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These websites feature medical information regarding the anatomical and physical aspects of spinal cord injuries. Here you’ll also find a variety of statistical information on spinal cord injuries.

  • "Acute Management of Autonomic Dysreflexia: Individuals with Spinal Cord Injury Presenting to Health-Care Facilities" (Paralyzed Veterans of America, 2001)

    Autonomic dysreflexia (AD), with its sudden and severe rise in blood pressure, is a potentially life-threatening condition that can occur in anyone with a spinal cord injury at or above thoracic level six (T6). The resolution of AD requires quick and decisive treatment. Spinal cord medicine health-care providers are very familiar with the diagnosis and treatment of AD. However, because of the rapid onset of AD and the potentially severe symptoms, individuals with this condition are often rushed to the nearest health-care facility that may be staffed by health-care providers who have little or no experience in the treatment of AD. This is a free electronic publication.

     
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  • ADA Project Fact Sheet - Employment Issues

    This factsheet developed by Equipped for Equality outlines the relationship between the Illinois Worker's Compensation Act, American's with Disabilties Act (ADA), and the Family Medical Leave Act (FLMA).

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  • Adapting a Home for Wheelchair Accessibility

    There are several ways to create a more accessible space for a person who uses a wheelchair. Some options include: altering an existing floor plan, building an addition, coverting existing rooms, or buying a new home. The following guidelines are provided by the Rehabilitation Institute of Chicago to assist in planning for wheelchair accessible housing. Dimensions and tips are provided for entrances and exits, doorways, door handles, thresholds, hallways, floors, outlets and switches, telephones, furniture, bathroom toilet, sink, bathtub, roll-in shower, kitchen turning radius, countertops, refrigerator, sink, sotrage, stove, microwave, washer and dryer, bedroom bed, closet, and dresser. Figures are based upon ADA Guidelines for Buildings and Facilities.

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  • Air Travel Tips for People with Disabilities

    Planning ahead and understanding how airlines can support your travel needs can pave the way for successful air travel. This consumer education presentation outlines key points for creating a positive air travel experience with tips on understanding your rights, things to consider when making a reservation, the check in process, transport to and from the gate, getting through security, getting on the plane, stowing your wheelchair, equipment, and devices, getting off the plane and to baggage, and other personal considerations.

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  • American Association of Neurological Surgeons

    Founded in 1931 as the Harvey Cushing Society, the American Association of Neurological Surgeons (AANS) is a scientific and educational association with over 8,000 members worldwide. The AANS is dedicated to advancing the specialty of neurological surgery in order to provide the highest quality of neurosurgical care to the public. The Patient Information tab on the main toolbar, provides a wide range of consumer information on Conditions and Treatments.    

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  • American Spinal Injury Association (ASIA)

    ASIA establishes and promotes standards of excellence for all aspects of health care of individuals with spinal cord injury from onset throughout life. One of ASIA's primary missions is to educate members, other healthcare professionals, patients and their families as well as the public on all aspects of spinal cord injury and its consequences in order to prevent injury, improve care, increase availability of services and maximize the injured individual’s potential for full participation in all areas of community life. The Public Information link on the left toolbar provides a variety of consumer education information on durable medical equipment, clinical trials, and general guidelines for selecting SCI rehabilitation programs.

     

     

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  • ASIA Impairment Scale

    The ASIA impairment scale classifies motor and sensory impairment that results from a Spinal Cord Injury.  It divides spinal cord injuries into 5 categories, A-E, with optional clinical syndromes.

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  • Autonomic Dysreflexia Wallet Card - Christopher and Dana Reeve Foundation

    It is important to become knowledgeable about Autonomic Dysreflexia (AD) if you have a spinal cord injury at the T6 level or above. AD can cause a medical emergency and even be life threatening. This emergency wallet card provides crucial information regarding Autonomic Dysreflexia for spinal cord injury survivors, their family, and emergency response professionals. There are two versions; an adult card in dark blue and a pediatric card in light blue -- please note the difference in the medication dosages.

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  • Being Your Own Advocate: Living with a Disability or Chronic Illness

    Learning to advocate for yourself or loved one is an important step in coping with a disability or chronic illness. This consumer education sheet from the Rehabilitation Institute of Chicago provides some basic tips to help you and others gain a sense of empowerment.

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  • BrainandSpinalCord.org

    Sponsored by Newsome Melton, LLP, BrainandSpinalCord.org is a resource to help brain and/or spinal cord injury survivors and their families learn more about medical conditions, rehabilitation, and legal options that can support long-term financial stability.

