Pediatric Spinal Cord Injury

• "A House for All Children," (New Jersey Institute of Technology, 2000)

  

  This Site Features: Publications

  This book provides many architectural suggestions, guidelines and resources for making a home safe and accessible for children with special needs.

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• AbleData

  

  This Site Features: Medical Research Reports Publications

  Sponsored by the US Department of Education's National Institute on Disability and Rehabilitation Research (NIDRR), AbleData provides an extensive, well-organized list of assistive devices. Product listings contain a short description and information on price, manufacturer and where to find it. This is an excellent resource for finding available adaptive equipment and learning about new developments in assistive technology and do-it-yourself ideas.

  Where to Start:
  Select the Products tab at the top. This shows a list of product categories such as Aids for Daily Living, Communication and Environmental Adaptations. Select the category of the product you need and browse the extensive database to see what technology is available to you.

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• AblePlay

  

  AblePlay is a consumer website for families and professionals with ratings and reviews of toys for children with disabilities. The website features comprehensive evaluations by Lekotek's special education and therapy experts and provides star ratings (1 - 5 stars) in four disability categories

   
  Where to Start:
  In the top tool bar, select Search AblePlay Rated Products.  This will lead you to a Search Toys questionnaire, which generates suggestions based on a child’s ability.  
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• After the Injury

  

  This website was developed by an interdisciplinary team of researchers and practitioners with expertise in pediatric injury, child health care, and traumatic stress at the Center for Injury Research and Prevention at the Children's Hospital of Philadelphia. Through cutting-edge research on the effects of injury on children and their parents, After The Injury was created for families looking to learn more on how to help their injured child respond in a healthy way.

  Where to Start:
  On the home page, scroll down to the Quick Link section. Here you will find information on links such as Making a Care Plan and Tips for Parents.

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• American Association of adaptedSPORTS Programs

  

  This Site Features: Publications

  AAASP is dedicated to creating a "national network of interscholastic adapted athletic programs." The focus is on ensuring that disabled children grades 1-12 are not left out of athletic competition in their schools. Already, the adaptedSPORTS Model is in use in some states. Here you can learn about various sports, like wheelchair football or power soccer, and get information on how to get involved in the movement.

  Where to Start:
  The Parent link at the bottom offers a packet of useful resources and FAQs. Training Publications provides information about playing and coaching with an adaptedSPORTS program.

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• American Association of People with Disabilities

  

  This Site Features: Publications

  The AAPD is a national nonprofit member organization focused on advocacy and on making the voice of the disability community heard. This group sponsors career and leadership programs for disabled individuals and promotes legislative action to create a more accessible world. Here you can learn about the latest in advocacy news and find job postings from companies that support equal employment practices.

  Where to Start:
  Look through the options in the drop-down menu under the Programs tab to learn about current AAPD projects such as the Disability Vote Project and the Technology Initiative.

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• American Association of Retired Persons Grandparent Foundation Information Center

  

  This Site Features: Español Forums Publications

  This section of the AARP website provides articles and information for grandparents who play an active role in their grandchildren's lives. The website offers extensive information on finding government aid programs, legal advice, tips on grandparenthood, and caregiving. There are a variety of resources including "Grandparenting a Child with Special Needs."

  Where to Start:
  Under More Information, select the GrandCare Support link. Click on Search Form, and fill in your information. This will direct you to programs in your area that specifically apply to your needs as a grandparent.

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• "Are We There Yet?," Verna Allette Wilkins (Tamarind Books, 2002)

  

  Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

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• "Aunt Katie's Visit," Katie Rodriguez Baxter (Access-4-All, 2006)

  

  This delightful book, by Katie Rodriguez Baxter, is a wonderful resource to begin a discussion with children about differences and abilities; useful for teachers and parents.

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• Beach Center on Disability

  

  The Beach Center on Disability, a permanent unit of The University of Kansas, aims to make a significant and sustainable difference in the quality of life of families and individuals affected by disability and of those who are closely involved with them.  They are a major international center for research and other scholarship, teaching and learning, and service to the citizens of Kansas, the United States of America, and people throughout the world. 

