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  • "Disability Etiquette" (United Spinal Association)

    This pamphlet, designed by the United Spinal Association, is a great resource for businesses, schools, organizations, staff training and disability awareness programs. You don’t have to feel awkward when interacting with, or when you meet a person who has a disability. This booklet provides tips for you to follow that will help create positive interactions and raise everyone’s comfort levels.  

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  • "Fire Safety for Wheelchair Users" by the United Spinal Association

    This online consumer education booklet gives important tips for spinal cord injury survivors and families in ways to handle situations before and during a fire. It also addresses fire prevention within homes. The tips are a model that can be modified and adjusted to fit varyous types of homes and structures. 

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  • "United Spinal Association Publications"

    This webpage offers publications that are available for free download covering a variety of topics related to spinal cord injury, including disability etiquette, mobility options, accessible air travel, fire safety for wheelchair users, the american's disability act, fair housing amendment acts, and other advocacy booklets.

     

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  • CarePages

    CarePages provides a secure and free personal website or blog that helps connect friends and family during a health challenge. Through Carepages, you can provide up-to-date information on your loved one's condition and let family and friends know how things are going without dozens of repetitive phone calls or email updates. CarePages also provides a variety of forum threads covering things like caregiving and emotional health.  All are available online for you to read and contribute to, or start on your own, at your convenience. Click on the Learn tab on the top toolbar to view Stories of Inspiration, Tips, Resources, and Articles on living a healthy, compassionate life, managing money, comforting friends, and helping yourself eat and sleep well while under stress.

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  • CaringBridge

    No more repeating your story over and over. CaringBridge helps you save time with one update. You can create a personal website for yourself or a loved one during a critical illness or catastrophic event and have time to focus on what matters. This personal, protected website provides an everyday health journal that uses features such as a patient journal and photo gallery to update friends and family who can then show their support by posting messages in your online guestbook.

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  • Center for Parent Information and Resources

    The Center for Parent Information & Resources offers a broad range of childhood disability resources, most of which are also available in Spanish. It serves as a national information resource on disabilities in infants, toddlers, children and youth. Scroll down the Resources page to view an array of information on K-12 issues for accommodations at school, career and college readiness, the IEP process, how to develop effective practices and enable parent advocacy. This website also identifies Parent Technical Assistance Centers (PTACs) by state.

     

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  • Christopher & Dana Reeve Foundation

    The Christopher and Dana Reeve Foundation is committed to raising funds to support research on spinal cord injury and to improving the quality of life of people living with paralysis. The Foundation's Paralysis Resource Center provides a robust collection of resources that span key areas of life. Scroll down to obtain a FREE 442 page Paralysis Resource Guide in hard copy or electronic format, Wallet Cards on autonomic dysreflexia, deep vein thrombosis, and sepsis. The Resource Center also provides a Peer Mentor program to support life-long learning. Persons interested in connecting with someone to answer questions directly via phone or email can do so through the "Ask Us Anything" link.

     

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  • Depression and Spinal Cord Injury

    Depression can affect anyone. In fact, approximately 1 in 20 Americans (over 11 million people) get depressed every year. Depression is not an inevitable part of living with SCI though many in the SCI population - about one in five people - may experience this. This consumer education sheet describes depression, its causes, symptoms, and treatment. A depression self-test is also included to help one understand the extent of their depression and potential concern to get help.  This education sheet can also be downloaded in Spanish.

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  • Employment after Spinal Cord Injury

    Most people with spinal cord injuries (SCI) want to work yet need support, training, and vocational rehabilitation services to help them obtain and keep a job. This consumer education sheet identifies sources of support that may help to overcome many barriers that are outside the individual’s control, such as financial and health care issues, accessibility, and employer attitudes. 

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  • Family Caregiver Alliance

    The Family Caregiver Alliance offers comprehensive online tools for caregivers in all locations and situations, including those caring for a spinal cord injury. Users can listen and view Caregiver Webinars on a variety of subjects. Workshops, classes, and events are also available across California. The Caregiving Fact Sheets offer extensive lists of information and tips on topics, such as self-advocacy and stress management.