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  • Center for Parent Information and Resources

    The Center for Parent Information & Resources offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth. Scroll down the Resources page to view an array of information on K-12 issues for accommodations at school, career and college readiness, the IEP process, how to develop effective practices and enable parent advocacy. This website also identifies Parent Technical Assistance Centers (PTACs) by state.

     

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  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. The Foundation's Paralysis Resource Center provides a robust collection of resources that span key areas of life. Scroll down to obtain a FREE 442 page Paralysis Resource Guide in hard copy or electronic format, Wallet Cards on autonomic dysreflexia, deep vein thrombosis, and sepsis. The Resource Center also provides a Peer Mentor program to support life-long learning. Persons interested in connecting with someone to answer questions directly via phone or email can do so through the "Ask Us Anything" link.

     

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  • Create Your Own Personal Health Record

    An important step in advocating for your loved one includes organizing information that supports daily care. A personal health record is a tool that enables consumers to manage health information so they can communicate more effectively and easily with health care providers. This consumer education sheet provides a basic template to help you begin the process of creating a personal health record. Additional links to other commercially available products to help track information are provided as well.

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  • "Disability Parking Publications and Forms" - Illinois

    This website from the Illinois Secretary of State Office lists several publications and forms for persons with disabilities who live in Illinois: Application for Illinois Disabled Person Identification Card, Application for a replacement parking placard, Parking program for persons with disabilities, Certification for disability license plate, Certification for parking placard, and What you should know about Accessible Parking. If you do not live in the state of Illinois, check your state specific Secretary of State Office or Department of Transportation website to identify similar information.

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  • Driving Following an Injury or Disability

    For many people, being able to drive provides a sense of independence and freedom. This consumer education sheet from the Rehabilitation Institute of Chicago will help you and your family understand how a disability or injury can affect driving and the process for participating in a driver's rehabilitation program.

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  • "Early Acute Management in Adults with Spinal Cord Injury: a Clinical Practice Guideline for Health-Care Professionals" (Paralyzed Veterans of America, 2008)

    This Clinical Practice Guideline was created by Consortium for Spinal Cord Medicine.  It was designed to guide health care professionals in trauma centers, ICUs and hospitals in providing care during the first 72 hours after spinal cord injury.

     
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  • "Eat Well, Live Well with Spinal Cord Injury: A practical guide to help individuals with spinal cord injuries address secondary health complications in SCI through nutrition" (2013)

    It is common for individuals with spinal cord injuries to experience multiple nutritional deficiencies. Eating the right foods becomes even more crucial to meet your body's increased nutrient needs fight after injury, during rehabilitation and throughout your life. Funded by the Paralyzed Veterans of America, Eat Well, Live Well with Spinal Cord Injury is a comprehensive, practical nurtritional guide written specifically for individuals with spinal cord injuries, as well as their families, friends, caregivers, health and medical professionals.

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  • Equipped for Equality - Employment Fact Sheets

    A variety of employment fact sheets were created by Equipped for Equality, a non-profit organization dedicated to advancing human and civil rights of people with disabilities in Illinois. Rights information for employment covers frequently asked questions regarding disability disclosure, disability-related inquiries and medical examinations, documenting discrimination, disability harassment retaliation and constructive discharge, where to file employment complaints, and employment rights under the American's with Disability Act (ADA).  

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  • Erectile Dysfunction: Options for Men after Spinal Cord Injury

    This consumer education sheet, from the Rocky Mountain Regional Spinal Cord Injury System at Craig Hospital, provides information about erectile dysfunction and options for men after spinal cord injury. The document covers several treatment options to help increase the number of erections and how long they last. These options include medications, penile implants, and sexual aids.

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  • GirlsHealth.Gov

    Girlshealth.gov was created in 2002 by the U.S. Department of Health and Human Services’ (HHS) Office on Women’s Health  (OWH) to help girls (ages 10 to 16) learn about health, growing up, and issues they may face. Girlshealth.gov promotes healthy and positive behaviors in girls, giving them reliable and useful health information in a fun, easy-to-understand way. The website also provides information  on Illness & Disability to help teach girls wiht disabilities, family members, and friends about healthy living.

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  • HealthFinder.gov

    Healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations. This government website is designed to help you and those you care about stay healthy. Health Topics A to Z provides information on health conditions and diseases, nutrition and physical activity, doctor visits, everyday healthy living, pregnancy and parenting.