  Where to Start:

  Start by selecting Families to find more information on the program and helpful resources.  

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• "Boots For a Bridesmaid," Verna Allette Wilkins (Tamarind Books, 2002)

  

  Delightfully illustrated, well written story about everyday activities of families living with a spinal cord injury for young or early school age children.

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• CareCure Community

  

  This Site Features: Forums Publications

  Chose from over 70 forums in which hundreds of users are able to interact, share pictures, and post comments. Questions can be posed to an experienced spinal cord injury  nurse who will post back and forth with you helping you find answers and define questions you can ask your doctor. You can also follow what's new in research as well as read articles by research professor and founding director of the W.M. Keck Center for Collaborative Neuroscience Dr. Wise Young who answers questions and posts on topics surrounding disability.

  Where to Start:
  The Caregiving forum can be a place to find answers to questions, inspirational stories, and empathy. Following the New SCI forum threads will lead you to questions and answers from others in your situation, and allow you to post your own concerns and receive feedback.

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• Center for Assistive Technology

  

  The Center for Assistive Technology (CAT) was established within the School of Health Related Professions in 1988. CAT conducts research, education and service programs in assistive technology for persons with disabilities and the elderly, in four related areas: research, development, and commercialization, education programs, client assessment and training services and dissemination.

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• Champ Camp

  

  Champ Camp is a camp for children and adolescents, ages six and up, who have tracheostomies and those that require respiratory assistance, including the use of ventilators. Many campers also have unique physical challenges, including quadriplegia.

  Where to Start:

  In the main toolbar, select Camper and then click on Camper Criteria.  Here you can learn more about the program to see if your child meets the necessary camper qualifications.  

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• Children's Hospital and Health System of Wisconsin

  

  Children's Hospital and Health System is an independent health care system dedicated solely to the health and well-being of children. The 12 entities that make up the health system work to improve the lives of children everywhere through care giving, advocacy, research and education.

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• Children's Hospital Boston

  

  This Site Features: Español

  Children's Hospital Boston is a 396-bed comprehensive center for pediatric health care. As one of the largest pediatric medical centers in the United States, Children's offers a complete range of health care services for children from birth through 21 years of age.

  Children's records approximately 25,600 inpatient admissions each year, and our 228 specialized clinical programs schedule more than 543,100 visits annually. Additionally, the hospital performs 25,800 surgical procedures and 200,000 radiological examinations every year.  

   

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• Christopher & Dana Reeve Foundation

  

  This Site Features: Español Forums Publications

  The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. Ask Our Expert is a useful way to connect to someone who can answer your questions directly via phone or email.

  Where to Start:
  Select Get Help from the menu on the right and scroll down to Start here if you are new to spinal cord injury. This section offers basic information and resources including a free book called the "Paralysis Resource Guide" and links to the Reeve Foundation Paralysis Community. For medical research information, click Research on the left of the homepage, which takes you to detailed information about basic research, clinical trials, and leading scientists and their work.

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• Connecticut Youth Leadership Project (CTYLP)

  

  The Connecticut Youth Leadership Project (CTYLP) is a youth leadership program that empowers youth with disabilities to realize their leadership potential. Through self-awareness and team building activities, young adults explore leadership styles and develop and implement team and personal leadership plans.  Although this program only runs in Connecticut, their goal is to help youth with disabilities meet the challenges of the future, overcome obstacles and become leaders so that they can make a difference in their communities and for others with disabilities.

  Where to Start:
   
  On the side toolbar, select Apply.  Here you’ll find details on how to apply, along with a downloadable application form. 

   

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• Disabled Children's Relief Fund

  

  Disabled Children's Relief Fund (DCRF), a non-profit 501(c)(3) organization, provides disabled children with assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eyeglasses, medical equipment, physical therapy, and surgery. DCRF focuses special attention on helping children throughout the U.S. that do not have adequate health insurance, especially the physically challenged.