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  • Family Voices

    This national network is committed to providing families of children with disabilities with tools to advocate for family-centered health care, which Family Voices describes as "community-based, coordinated...and guided by what is best for each child and family." In this system, the family is emphasized as an equal partner in decision-making for health care. This website offers a wealth of material, including statistics and information on disability-rights legislation, details on family support systems and links to initiatives to improve family-focused health care. You'll also find contact information for the Family Voices organization closest to you.

     

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  • GovBenefits.gov

    Created through a partnership of federal agencies, this website is an excellent tool for finding and accessing the government programs designed to help you. The website offers the option to search for benefits according to category, state, or federal agency. Select Benefits at the top and decide how you would like to search for available benefits from the options under the tab. A good way to start is by selecting Start Benefit Finder to help you decide which benefits to look for.

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  • Job Accommodation Network (JAN)

    Provided by the U.S. Department of Labor's Office of Disability Employment Policy, JAN is a service intended to help employees, job seekers, entrepreneurs, and employers create a more accessible environment by providing information about job accommodations, the Americans with Disability Act (ADA), related legislation, and self-employment and entrepreneurship options for people with disabilities. Assistance is available over the phone or online. JAN also provides consulting services to decide the best course of action in making a business accessible as well as ideas for accommodating disabilities in the work place.

     

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  • Medicare Rights Center

    This nonprofit consumer service organization works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy, educational programs, and public policy initiatives. The website provides detailed information and resources on what benefits you're entitled to and how to find them. It's National Telephone Hotline connects you to trained volunteers and staff to help you understand Medicare benefits, find the right coverage, and understand how existing coverage works with Medicare.  The hotline is also available to individuals with Spanish as their primary language.

     

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  • MedlinePlus Spinal Cord Injury

    MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations to give easy access to medical journal articles, information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news. The section on spinal cord injuries provides specific information on diagnosis, tests, prevention, and treatment as well as videos and tutorials, statistics and research, clinical trials, and journal articles.

     

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  • Mothers Against Drunk Driving® (MADD)

    Founded by a mother whose daughter was killed by a drunk driver, Mothers Against Drunk Driving® (MADD) is the nation’s largest nonprofit working to protect families from drunk driving and underage drinking. One of the largest victim services organizations in the U.S., MADD also supports drunk and drugged driving victims and survivors serving one person every 9 minutes at no charge. So long as drunk driving impacts our families and friends, MADD's goal is to increase the number of victims and survivors served, and to continually improve the quality of those services. Click on Victim Services to learn more about finding support and understanding victims' rights.

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  • National Disability Rights Network

    This is the website of the nonprofit organization whose goal is to give people with disabilities an equal opportunity to succeed in society. The site offers legal information and tips on how to be an effective advocate by providing fact sheets and court cases as examples as well as a list of common acronyms and terms to help clarify the legal jargon and abbreviations. The Network is the largest provider of legally based advocacy services to peopel with disability in the United States. 

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  • Next Step in Care

    The United Hospital Fund, which is based in New York, created this website to help improve patients' transitions to different types of care facilities. The site is packed with resources for every step of caring for a loved one, from hospital admission to discharge and beyond which apply regardless of your location. The online Family Caregiver's Guide to Care Coordination helps family identify ways to work together with professionals with tips on staying organized, especially when professional care ends. 

     

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  • OrthoInfo - American Academy of Orthopaedic Surgeons

    OrthoInfo is an online resource from the American Academy of Orthopaedic Surgions thatsaims to share the most up-to-date news and information about orthopaedic surgery. The website contains over 600 articles about fractures, sports injuries, joint replacement, children's' orthopaedics, and other topics. The sections on Neck & Back provide a variety of consumer education sheets,on diseases and conditions, treatments and surgeries, and health and safety. All of OrthoInfo’s articles are written and peer reviewed by orthopaedic surgeons who are experts in their field.