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  • Helping Youth Develop Soft Skills for Job Success: Tips for Parents and Families

    Soft skills help youth succeed in life no matter what they are doing. This consumer education sheet from the National Collaborative on Workforce and Disability provides helpful hints to enhance and develop communication skills, interpersonal skills, decision making skills, and a desire for lifelong learning.

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  • Hiring a Caregiver

    It is natural to be worried and overwhelmed when needing to hire someone for help with personal care. This consumer education sheet from the Rehabilitation Institute of Chicago LIFE Center, can help you better understand how to start, what to ask, and how to know if someone will provide what is needed.  Pros and cons for using a home health care agency, employment agency, or hiring a caregiver on your own are outlined along with caregiver interviewing tips.

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  • Journal of Spinal Cord Medicine

    The American Paraplegia Society provides this selection of free articles from the "Journal of Spinal Cord Medicine" (JSCM). Here you'll find articles and updates on the latest medical research and findings regarding Spinal Cord Injury.

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  • LIFE Center - Rehabilitation Institute of Chicago

    The LIFE (learning, innovation, family, empowerment) Center at the Rehabilitation Institute of Chicago is a premier family and professional resource center designed to support the life-long needs of people with disabilities, their families, and the community. The LIFE Center's extensive consumer education and community resources, spans over 7,000 peer reviewed sources of help centered on key life needs for familes and individuals living with a spinal cord injury. The online collection includes local, regional, national, and international agencies and extensive consumer education sheets. Topics include medical information and care, caregiving and equipment, housing and transportation, education and employment, support and wellness, recreation and leisure, finance and law, and inspiration and hope. Links to support groups, government disability programs, home care, medical equipment, and other assistive techology providers are also provided. Click on the Patient and Family Education pages icon to explore consumer education sheets specific to spinal cord injury.

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  • Living Wills and Powers of Attorney for Health Care: An Overview

    Taking time to outline your interests regarding the type of treatment you would like or would not like, along with identifying someone whom you trust to oversee your care will help ensure that your wishes are attended to in the event you are not able to communicate for yourself.  This consumer education sheet is provided by Nolo.com; one of the Internet's leading legal websites. This overview describes what's involved and why it is important to prepare Living Wills and Powers of Attorney for Health Care, who can make the health care documents, when it takes effect and when it ends, and how the documents can be revoked. This website provides additional information on a variety of aspects of advanced care planning to ensure your wishes are directed according to your desires.

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  • "Male Fertility Following Spinal Cord Injury: A Guide for Patients, Second Edition" from the Miami Project

    This online booklet, created by the Miami Project’s Male Fertility Research program, provides information about changes in male sexual function and fertility that may accompany spinal cord injury (SCI), and outlines the options available to deal with such changes.
     
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  • Mayo Clinic - Spinal Cord Injury

    The Mayo Clinic is a nonprofit worldwide leader in medical care, research and education for people from all walks of life.  Their spinal cord injury resource page outlines the basics of Spinal Cord Injury and important information on initial treatments and rehabilitation. Click on Coping and Support to find resources and information on living with a spinal cord injury.

     

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  • "Mayo Clinic Guide to Living with a Spinal Cord Injury: Moving Ahead with Your Life," The Mayo Clinic (Demos Health, 2009)

    This book was developed by leading Mayo Clinic experts, and covers a wide variety of spinal cord injury related topics such as emotional adjustments, sexuality, skin care, and adaptive equipment . This independence-granting book encourages readers to resume their favorite hobbies, participate in athletic activities, and return to the workplace quickly and safely.

     

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  • Medicine.Net: Spinal Cord Injury Treatment and Rehabilitation

    MedicineNet.com is an online, healthcare media publishing company. It provides easy-to-read, in-depth, authoritative medical information for consumers via its robust, user-friendly, interactive website.  Their Spinal Cord Injury Treatment and Rehabilitation section provides basic, trustworthy medical information.

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  • MedlinePlus Spinal Cord Injury

    MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations to give easy access to medical journal articles, information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. The section on spinal cord injuries provides specific information on diagnosis, tests, prevention, and treatment as well as videos and tutorials, statistics and research, clinical trials, and journal articles.

     

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  • Miami Project to Cure Paralysis

    In 1985, Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti helped found The Miami Project to Cure Paralysis after Nick’s son, Marc, sustained a spinal cord injury during a college football game. Today, The Miami Project is a comprehensive spinal cord injury research center, housed in the Lois Pope LIFE Center, a Center of Excellence at the University of Miami Miller School of Medicine. The Miami Project’s international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury. The website's Living with Paralysis section provides provides exceptional consumer education on Spinal Cord Injury 101Care and Resources, Experimental Treatment, Webinars, and Statistics. The Healthy Living section provides additional information on diet and nutrition, exercises, sports and leisure, and stretching.