  Where to Start:

  Select Services on the top toolbar to download an application.  Grant applications may be used for modest awards for assistive devices, rehabilitative services, arts and humanities projects, or for efforts to bolster compliance with existing laws for the benefit of children with disabilities. Applications may be submitted by families (parent or guardian) for an individual child, or by a non-profit organization for a small group of children.  

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• Disabled Sports USA

  

  Disabled Sports USA is a national nonprofit organization established in 1967 by disabled Vietnam veterans to serve injured members of the US military. Now, DS/USA offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.

  Where to Start:
  On the main tool bar, click Chapters and then select your state of residence. From there, you'll be able to find information on adaptive programs for you or your child in your area.

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• Exceptional Parent

  

  Exceptional Parent Magazine - parenting those with disabilities or special health care needs.

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• Family Resource Center on Disability (FRCD)

  

  The Family Resource Center on Disabilities (FRCD) was a pioneer as a coalition that covered all disabilities. FRCD was formerly known as the Coordinating Council for Handicapped Children. FRCD was organized in 1969 by parents, professionals, and volunteers who sought to improve services for all children with disabilities, with efforts to educate and train parents, professionals, and volunteers.

  Where to Start:

  If you want to get involved with the FRCD and live in Ilinois, start by selecting Events/Workshops on the maintool bar.

   

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• "Follow Your Dream," Connie Panzarino (NSCIA, 1995)

  

  Connie Panzarino, in collaboration with Janna Jacobs and Jim McAleer; produced by NSCIA through a PVA Education and Training Foundation grant. JT, age four with spinal bifida, goes on an adventure. Magic shoes and races combine for a great story. Written for and by children with spinal cord injury, for ages 9-12 years. (Free to families with a child with a spinal cord injury) Email: info@spinalcord.org Phone: (800) 962-9629

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• Gillette Children's Specialty Healthcare

  

  Gillette Children's Specialty Healthcare is an independent, not-for-profit hospital located in St. Paul, Minnesota, with clinics in Duluth, Burnsville, Maple Grove, Minnetonka, and services for adult patients at our St.Paul - Phalen Clinic. Gillette is internationally renowned for a level of pediatric expertise that distinguishes us from many health care organizations.

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• GirlsHealth.Gov

  

  Girlshealth.gov was created in 2002 by the U.S. Department of Health and Human Services’ (HHS) Office on Women’s Health  (OWH) to help girls (ages 10 to 16) learn about health, growing up, and issues they may face. Girlshealth.gov promotes healthy and positive behaviors in girls, giving them reliable and useful health information in a fun, easy-to-understand way. The website also provides information to parents and educators to help them teach girls about healthy living.

  Where to Start:

  Select the Illness and Disability tab on the main toolbar.   Here you will find information on spinal cord injuries and other disability related issues

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• HealthFinder.gov

  

  Healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations to bring you the best, most reliable health information on the Internet.

  Where to Start:

  Scroll down the maintool bar to find the information you are looking for.

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• "Help For Children from Infancy to Adult," Miriam J. Williams Wilson (Rocky River Publishers, 2005)

  

  This book offers a diverse directory for wide range of resources for children from infancy to adulthood by Miriam J. Williams Wilson.

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• Information Connections

  

  Information Connections, a website for parents of children with developmental disabilities and chronic diseases was developed by the Marianjoy Medical Library with funding from the National Library of Medicine.The website will serve as an information portal to resources and websites with a special focus on autism, cerebral palsy, ADHD, Down syndrome, and traumatic brain injury, among others. Easy access will simplify and enhance parent’s abilities to gather accurate information about developmental problems.

   

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• International Center for Spinal Cord Injury at Kennedy Krieger Institute

  

   The International Center for Spinal Cord Injury (ICSCI) at Kennedy Krieger Institute was founded on the philosophy that individuals with paralysis can always hope for recovery of sensation, function, mobility, and independence, months and even years after injury. Another realization was that children are most likely to benefit from intense rehabilitation. ICSCI is one of the first facilities in the world to combine innovative research with a unique focus on restoration and rehabilitation for children and adults with chronic paralysis.

  Where to Start:

  Select Our Program on the left toolbar.  Here you will find information on the ICSCI rehabilitation method to see if your child qualifies.