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  • Pain after Spinal Cord Injury

    Pain is a serious problem for many people with spinal cord injuries (SCI). Pain after SCI can occur in parts of the body where there is normal sensation (feeling) as well as areas that have little or no feeling. The pain is very real and can have a negative impact on quality of life. A person in severe pain may have difficulty carrying out daily activities or participating in enjoyable pastimes. Follow this link to learn more about the different types of pain many experience after SCI, and the ways it is can be treated. 

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  • Paralyzed Veterans of America

    The PVA's mission is to improve the quality of life of its members by advocating for improved health care, research, education and awareness of disability rights and programs for veterans. The website focuses primarily on injured veterans; however, the information on disability rights and sports and recreation applies to veterans and non-veterans alike.

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  • Partnership for Prescription Assistance

    For individuals who don't have prescription drug coverage or the means to pay full price for necessary medication, this website offers solutions. The PPA provides resources and access to more than 475 public and private programs designed to help you find affordable medication. The PPA is sponsored by several American pharmaceutical companies and the American Academy of Family Physicians, Easter Seals and the Urban League.

     

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  • Rehabilitation International (RI)

    Rehabilitation International (RI) is a network of organizations and individuals whose aim is to implement and improve disability rights worldwide. Here you can find out what initiatives are being taken for disability rights on a global level. The About RI Global page highlights current projects and past accomplishments.

     

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  • Safe Transfer Technique

    Transferring in and out of a wheelchair puts higher stress on arms and shoulders than anything else one may do on a regular basis. Learning the correct way to transfer is extremely important in order to keep  arms functioning and pain-free. This factsheet from the Model Systems Knowledge Translation Center is also available in Spanish.

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  • Skin Care and Pressure Sores in Spinal Cord Injury

    A pressure sore is an area of the skin or underlying tissue (muscle, bone) that is damaged due to loss of blood flow to the area. They are the most common and sometimes life-threating medical complication of spinal cord injury. This consumer education sheet comes from the Model Systems Knowledge Translation Center and is part of a six-part series on skin care which can be explored on the right side of this page. Topics include Causes and Risks, Prevention, and Building Skin Tolerance.

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  • Social Security Administration

    This website covers Social Security issues specific to disabled individuals. Here you can get information on applying for benefits along with extensive lists of links to pages that answer questions about how Social security works and how it applies to your situation.

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  • The Wheelchair Series: What the Spinal Cord Injury Consumer Needs to Know

    The wheelchair is a complex piece of equipment that has been extensively engineered and studied. Becoming a wheelchair expert increases your ability to get a wheelchair that truly meets your needs. While it is not possible or a single handout to teach all there is to know, topics covered by the Model Systems Knowledge Translation Center on Getting the Right Wheelchair, The Manual Wheelchair and The Power Wheelchair include key information that can support your ongoing development of wheelchair knowledge.

     

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  • United Nations Enable

    This organization focuses on advocating for the "rights and dignity of persons with disabilities" on an international level. Here you'll find updates on the latest international activity and statistics regarding disability. This is an excellent source for fact sheets on key issues in the worldwide disability community and resoures on the UN Intergovernmental Process and UN System.

     

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  • United States Access Board

    The Access Board is an independent federal agency devoted to accessibility for people with disabilities. Created in 1973 to ensure access to federally funded facilities, the Board is a leading source of information on accessible design. The Board develops and maintains design criteria for buildings, transit vehicles, telecommunications equipment, electronic and information technology, recreation facilities, and healthcare diagnostic equipment. It also provides technical assistance and training on those requirements and on accessible design and continues to enforce accessibility standards for federally-funded facilities.

     

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  • Yellow Pages for Kids with Disabilities

    The Yellow Pages for Kids with Disabilities is database of professional contacts for people looking for support or information on any type of childhood disability. Search by state for resources on your child's disability on topics such as legal advice, healthcare and educational resources, government aid, doctors and specialists. Click you location under Select a State. This will lead you to a list of professionals, programs and resources in your state. A specific listing of Nation-wide Parent Training and Information Centers and Community Parent Resource Centers is also provided on this website.

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