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  • Michael Brent Resource Center at Frazier Rehabilitation Institute

    The Michael Brent Resource Center at Frazier Rehabilitation Institute was established in 2010 to address the needs of individuals and their families from the onset of spinal cord impairment and continuing throughout the life cycle.  Its mission is to provide a central location where educational books, DVD’s, CD’s, pamphlets and other educational materials are housed for inpatient, outpatients, families, staff, students and others to come and learn about spinal cord impairment.  The Center also provides a location for inpatients, outpatients and those in the community to meet and network with the agencies that serve them. 

     

     
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  • Middle School and High School Transition Planning

    Parents of youth with disabilities should begin thinking about transition (planning for adulthood) as early as possible. Although the formal process of transition planning doesn't begin until high school, it is helpful to begin thinking about it much sooner. PACER's National Parent Center on Transition and Employment provides various consumer education sheets to assist with this process, including information on Individuals with Disabilities Education Act (IDEA) and Individualized Education Progorams (IEPs), College Planning, and Preparing for Employment.

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  • Midwest Regional Spinal Cord Injury Care System - Rehabilitation Institute of Chicago (RIC)

    The Midwest Regional Spinal Cord Injury Center is operated by the Rehabilitation Institute of Chicago (RIC); a world-renown state-of-the-art rehabilitation hospital that provides spinal cord injury care at all stages of recovery. Physicians, clinicians, and scientists work collectively to integrate translational research and cutting-edge technology to maximize independence and integration back to the community. RIC is the largest physical rehabilitation research facility in the world. Research scientists across the globe work collectively with RIC physicians and clinical teams to discover and advance care for spinal cord injury. Click on Clinical Trials to identify current studies underway and in recruitment of participants. Additional Patient and Family Education information is available through the RIC LIFE Center at http://lifecenter.ric.org

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  • Model Systems Knowledge Translation Center

    The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops systems for sharing information for the National Institute on Disability Rehabilitation Research (NIDRR) model systems programs in traumatic brain injury, spinal cord injury, and burn injury. The Spinal Cord Injury tab at the top takes you to a page with a listing of what the website has to offer, including a factsheets, slideshows, and hot topic modules as well as quick reviews of research that is funded by the NIDRR, and a database of research publications from the Model Spinal Cord Injury Systems since 1991. 

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  • National Collaborative on Workforce and Disability for Youth

    The National Collaborative on Workforce and Disability for Youth assists state and local workforce development systems to better serve all youth, including youth with disabilities. This resource center partners with expertise in education, youth development, disability, employment, workforce development and family issues to provide extensive resources that can assist families in developing youth leadership and workforce skills, self-advocacy, and other key skills that support successfull community integration and independence. Click on Publications by Topic to explore briefs, fact sheets, guides, and white papers.

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  • National Rehabilitation Information Center

    The National Rehabilitation Information Center (NARIC) is the library of of the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). This extensive collection includes all articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDILLRR. Disability Resources are additionally arranged by subject to help patrons find agencies, organizations, and online resources for treatment, benefits, and services. 

     

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  • Nerve Transfers In Patients With Spinal Cord Injury Educational Packet

    Cervical level spinal cord injury can significantly affect hand function. Depending on the level and type of injury, surgery to improve hand and arm function may be an option. Surgical treatment may include nerve transfers or other procedures. To help you understand the treatment options and what to expect, The Univeristy of Washington in St. Louis prepared this handout.
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  • Next Step in Care

    The United Hospital Fund, which is based in New York, created this website to help improve patients' transitions to different types of care facilities. The site is packed with resources for every step of caring for a loved one, from hospital admission to discharge and beyond which apply regardless of your location. The online Family Caregiver's Guide to Care Coordination helps family identify ways to work together with professionals with tips on staying organized, especially when professional care ends. 

     

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  • Northwest Regional Spinal Cord Injury System - University of Washington, Seattle

    The Northwest Regional Spinal Cord Injury System, located at the University of Washington, is a Model Rehabilitation Center with a comprehensive team of rehabilitation specialists, including physicians, physical and occupational therapists, speech pathologists, rehabilitation counselors, and psychologists. The Department of Rehabilitation also provides useful connections to local specialty programs, such as the Disabled Driving Program, Assistive Technology and Seating Clinic and the Fertility Clinic. Information and Education, on the left-hand menu, provides access to SCI forums, newsletters, pamphlets, and videos. The Spinal Cord Injury Pamphlet Series: Staying Healthy After a Spinal Cord Injury can give you good insights on what your loved one is facing and how to help him stay healthy. Projects & Research gives information on research publications and projects.