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• KidSource OnLine

  

  KidSource OnLine was created and by a group of parents who wanted to make a positive and lasting difference in the lives of parents and children.  They believe that parents and caregivers want to take greater responsibility for their children's health and education, but don't always have the right information, resources or advice to do so.  KidSource OnLine’s goal is to provide that knowledge and advice to help individuals better raise and educate their children.

  Where to Start:

  Start by selecting Health to find healthy and disability related information.

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• "Letters to Sam: A Grandfather's Lesson on Love, Loss, and the Gifts of Life," Sam Gottleib (Sterling, 2006)

  

  In the tradition of such bestsellers as "Tuesdays with Morrie" and "Riding the Bus with My Sister," this is touching inspirational collection of letters from a grandfather to his grandson. The author, who has quadriplegia, feared that he might not live long enough to see his newborn grandson, Sam, reach adulthood. However, when Sam, only 14-months-old, was diagnosed with Pervasive Developmental Disability, a form of autism, suddenly everything changed

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• Life Rolls On Foundation

  

  This Site Features: Publications

  Jessie Billauer started the Life Rolls On Foundation in 1999 after he became quadriplegic in a surfing accident.  It's mission is to be a resource and advocate for young people whose lives have been affected by spinal cord injury. The foundation focuses on promoting an active lifestyle despite mobile impairment as shown in their flagship program, "They Will Surf Again." This is a no-cost adaptive surfing program for individuals with a spinal-cord injury.

  Where to Start:
  Click on the Programs tab on the menu at the top. Here you can learn about the various initiatives that Life Rolls On offers, such as "They Will Surf Again," or the networking events for "Active Young Professionals."

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• MedlinePlus Spinal Cord Injury

  

  This Site Features: Español Publications

  MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations to give easy access to medical journal articles, information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

  Where to Start:
  This link will lead you to MedlinePlus' spinal cord injury home page. Here you'll find basic information and resources on adult and pediatric spinal cord injuries.

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• My Summer Camps: Special Needs

  

  My Summer Camps is an online directory of summer camps. The website offers extensive lists of camp programs for children with special needs in the US and Canada.

  Where to Start:
  Select Physical Disabilities to get a list of more than 70 camps for children with physical disabilities. Enter your location information or scroll through to find programs that fit your child's needs.

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• National Association of Children's Hospitals and Related Institutions (NACHRI) and the National Association of Children's Hospitals (NACH)

  

  NACHRI and NACH are national non-profit organizations of children's hospitals, large pediatric units of medical centers and related health systems, including those that specialize in rehabilitative care of children with serious chronic or congenital illnesses. They work to ensure children's access to health care and the continuing ability of children's hospitals to provide services needed by children.

  Where to Start:
  Under Find a Children's Hospital, select Children's Specialty Hospital and enter your state of residence. This will direct you to hospitals in your area that specifically treat to Pediatric Spinal Cord Injuries.

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• National Center for Medical Home Implementation

  

  The mission of the National Center is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), to ensure that children with special needs have access to a medical home. The National Center provides support to physicians, families, and other medical and non-medical providers who care for children and youth with special needs.

  Where to Start:

  On the top tool bar, select Getting Started.  Here you will find tips and resources for making a home accessable for children with disabilities.

   

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• National Center on Physical Activities and Disabilities Fun and Leisure Summer Camps for Children with Disabilities

  

  This National Center on Physical Activity and Disability factsheet provides a list of summer camps by state to assist children and adults with disabilities in finding a camp that fits their interests, needs, and goals. Programs range from day and overnight camps, to specialized sports and arts and crafts.

  Where to Start:
  Scroll through the fact sheet for general information, then through the listings for your state.

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• National Center on Physical Activity and Disability

  

  This Site Features: Forums Medical Research Reports Publications

  This informational website offers extensive resources on living an active life with a disability. The NCPAD offers information on adaptive sports and recreation, such as sled hockey, adapted martial arts, and camping as well as how to access them. Here you'll find lists of accessible parks in your area, pages on various adapted sports, and articles and videos on health and fitness.

