the PACER publication catalog is for your personal, noncommercial use only. For permission to reprint multiple copies or to order presentation-ready copies for distribution, complete the PACER Reprint Form at www.pacer.org/forms/request.asp or PACER Publication Order Form at ww.pacer.org/publications/OrderForm.pdf

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  • University Accessibility after Spinal Cord Injury - Going to College video

    What is it like to attend a college or university after spinal cord injury? The biggest hurdle is often your perception or confidence in yourself. Once you make the decision that you are ready to attend college, your campus disability services office is available to help with the details. These professionals will coordinate academic accommodations, such as accessible classrooms, note- and test-taking assistance, and e-books, as well as environmental accessibility for classrooms, dorms, and on-campus transporation. This video provides candid remarks from students who have attended school after injury with reflections on how to enjoy the social aspects of college life, like participating in sports, clubs, theater and Greek life, as well as making new friends.

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  • We Can Go Anywhere: My Adventures on Daddy's Chair, Glen Dick. (Black Rose Writing, 2016)

    In this beautiful example of a child's innocence we are taught that a little imagination can take us a long way. What the rest of the world sees as a limitation becomes a great source of adventure and freedom. Little Elaina shows her dad there is much more to him than meets the eye, and in the process proves that love knows no limitations.

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  • Wheelchair Site

    The Wheelchair Site is an independent website designed to help you understand the challenges faced by people with physical limitations. It also includes helpful information for people who rely on mobility aids - including tips on choosing the right wheelchair. We also discuss the different product options - including manual wheelchairs, electric wheelchairs, motorized wheelchairs, pediatric wheelchairs, scooters, walkers, wheelchair lifts, wheelchair vans and various wheelchair accessories

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  • Yellow Pages for Kids with Disabilities

    The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists. Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state. A specific listing of Nation-wide Parent Training and Information Centers and Community Parent Resource Centers is also provided on this website.

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  • "You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children With Disabilities," Stanley D. Kline and Kim Schive (Kensington, 2001)

    This book of personal stories of parents of children living with a disability complied by Stanley D. Kline and Kim Schive.

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