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  • Office of Special Education and Rehabilitation Services (OSERS)

    OSERS is part of the U.S. Department of Education committed to improving opportunities in education and employment for people with disabilities by supporting programs that facilitate equal access to disabled individuals. Here you'll find research, policies and programs dedicated to this initiative. The website offers detailed information on understanding and implementing important legislation as well as publications and tools for making education and employment more accessible. Within the index in the center of the home page, select Reports & Resources. This page offers publications and fact sheets about employment and educational opportunities, and disability rights.

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  • OrthoInfo - American Academy of Orthopaedic Surgeons

    OrthoInfo is an online resource from the American Academy of Orthopaedic Surgions thatsaims to share the most up-to-date news and information about orthopaedic surgery. The website contains over 600 articles about fractures, sports injuries, joint replacement, children's' orthopaedics, and other topics. The sections on Neck & Back provide a variety of consumer education sheets,on diseases and conditions, treatments and surgeries, and health and safety. All of OrthoInfo’s articles are written and peer reviewed by orthopaedic surgeons who are experts in their field.

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  • Pain after Spinal Cord Injury

    Pain is a serious problem for many people with spinal cord injuries (SCI). Pain after SCI can occur in parts of the body where there is normal sensation (feeling) as well as areas that have little or no feeling. The pain is very real and can have a negative impact on quality of life. A person in severe pain may have difficulty carrying out daily activities or participating in enjoyable pastimes. Follow this link to learn more about the different types of pain many experience after SCI, and the ways it is can be treated. 

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  • Paralyzed Veterans of America

    The PVA's mission is to improve the quality of life of its members by advocating for improved health care, research, education and awareness of disability rights and programs for veterans. The website focuses primarily on injured veterans; however, the information on disability rights and sports and recreation applies to veterans and non-veterans alike.

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  • Personal Care Assistants - How to Find, Hire and Keep Them

    This section, found on the Craig Hospital website, offers suggestions on how to deal with a personal care assistant (PCA). There are tips on saving money, organizing and evaluating your needs and tips on keeping your PCA happy and responsible.

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  • Personal Care Attendant

    This consumer education sheet, developed through the Medical University of South Carolina's Office of Research, discusses key points for finding, interviewing, educating, and training a personal care attendant (PCA). It also outlines top 10 reasons why PCAs quit their jobs with helpful hints for developing a positive working relationship.

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  • Pregnancy for Women with Spinal Cord Injury

    This information sheet, created by the University of Alabama at Birmingham Spinal Cord Injury Model System (UAB-SCIMS), discusses the issues of pregnancy such as planning and managing, as well labor and delivery.  

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  • "Preservation of Upper Limb Function Following Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals" by Paralyzed Veterans of America (2005)

    This free online guideline is designed to educate health-care professionals and persons with spinal cord injury on the risk of upper limb pain and injury, including recommendations for assessment, management, and monitoring. Published by Paralyzed Veterans of America on behalf of the Consortium for Spinal Cord Medicine.

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  • Regional Spinal Cord Injury Center of the Delaware Valley - Thomas Jefferson University Magee Rehabilitation Hospital, Philadelphia

    Located in Philadelphia, PA, the Magee Rehabilitation Hospital, in affiliation with Thomas Jefferson University Hospital, provides quality care and programs for individuals with Spinal Cord Injury. Many of these programs provide skills crucial to returning to community living. All resources and services of Magee are available through their Life Time Follow-Up system of care. Scroll down to the bottom of the page to access the Patient-Family Teaching Manual which provides consumer information on a variety of health topics pertinent to spinal cord injury. This section also includes day in the life videos and newsletters.

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  • "Respiratory Management Following Spinal Cord Injury: A Clinical Practice Guideline for Health-Care Professionals" by Paralyzed Veterans of America (2005)

    This free online guide, created by the Consortium for Spinal Cord Injury Medicine, answers many of the questions about respiratory health that may arise after a spinal cord injury. 

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  • Rocky Mountain Regional Spinal Injury System - Craig Hospital, Englewood, CO

    Craig Hospital in Englewood, CO offers state-of-the-art facilities and expert staff for the care of spinal cord injuries. Free on-campus housing units are offered to family members to encourage family support. The large number of patients with similar ages, backgrounds and injuries promotes hope through friendships and peer counseling. Click on Education & resources at the top toolbar to access interactive library resources on spinal cord injury.