  Where to Start:
  Select Programs from the menu at the left. Then, click on your state and the city nearest you. This leads to a list of local programs with a short description and the contact information for each.

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• National Child Traumatic Stress Network

  

  The National Child Traumatic Stress Network was established to improve access to care, treatment, and services for traumatized children and adolescents exposed to traumatic events. This section of NCTSN.org provides information about the Network itself.

  Where to Start:

  Start by selecting Trauma Types and then click on Medical Trauma to find more information about SCI.

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• National Dissemination Center for Children with Disabilities (NICHCY)

  

  This Site Features: Español Publications

  NICHY offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth.

  Where to Start:
  Select State Specific Information and then enter your state of residence. This will direct you to state agencies, disability specific categories, and organizations for disability and for parents.

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• National Family Caregivers Association

  

  This Site Features: Forums Publications

  The National Family Caregivers Association is an organization of empowerment for caregivers. Here you'll find educational tools on caring for your loved one and tips on advocacy. In addition to the information and resources offered, the NFCA also connects caregivers through forums, pen pal programs and the Caregiver Story Project through which you can share your own situation and read other caregivers' stories.

  Where to Start:
  Select Caregiving Resources from the top. This section provides links to publications, websites and tools for caregiving. Start by selecting Tips and Tools and browsing the how-to guides, intended to offer preparation and support as you take on the role of caregiver.

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• National Organization on Disability

  

  This Site Features: Publications

  NOD strives to make the nation more accessible to the millions of Americans with disabilities. It sponsors programs and initiatives that encourage employment of individuals with disabilities, and dialogue on current accountability issues across the nation. Here you will learn about the advocacy programs that are in progress as well as what's been accomplished so far to create a nation that encourages and creates opportunities for participation from disabled individuals.

  Where to Start:
  The NOD Programs page, accessed from the left menu, provides a list of programs that have been established, such as the "Start on Success Student Internship Program," or the "Accessible America Award" that recognizes cities and towns that facilitate comprehensive involvement of citizens with disabilities in community life. The Information & Resources link on the right, under Quick Links provides many more organizations and useful fact sheets and articles.

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• "Physician's Guide to Caring for Children with Disabilities and Chronic Conditions," Robert Nickel and Larry W. Desch (Brookes Publishing, 2000)

  

  Edited by Robert Nickel and Larry W. Desch this book is a good, comprehensive resource that discusses the needs of the school age child living with spinal cord injury.

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• "Rebecca Finds A New Way," by Connie Panzarino (NSCIA, 1994, rev 2003)

  

  This Site Features: Publications

  This book was produced by NSCIA through a PVA Education and Training Foundation grant. Rebecca hurts herself and has a spinal cord injury. What changes are in store? What's it like to be a kid living with spinal cord injury? Written for and by children with spinal cord injury, for ages 4-8 years. (Free to families with a child with a spinal cord injury) Email: info@spinalcord.org Phone: (800) 962-9629

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• "Red Riding Hood Races the Big Bad Wolf," Richard Paul (Twilight Press, 1999)

  

  This is a fun-filled, educational, ability awareness story with a message. Red Riding Hood views her wheelchair as ability to race and defeat the big bad wolf to Grandma's house. Suitable for ages 3-7.

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• SeriousFun Children's Network

  

  Formally known as the Association of Hole in the Wall Camps, the SeriousFun Network was created by, Paul Newman, who had this vision: imagine if children with serious illnesses had the chance to simply be children. To just have fun. So he started a camp where kids could, in his words, “raise a little hell.” Today, we continue Paul’s legacy with SeriousFun Children’s Network, a growing global community of innovative camps and programs that create opportunities for children and their families to reach beyond serious illness and discover joy, confidence and a new world of possibilities—always free of charge.

  Where to Start:

  Start by selecting Programs to find information on what's going on in your area.