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  • Safe Transfer Technique

    Transferring in and out of a wheelchair puts higher stress on arms and shoulders than anything else one may do on a regular basis. Learning the correct way to transfer is extremely important in order to keep  arms functioning and pain-free. This factsheet from the Model Systems Knowledge Translation Center is also available in Spanish.

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  • Sexual Function for Men after Spinal Cord Injury

    This consumer education sheet from Craig Hospital provides information on sexual function for men after a spinal cord injury. Topics include how SCI may affect sexual function, erection, ejaculation, organisms, ability to satisfy a partner, preventing complications, such as autonomic dysreflexia, skin care, bladder care and bowel issues, fathering a child / fertility, and annual medical check-ups.

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  • Sexual Function for Women After Spinal Cord Injury

    This consumer education sheet by Craig Hospital provides information on many common questions of women with a spinal cord injury regarding sexual functioning. Topics include how sexual function may be affected, menstrual periods, tampons, menstrual pads, birth control, having children, fertility, organism, preventing complications, such as autonomic dysreflexia, care of bladder and bowel issues, skin care, and annual visits with a gynecologist.

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  • Sexual Health for Men

    Paralysis affects a man's sexuality both physically and psychologically. Men wonder, "Can I still do it?" This article from the Christopher and Dana Reeve Foundation answers that question and more regarding sexual health for men.
     
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  • Sexual Health For Women

    Paralysis itself doesn't affect a woman's libido or her need to express herself sexually, nor does it affect her ability to conceive a child. The main difference in sexual functioning between women with disabilities and those without can be accounted for by the difficulties women with disabilities have in finding a romantic partner. This section of the Christopher and Dana Reeve Foundation’s website explains this and other sexual health topics women may face after a spinal cord injury.
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  • Sexualhealth

    Sexualhealth is a website featuring information on sexual function for people with disabilities. It has an extensive resource section on Disability and Chronic Diseases, and covers topics such as “Sex Redefined,” and “Sex and Injury.” Follow this link, and pick a topic of interest. 
     
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  • "Sexuality and Reproductive Health in Adults with Spinal Cord Injury: A Clinical Practice Guideline" by Paralyzed Verterans of America for Health-Care Professionals (2010)

    Created by the Consortium for Spinal Cord Medicine, "What You Should Know" explores a range of topics related to sexuality and sexual function after spinal cord injury. The guide was developed with the belief that all people who want to be sexually active after Spinal Cord Injury should have the knowledge they need to make that decision and be comfortable with their sex life whatever their level of injury. With straightforward facts and discussions of the wide range of topics affecting sexuality, the guide not only provides current medical information but can serve as a tool for making the conversation about sexuality after Spinal Cord Injury easier to have. 

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  • Sexuality in Spinal Cord Injury

    This resource, developed by the University of Miami School of Medicine, covers the basics of sex after spinal cord injury for both men and women. Topics for men include short articles on Erections, Ejaculation, Orgasm, and Coitus as well as Sexual Drive and Activity. Topics for women include Organsms, Fertility, Childbirth and Contraception and Sexual Behavior and Activity.

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  • Sexuality Resources from Stanley Ducharme, Ph.D

    This informational website was developed by Stanley Ducharme, a psychologist and sex therapist specializing in physical disability, rehabilitation, sexual dysfunction and relationship issues. A variety of consumer-friendly information is presented on topics randing from birth control options for women with spinal cord injury to improving sexual desire for both men and woment as well as helpful hints for communication, managing fatigue and depression, ways to keep sexual desire and more. Books written by Dr. Ducharme are also highlighted.

     
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  • Skin Care and Pressure Sores in Spinal Cord Injury

    A pressure sore is an area of the skin or underlying tissue (muscle, bone) that is damaged due to loss of blood flow to the area. They are the most common and sometimes life-threating medical complication of spinal cord injury. This consumer education sheet comes from the Model Systems Knowledge Translation Center and is part of a six-part series on skin care which can be explored on the right side of this page. Topics include Causes and Risks, Prevention, and Building Skin Tolerance.

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  • Social Security Disability Benefit Overview

    This consumer education sheet provides a general overview of social security disability benefits, the eligibility requirements, application process, medicare benefit availability, appeal process, and reasons why benefits could be terminated.

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  • Spinal Cord Injuries Australia

    Spinal Cord Injuries Australia is an international resource that promotes independence, and continues today with a proud history of providing consumer based support and rehabilitation services to people with physical disabilities. They aim to create a society without barriers for people with spinal cord injuries. SCI resources include information on Access and Public Toliets, Clothing and Fashion, Employment and Eduction, Equipment, Technology, and Wheelchairs, Financial and Legal matters, Health and SCI facts, Housing and Home Modification, and Transport and Travel.

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  • Spinal Cord Injuries: Areas of Research - Topic Overview

    This section of WebMD provides an overview of several types of research on spinal cord injuries. Some of them may be at the point where people with SCI's are using them on a trial basis. Others might still be in the animal-study stage. They all have the potential to lead to a return of some feeling and movement in paralyzed areas.

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  • "Spinal Cord Injury and the Family: A New Guide," Alpert, Michelle J. MD, Cindy Purcell, Ted Purcell and Saul Wisnia (Harvard University Press, 2008)

    Physiatrist Dr. Michelle Alpert's clinical experience with patients' own stories, "Spinal Cord Injury and the Family" is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive. Dr. Alpert is the Director of Rehabilitation Medicine, Hebrew Rehabilitation Center, and Clinical Instructor in Physical Medicine and Rehabilitation, Harvard Medical School. She was the founder and first director of the Spinal Cord Injury Program at Spaulding Rehabilitation Hospital.

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  • Spinal Cord Injury Directory from WebMD

    WebMD is a trusted source for objective, trustworthy, and timely health information. The website's section on Spinal Cord Injuries Directory provides a medical reference for spinal cord injury and pain and useful articles on life with a spinal cord injury.

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  • Spinal Cord Injury Guide

    The Boston Medical Center created The Spinal Cord Injury Guide to give the Spinal Cord Injury community a place to go to get trusted, peer-reviewed information, and to rate the best. The Spinal Cord Injury Guide brings together websites on Spinal Cord Injury chosen by people with spinal cord injuries for people with spinal cord injuries.

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  • Spinal Cord Injury Model System Information Network - University of Alabama

    The University of Alabama at Birmingham Spinal Cord Injury Model System maintains an extensive information network of spinal cord specific resources. The fact sheets offer quick references to basic spinal cord injury health information. Daily Living topics provide consumer education on Adjustment, Assistive Technology, Caregiving, Family & Relationships, Health Management, Home Modification, Leisure, Mobility, Nutrition, Sexuality, School, and Work. Additional Rehab Tip Sheets provide information on common activities, such as wheelchair positioning, assisted pressure relief, lift transfers, assisted transfers and bed positioning. SCI Health Education Videos are also available for a vairey of secondary conditions.

     

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  • Spinal Cord Injury Zone

    Calling itself a "knowledge base," the Spinal Cord Injury Zone provides news and information on Spinal Cord Injury-related issues. Here you'll find facts and answers to common questions about Spinal Cord Injury, medical issues and daily life. The videos offered are good educational and inspirational tools. The mission of The Spinal Cord Injury Zone is to archive important Spinal Cord Injury News and Spinal Cord Injury Information for education and awareness.

     

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  • "Spinal Cord Injury: A Guide for Patients and Families," Dobkin, Bruce M.D. and Michael Selzer M.D (Demos Health, 2008)

    This well-written, reliable overview of traumatic spinal-cord injury and its treatment is essential reading for all patients, family members, and caregivers who want a better understanding of the condition. In simple, everyday English, it explains the anatomy of the spine, the results of injury, and treatment and management issues encountered during rehabilitation. A glossary of commonly used terms and website resources offer tools for further study, while the latest scientific research helps patients make informed medical decisions that promote optimum healing.

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  • Spinal Cord Injury: Hope through Research

    Published by the National Institute of Neurological Disorders and Stroke, this online pamphlet provides an overview of spinal cord injury describing how the spinal cord works, what happens when it is injured, how injuries are diagnosed and classified and how rehabilitation helps with recovery.

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  • Spinal Cord Injury: Surgery & Treatment

    Information on various surgery and treatment for spinal cord injury is available on the UC San Diego Health System's spinal cord injury website. Topics include surgical and nonsurgical treament such as nerve and tendon transfer, selective peripheral neurotomy, phrenic nerve stimulator, and spinal cord stimulation. 

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  • Spinal Cord InjuryRecovery.org

    Spinal Cord Injury-Recovery.org was created to share basic information on spinal cord injuries.  While this website is non-professional, it is a great guide for individuals looking for a straightforward resource on spinal cord injury facts, therapies and research.  