   

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• Shriners Hospital Pediatric Spinal Cord Rehabilitation Programs

  

  Shriners Hospitals for Children is a health care system of 22 hospitals dedicated to improving the lives of children by providing specialty pediatric care, innovative research and teaching programs. Children up to the age of 18 with orthopedic conditions, burns, spinal cord injuries and cleft lip and palate are eligible for admission and receive all care in a family-centered environment with no financial obligation to patients or families. Three locations specialize in pediatric spinal cord injury medicine and rehabilitation; they are located in Sacramento, Ca, Chicago, IL and Philadelphia, PA. Transportation is also provided at no cost.

  Where to Start:
  Select Hospitals by Specialty, and scroll down to Spinal Cord Injury. Select the regional hospital closest to you, and then click Apply for Care. Applications are available in English, Spanish and French on the website, by mail, phone, and email.

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• Special Needs Answers

  

  The purpose of this site, sponsored by the Academy of Special Needs Planners, is to provide a general overview of strategies parents and others can use to plan for their own futures and for those of family members with special needs. 

  Where to Start:

  Click on the Resources tab on the top tool bar and then select State Resource Center.  Under State Information, click on your state to find attorneys in your area.  

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• "Speedway Sam," Nancy Glover (The Board of Trustees of the University of Alabama, 1991)

  

  This book, by Nancy Glover, tells the story of an 8 year old boy, Sam, who sustains a spinal cord injury, and explains in a child's words how Sam deals with the life changes after his injury. Glover also discusses prevention measures.

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• Spinal Cord Injury: Hope through Research

  

  Published by the National Institute of Neurological Disorders and Stroke, this pamphlet is an extensive guide to spinal cord injuries and treatment.

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• Starlight Foundation

  

  The authors cover the causes of and prognosis for spinal cord injury through case studies, review common courses of rehabilitation, and answer the "what now?" questions--from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with spinaI cord injury. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

  Where to Start:
  Under Browse All Programs by Category or Condition Below, select an area of interest, for example, Family Activities. Then select a program within the category, which will lead to an activity description along with an application link.

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• "Steps to Independence: Teaching Everyday Skills to Children with Special Needs," Bruce L. Baker, Ph.D., & Alan J. Brightman, Ph.D., with Jan B. Blacher, Ph.D., Louis J. Heifetz, Ph.D., Stephen R. Hinshaw, Ph.D., & Diane M. Murphy, R.N (Brookes Publishin

  

  Written by Bruce L. Baker, Alan Brightman, et al, this book is a hands-on resource for parents that gives proven strategies to teach the life skills children from age 3 through young adulthood need to live as independently as possible. Easy-to-read; step-by-step guide; updates available.

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• "Tell It Like It Is," Connie Panzarino (NSCIA, 1997)

  

  Produced by NSCIA through a PVA Education and Training Foundation grant, this book gives actual accounts about life with spinal cord injury; teens talk about their personal experiences with SCI. Written for and by children with SCI, for ages 12-18 years. Free to children with SCI. (Free to families with a child with a SCI) Email: info@spinalcord.org Phone: (800) 962-9629

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• Testaverde Fund For Spinal Cord Injury

  

  The Testaverde Fund for Spinal Cord Injury was  formed in 2003 as a means of raising funds for spinal cord injury research and providing community outreach and educational programs. The Testaverde Fund supports research being done by The Spinal Cord Injury Project at The State University of  New Jersey at Rutgers, under the leadership of Dr. Wise Young. In their labs, state of the art molecular, genetic and cellular research.

   
  Where to Start:
   
  Scroll sown the main toolbar to find information on SCI and the family.
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• United Spinal Association Publications

  

  This Site Features: Español Medical Research Reports Publications

  This webpage offers publications that are available for free download covering a variety of topics related to spinal cord injury, including disability etiquette, mobility options and advocacy.

  Where to Start:
  Begin by clicking on Free Downloads to sign up for unlimited free publications.

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• Yellow Pages for Kids with Disabilities

  

  This Site Features: Español Medical Research Reports Publications

  The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists.

  Where to Start:
  Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state.

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• "You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children With Disabilities," Stanley D. Kline and Kim Schive (Kensington, 2001)

  

  This book of personal stories of parents of children living with a disability complied by Stanley D. Kline and Kim Schive.

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