     

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  • "Spinal Network: The Total Resource Book" (Leonard Media Group, 2009)

    "Spinal Network" is the essential resource for making important life choices after a spinal cord injury, multiple sclerosis, post-polio syndrome, amputation, ALS and other conditions. This information-packed book explores options in health, technology, attendant services, employment, travel, sports, relationships, sexuality and parenting. It explains--in clear language--the intricacies of legal rights, government benefits and cure research. 

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  • The Wheelchair Series: What the Spinal Cord Injury Consumer Needs to Know

    The wheelchair is a complex piece of equipment that has been extensively engineered and studied. Becoming a wheelchair expert increases your ability to get a wheelchair that truly meets your needs. While it is not possible or a single handout to teach all there is to know, topics covered by the Model Systems Knowledge Translation Center on Getting the Right Wheelchair, The Manual Wheelchair and The Power Wheelchair include key information that can support your ongoing development of wheelchair knowledge.

     

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  • Tips for Teens: Use Your IEP Meetings to Learn How to Advocate for Yourself

    This consumer education sheet provided by the PACER Center provides useful tips for teens in developing self-advocacy skills. It provides information on how to begin to express needs and wants by participating in their Individualized Education Program (IEP) meetings. At these meetings, teens can learn ways to talk about their disability to others, set goals, build teamwork skills, ask for accommodations and practice other self-advocacy skills. This single copy form from the PACER publication catalog is for your personal, noncommercial use only. For permission to reprint multiple copies or to order presentation-ready copies for distribution, complete the PACER Reprint Form at www.pacer.org/forms/request.asp or PACER Publication Order Form at ww.pacer.org/publications/OrderForm.pdf

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  • Understanding Spinal Cord Injury - Video Resource

    Understanding Spinal Cord Injury is a video resource developed by the Shepherd Center, a Spinal Cord Injury Model Systems rehabilitation center.  Here you can watch videos on the basics of Spinal Cord Injury and also hear stories from people who’ve been there. The Sheperd Center also provides consumer education on spinal cord injury anatomy with a glossary of terms you may hear, questions that families should ask their medical team, and other tips for coping, adjustment, and how to navigate the insurance maze through an online book "Understanding Spinal Cord Injury."

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  • United Spinal Association

    Each year, United Spinal helps thousands of individuals living with spinal cord injuries or disorders overcome the daily challenges of living with a disability. With over 60 local chapters and suport groups nationwide, United Spinal Association connects people  with SCI/D to their peers and fosters an expansive grassroots network that enriches lives.  Free webinars are provided on a regular basis to help individuals and their families stay informed and connected to helpful resource information. The resource library offers useful links to services, articles and studies. Click on Chapters at the top toolbar to locate your state association.

     

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  • United Spinal Association - Reproductive Health

    The United Spinal Association Resource Center provides a variety of consumer education sheets on reproductive health for women with spinal cord injury, including sexuality for women with spinal cord injury and pregnancy with and after spinal cord injury. 

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  • United Spinal Association—Family and Personal Relationships

    The United Spinal Association provides active-lifestyle, peer support, and advocacy information to encourage individuals to achieve their highest potential in all facets of life. The Association's Spinal Cord Resource Center has a dedicated section on Family and Personal Relationships with consumer information articles on Dating after SCI, Parenting after SCI, Love and Marriage after SCI, and other relevant articles.
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  • What is a Spinal Cord Injury Model System Center?

    The Rehabilitation Institute of Chicago, describes the "Spinal Cord Injury Model System" and explains why it is important to you. A brief outline of criteria to become a model system in spinal cord injury as designated by the National Institute on Disability and Rehabilitation Research (NIDRR) is also provided. 

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  • Working and SSDI Benefits

    This consumer education article details the requirements for how much you can work and still maintain SSDI (Social Security Disability Income) benefits. The article also provides additional consumer education sheets on working and eligibility for Social Security Disability.

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  • "Yes, You Can!: Guide to Self-Care for Persons with Spinal Cord Injury, 4th ed.," Ed. Burns, Stephen P., M.D and Margaret C., M.D. Hammond. (Paralyzed Veterans of America, 2009)

    Published by the Paralyzed Veterans of America, 'Yes, You Can!," is designed for both the newly injured patient, and their family members. Written by experts in the field of spinal-cord injury, it is an extremely popular guide to subjects such as: self-care, sexuality, pain management, substance abuse, exercise, alternative medicine, adaptive equipment, and staying healthy.

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